CMML

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RE: CMML

by Mona28 on Mon Feb 12, 2018 11:41 AM

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Marley8... did you see that the message you are responding to, Pepper27, was dated October 2009? 

RE: CMML

by marley8 on Wed Feb 14, 2018 10:44 PM

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On Mar 08, 2017 7:39 PM cmmlsucks wrote:

Thank you all so much for your responses. 

Bobspez - I think you are right that there have not yet been any results published for the study but i do believe it is currently underway and that they are currently testing dosage and effects.  Dandelion root proved successful in petri dishes and animal tests, which is why they managed to get funding, so that certainly shows promise.

MollysMom - Thank you once again for the kind suggestions - I am really keen to learn more about this.  I know CBD oil has been shown to have success in tumour cancers, I just wasn't sure about non-tumour cancers like CMML.

Shanlo - Thank you so much for your input.  I'm so glad to hear you have seen some positive results.  The reason I wanted to know is because I first heard about dandelion root around Christmas time and I spent a lot of time reading up about it.  I bought lots of the raw, not roasted, kind and my Dad started having three cups a day in late January.  We continued with that for about three weeks.  In the third week, Dad did lots of walking and, as he was outside a lot, he wasn't quite getting his three cups a day. In the same week, he went for a blood test and that's when they started having concerns that his situation had worsened and he had his first blood transfusion.  He stopped taking the tea.  I do wonder whether the tea made his condition worse.  Maybe it is good for some, but harms others?  Or maybe it was all the walking?  Or maybe because he wasn't getting the full dose at that time?   I just don't know.  I still feel really hopeful that the tea might save him.  I was really hoping that others would also have tried it and had good results, so I'm really pleased to hear that you have :) even if you can't say for sure that its down to the tea!

I have read that the dandelion should not be taken along with chemotherapy, that it can cause adverse reactions and interfere with the chemo drug and it being as affective.

RE: CMML

by marley8 on Thu Feb 15, 2018 01:20 AM

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On Feb 12, 2018 11:41 AM Mona28 wrote:

Marley8... did you see that the message you are responding to, Pepper27, was dated October 2009? 

Mona28 , No hon' I did not even pay any attention to the date. I was a wreck when I post that, my mind lost in a fog. I am just reaching out for answers, to talk to someone who can relate to this disease. My father was diagnosed with CMML 3 yrs ago and not doing well at the time.  

RE: CMML

by edsana on Fri Mar 30, 2018 02:42 AM

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Hey Kim, 

How are you doing? How are your sister's T cells treating you?

I had another lab last Monday and my liver enzymes are almost back to normal. Still taking ursodiol.

Ed

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