Finding Hope

6 Posts | Page(s): 1 

Finding Hope

by caring_daughter on Sat Oct 08, 2005 12:00 AM

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On Aug. 29, 2005, my dad underwent craniotomy to remove a brain tumor that was initially discovered only eight days earlier. Since, we have found out that it is a glioblastoma multiforme grade 4. My dad is still recovering from the surgery through physical, speech, and occupational, therapy. In addition, he started radiation and chemotherapy with temodar last Tues. (10/4/05). This has been devastating to our entire family, especially to my mom and dad. It seems as though the medical professionals now involved in my dad's life are all too eager to share the survival statistics and the prognosis even though my dad and mom aren't wanting to know this information. How do you find and maintain hopefulness when the statistics may not be very encouraging? How do you "get your mind into the treatment plan" so that you can use positive thoughts, visualization, meditation, etc. to help you prove the numbers wrong?

Better Care

by Ken_s on Tue Oct 11, 2005 12:00 AM

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You should consult with a treatment facility that specializes in brain tumors. There are several. We wife is getting treatment at Duke and they are wonderful. Depending on where you are in the country, there are top centers in Colorado and Texas. Try a google search and see what you come up with. You may or may not beat the odds. You must never give up hope. With the proper care you will get more time of a higher quality and a better chance of survival.

Caring Daughter

by Marmie on Tue Oct 11, 2005 12:00 AM

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I'm sorry to hear about your dad. I know it is difficult in the beginning because all the information is negative. They told my husband and I last January that he had six months tops to live. We were of course devastated. But he is now ten months out and has no regrowth of tumor, and is doing well. Don't listen to the statistics, just try to remain positive and focused on treatment. Doctors mean well, but they are not God. Keep the faith and pray alot, that is what has gotten us through. Take care, Patty

Finding Hope

by Garland on Wed Oct 12, 2005 12:00 AM

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Thank you for being a caring daughter. I have one also for which i am grateful. He will need you and your family now more than ever. Give him respect and let him have his dignity. Don't get upset with the statistics or the doctors. The doctors are only giving you what they have learned thru time and experience. Don't leave it up to them, start your research now for your nxt step. www.braintumor.org is another good website and you can talk to many who are in the same boat and you can walk in their experience. No one actually knows what causes this and presently there is no cure but the standard treatment prolongs life and who knows, maybe research will uncover miracles within our time. We will help you all we can. Gene dx 03/05 still upright and mobile

Finding Hope

by Garland on Wed Oct 12, 2005 12:00 AM

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i copied this from another post for you... If we let things terrify us, life will not be worth living The one thing we learn about cancer is we don’t know how it will end or when, but you need to just be thankful for to day. My wife has a GBM 4 and it has been a long hard road but we are 29 months and she was just home and doing her sewing and has a great time out with old friends so I guess that is what it is all about. I know when this all started I was told that 4 to 9 months was all you could look for then you read maybe 18 and so on . But there is some that have 5 years and doing great so I don’t think we can say how long you have but if you give up it will make it shorter I’m sure. I think by going out and doing things and keeping your mind working is good to. My wife lives with our daughter in Denver and she goes to the CNI Center for Brain & Spinal Tumors in Englewood, CO. We did try other places and this one just looked good so here is where we end up. I don’t know what would have happen if we went some place else but it just worked out here for us. I guess you never know how long you got but enjoy all you can get the best out of it. We are going on a cruise in Jan. 06 and look forward to a lot more. But don’t give up as there is hope out there. Mike B.

New Gbm Patient

by Mrmarmot on Fri Oct 21, 2005 12:00 AM

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I was dx w/ resection 3/02/05. Rad with TEmador then Temador 1st week of month (last one scheduled for Nov!! balance difficulties (use cane for bal and some support whentransitioning (stand/sit, chair bed. AA has been a godsend (support from home group incredible. They get me to 6 AM meeting and to work afterwards ONE MAN'S OPINION 12 step program is readilly and DIRECTLY applicable to our situation (just substitue Cancer for the addiction Statistics apply best to large groups Tx applys to individuals - my doc emphasizes that current stats are based on OLD Data and Tx is HERE AND NOW! as in my treatment protocol was FDA approved less than 2weeks after my dx so We really haven't thought made much sense to focus much on the effacy of outdated procols and are concentrating on TODAY.
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