myelofibrosis

1 Posts | Page(s): 1 

myelofibrosis

by JayDee on Sat Aug 15, 2009 12:00 AM

Quote | Reply

My husband has been diagnosed with myelofibrosis recently. He has to get blood transfusiong every few weeks because of his anemia. Now his white blood counts are low and platelets are starting to decline, along with spleen enlargement. His Drs have tried ESA drugs without much improvement noted. After 3 months of seeing no improvement, Drs have made him an appt to talk to bone marrow transplant team for evaluation of mini-bone marrow transplant. Myelofibrosis is so rare, that it is hard to find information about treatment, bone marrow translant results. I am wondering if any of you readers have had love ones or self with this medical condition. Would appreciated hearing from anyone who can share any information on this subject.

Thanks,

Judy

1 Posts | Page(s): 1 
Subscribe to this message board discussion

We care about your feedback. Let us know how we can improve your CancerCompass experience.