Alternative Treatment for Essential Thrombocythemia

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Alternative Treatment for Essential Thrombocythemia

by MerryJoy on Thu Jun 25, 2009 12:00 AM

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I was just wondering if research has been done to see if Quinine can be used to help lower platelet count due to Essential Thrombocythemia?

I was on anagrelide for awhile, but the side effects were too severe for me.  I have been on hydroxyurea for a couple of years, but in the last couple of months I have been experiencing some very unbearable side effects from it.  I would love to find a natural alternative or diet...who wouldn't. I do take prescribed 81 mg. aspirin daily.  Has anyone heard or read about medical research on quinine for ET?

RE: Alternative Treatment for Essential Thrombocythemia

by jada1327 on Sat Aug 15, 2009 12:00 AM

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I was diagnosed by accident when i was about 19 with essential thrombocythemia. It was discovered when i had a T.I.A (minor stroke) due to starting a birth control regimen. I have been looking for a "natural" regimen for years & i've heard that a gluten free diet may help.

RE: Alternative Treatment for Essential Thrombocythemia

by honesttom84 on Thu Jan 21, 2010 07:42 PM

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Hi there i found these website www.hnmrc.net  (add e.t. to search box) and www.cancertutor.net  thought you should have a look! I've been diagnosed with E.T. over 1 million but did find a lady who'd had over a million for 30 years without taking medication, was young and said she was only considering meds in later life due to a higher risk factor with clots etc.

Hope this is of some help to you :)

RE: Alternative Treatment for Essential Thrombocythemia

by ssmhvac123 on Tue Aug 23, 2016 07:35 PM

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Anyone nave information about alternative treatments for essential thrombosis

RE: Alternative Treatment for Essential Thrombocythemia

by Planky on Wed Feb 28, 2018 05:25 PM

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I would be interested in anything natural to help ET. I want to come off Hydroxycarbamide drug as I feel VERY tired all the time since taking it. I was diagnosed quite by accident with a blood test & had no symptons.

RE: Alternative Treatment for Essential Thrombocythemia

by honesttom84 on Fri Mar 02, 2018 06:35 AM

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Go to a homeopath. I was diagnosed 8 years ago almost took that hydro rubbish and ended up been assessed with the vegatest machine by a Danish homeopath in Frome england. Lady saved my life. She said stop eating potatoes, choc, red wine, figs, orange and detox my liver and colon. Went back to the doc 2 weeks later and my platlets had halved. He said "see my A, I told you the medicine works", never took one!!

RE: Alternative Treatment for Essential Thrombocythemia

by Lucy1983 on Sat Mar 17, 2018 06:52 AM

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I was diagnosed with ET about a month ago. My doctor put me on Hydrea and I took it only 1 1/2 weeks but I had a very difficult time working. It made me very nauseous and although I did not throw up, I had to be near a bathroom all the time. I stopped taking it Tuesday but I am still nauseous. I was diagnosed with fibromyalgia and chronic fatigue syndrome when I was in my 30s (almost 18 years ago) and have stuck to a pretty clean diet since then. I also take a number of supplements, as well as using topical and aromatic essential oils to help relieve the pain. Because I have been doing this for so long I am stymied as to this additional diagnosis. Any suggestions would really be appreciated.

RE: Alternative Treatment for Essential Thrombocythemia

by otrochelle on Sun Nov 17, 2019 12:08 AM

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hi was wondering if you could share what medicines you were prescribed. i goggled vegatest and alot of people say its inaccurate. my mom is haveing a very hard time with this blood disorder and the side  effects of the drugs. i wondering where i can take her in New York

RE: Alternative Treatment for Essential Thrombocythemia

by ToddlerFather on Sun Nov 17, 2019 04:09 PM

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I wonder if there is some kind of combination similar to SEF Chemo that could apply for Thrombocythemia. Carboplatin + Mesna would probably not work, but the overall principle of applying chemo and making it less harsh on healthy cells is possibly something to be explored. 

RE: Alternative Treatment for Essential Thrombocythemia

by jeff3 on Wed Nov 20, 2019 01:19 AM

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Lucy1983, when my wife had ET and neither Hydrea or Anagrelide reduced her platelets, I learned Tocotrienol from red palm oil could and later learned it is a JAK2 inhibitor and it did restore platelet levels to normal while still on Anagrelide. Her doctor weaned her off the Anagrelide and she stopped taking the Tocotrienol. We thought the problem was resolved. We were not told about progression. She eventually was diagnosed with Primary Myelofibrosis. She now takes 125 mg of Delta Tocotrienol from annatto X 4 a day  (seperate taking supplements containing Tocopherols by at least four hours), 15 ml liposomal vitamin C X 3 a day, Theracurcumin (consider a liposomal curcumin), 200 mcg selenium X 4, 12 mg Astaxathin X 2, 15 mg vitamin K2 MK4 X 6. She uses 80,000 SPU Serrapaetase X 2 a day which you should research for fibromyalgia, 3 mg boron x 4 a day, 650 mg magnesium glycinate a day, B complex containing Folate and Methylcobalamin and 500 mg krill oil. Also look into quercetin and berberine. This is what had she started when the platelets responded, in my opinion, would have put the ET in remission and prevented progression. You can also benefit my reading the Myelofibrosis message board.  Research each of the above to become knowledgeable about the effect they have on all of your health issues and to avoid  possible negative reactions. Many of them are JAK2 & 3 and STAT3 inhibitors and are also cancer fighters so be on the lookout for that.  Before proceeding with any supplements please discuss them with your health professionals.

Jeff

https://www.townsendletter.com/Dec2017/myelo1217.html

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