BAC

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BAC

by Mary_Katie on Thu Apr 02, 2009 12:00 AM

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I was diagnosed with BAC nearly two years ago.  I have been feeling great but lately I find that I am coughing more often and have been coughing up phlem.  My doctor wants me participate in a clinical trial (while my body and lungs are still strong)  where patients are given chemo and tarceva but you are randomly selected for which you recieve first.  In other words, I would be treated with one until I could not tolerate it or it didn't work, then they would switch me to the other. 

 In my research, I get the feeling that chemo is not too effective.  I would appreciate information about people who have taken chemo and what the results were.  Thank you.

RE: BAC

by Trudie on Fri Apr 03, 2009 12:00 AM

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On 4/2/2009 Mary Katie wrote:

I was diagnosed with BAC nearly two years ago.  I have been feeling great but lately I find that I am coughing more often and have been coughing up phlem.  My doctor wants me participate in a clinical trial (while my body and lungs are still strong)  where patients are given chemo and tarceva but you are randomly selected for which you recieve first.  In other words, I would be treated with one until I could not tolerate it or it didn't work, then they would switch me to the other. 

 In my research, I get the feeling that chemo is not too effective.  I would appreciate information about people who have taken chemo and what the results were.  Thank you.


My husband has mucinous BAC.  His doctor says traditional chemo is not very effective on BAC because it is so slow growing.  Tarceva does wonderful things for some people, especially Asian females.

My husband, diagnosed with Stage1IIB BAC, tried Tarceva alone in 2006 and he was stable for 6 months. After Tarceva, he did the traditional chemo that didn't touch it.  After that he has been on 4 different clinical trials.  You will find if you have to try different treatments that most Phase II and Phase III clinical trials will exclude you if you have had more than 2 different cancer treatments.  Generally after 2 you only qualify for Phase 1 trials which are a real crap shoot.  We are hoping my husband gets lucky and finds something that will help him.  We keep on hoping!

My suggestion would be to take Tarceva if your insurance company pays for it and don't take the chance that you will get picked to have chemo first.   Here are some wonderful websites that will help you with your decision.  cancergrace.org  Click here: GRACE and Click here: ACOR Home Page

Trudie

RE: BAC

by Mary_Katie on Fri Aug 19, 2011 02:56 AM

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On Apr 02, 2009 12:00 AM Mary_Katie wrote:

I was diagnosed with BAC nearly two years ago.  I have been feeling great but lately I find that I am coughing more often and have been coughing up phlem.  My doctor wants me participate in a clinical trial (while my body and lungs are still strong)  where patients are given chemo and tarceva but you are randomly selected for which you recieve first.  In other words, I would be treated with one until I could not tolerate it or it didn't work, then they would switch me to the other. 

 In my research, I get the feeling that chemo is not too effective.  I would appreciate information about people who have taken chemo and what the results were.  Thank you.

It was two years after my diagnosis that I started coughing and coughing up phlem.  I could have gone into a clinical trial where I would also be randomly selected to get either chemo or tarceva first.  I chose not to participate in the clinical trial as I did not want to take chemo at that time.  Because I did not participate in the clinical trial, I had to pay for my tarceva $2425 per month (30 pills).  It worked well for me as within several days my friends noticed that I was no longer coughing.  As shared before, worked well for me until I developed the eye problems as a side effect.  On the bright side, I have been off the tarceva for three weeks and still have no cough.

Good luck with whatever choice you make.

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