Scared in Oklahoma

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Thanks For Your Input

by Loving_Girlfriend on Tue Oct 18, 2005 12:00 AM

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sorry to hear about your loss.i did get him a wheal chair today.got to visit with the dr. today.but we still dont know any thing.he still eats real good.i'm thankfull for that.i still cant believe how fast this seams to of gotton him.how long did your husband fight his desease?is there a chance you can come out of this?the doctors just arent telling me enough yet.i let him know every day that i love him verry much.it seams like he has forrgoten to tell me on his own now.or maybe he just has so much on his mind.one of the case workers asked me today to think about putting him in a nursing home.i told her i dont think so.unconditional love.i'll care for him as long as i can.its very hard but i dont plan on giving up that easily.once again thanks for reasponding.i know how hard that was for you.greatly appreciated

Glad to Help

by Artnut on Tue Oct 18, 2005 12:00 AM

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My husband was diagnosed on July 5, 2005 with GBM IV and the tumor was about the size of an inch then. It grew during the radiation and Temodar treatments and only once showed signs of beginning to shrink. The last mri showed no progression, but his symptoms got worse by the day. Then, on October 9th, he went to be with the Lord. By then, the tumor filled almost his entire brain. This is the fastest growing thing I've ever seen! He use to tell me how much he loved me every day, but as the symptoms worsened, he didn't say it as much. I think a lot of it is from the way the tumor affects their thinking processes. There were times when he'd cry for no reason at all, or get a little snappy at me. The doc said it's from the dexamethosone because it causes mood swings. Believe me, it doesn't mean he doesn't love you as much as ever. The tumor just messes with their thinking. I wish I could say he'd beat this type of cancer, but the statistics aren't good. There are exceptions and I pray your boyfriend is an exception. Rarely do they make it passed 5 years. However, like I said, there are exceptions, so don't give up. Fight until there's nothing left to fight with. God grants miracles and you don't give up on getting one. Sometimes it's not in his plan to grant our prayers the way we'd like and that's hard to accept. Please, if you'd like to email me personally, feel free to do so. My email is --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html --- Just put something about being from the cancercompass group and I'll know it's you. I'll answer anything I can. God bless, Artnut

Emma

by Hopefully on Fri Oct 21, 2005 12:00 AM

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Hey Garland, Funny this, You were the first person to respond to loving girlfriend whose name turns out to be the same as your sister Emma. Well, you were the first person to repond to me and my sister in law is named Emma. Interesting to say the least. Hope you are well. Dana

hi

by Garland on Sat Oct 22, 2005 12:00 AM

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"you have gone and done a good thing". let his friends come over and be around him. don't worry about stepping on his toes right now. i've had my toes stepped on many times and if you think about it, its usually by a pretty lady still dancin!

hi Garland

by Loving_Girlfriend on Wed Oct 26, 2005 12:00 AM

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just a up date:the doctor dont think he is responding to the radiation.they tryied to do anther mri today but he got sick so they are going to rescedule.he only has 4 treatments left any way.its not looking good.he never did get any better.just weaker by the day.i'm just thankfull that he isnt in any pain.i had high hopes that his condition was from the meds and the radiation.but the doctor said those wont couse what he is doing.i dont know whats next.

Scared in Oklahoma

by Dianesuzie on Sun Apr 02, 2006 12:00 AM

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I, too, am scared in Oklahoma. My son went to the emergency room in Tulsa in July, 2004 and they found a massive tumor in his left temporal lobe. They removed it the next day and said that it was benign. So, we didn't do radiation. Sixteen months later, at age 21, we discovered another one during an mri. This one was on the right frontal lobe. They removed it December, 2005. This time John's Hopkins did the pathology and reviewed the first tumor also, and decided both tumors were malignant - Mesenchymal Chondrosarcoma. We completed 33 treatments of photon radiation in early March, 2006. He is on Decadron, Dilantin and Tegretol, besides all of the pain meds and anti-depressants, etc. The sides his tumors were on control personality and behavior and it has been somewhat of a rollercoaster. The decadron definitely is an evil drug - though necessary. The radiation was tough. But he has felt his worst about 2 weeks after radiation. By the way, don't depend on his friends. They scatter. Many reasons. But, my son has not done one thing a 21 year old does since his surgery. I worry about depression and lonliness. He still has a lot of swelling on his brain. He has lost most of his hair. He has gained 30 pounds in 35 days. None of his clothes fit. He is extremely tired. Not much fun yet. I hope the best for your boyfriend and you. Please be there for him and understand that he can't help his moods and behavior right now. Keep putting yourself in his shoes. It will get better. Diane in Tulsa

Hello

by Loving_Girlfriend on Sun Apr 02, 2006 12:00 AM

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bear diane, sorry to hear about your son.my b/f was on the same meds for a while.they had to take him off the dillantin.his body wasnt getting rid of it.like it should of..so he had a reaction to it..so watch out for that.make sure they cheak his leavell often.the mood swings are aufull..but just love him and always remember..its not him doing it..its a cobination of the cancer,and the meds.we did find out that the cancer on his brain,was from malanoma that moved to his brain.he passed away 16 of feb.it only took 5 months.i miss him dearly..tomorrow is his d-day.love him while hes still here with you..the cancer on his brain made him forget a lot of things,like how to swallow,how to talk.so talk to him lots..not every case is the same..i dont want to scare you..the dr. tryed to get me to put him in a nursing home.becouse the dease can make them mean.i kept him home through it all.he never did get fialent with me..i'm a certified cna and work at a nursing home so i new what i was doing any way.i learned a lot through all of this.if i can be any help at all let me know.. emma

to Scared in ok

by Alpha_Male on Wed Nov 01, 2006 12:00 AM

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Emma, The Cancer Treatment Center of America is in Tulsa. It is one of the FINEST and most UP TO DATE facilities in the WORLD. I took my son there for a GBM. Please look into going there.
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