Good News...One year since diagnosis

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Good News...One year since diagnosis

by Dads1fan on Tue Dec 08, 2009 09:05 PM

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 I just wanted to share a little bit of hope with the board as  within a few days it will be 1 year  that my Dad, age 72, (almost 73) was diagnosed with multi focal GBM.

My Father was diagnosed Dec 14 ,2008 with GBM .and his initial prognosis was very grim. He had surgery on the 24th and had his combined radiation and chemo   for 6-7  grueling weeks afterwards.  It was incredibly difficult and painful  for us to watch my once healthy and energetic father visibly age 10+ years  right before our eyes.  

We  felt  so lucky  and blessed to see him pull through  the surgery and the combined weeks of chemo and radiation. He was  then given a month to rest before  having to start the monthly Temador 5/23 protocal.  His Dr's had advised my Mom to "go do stuff, travel if you can while he was feeling good"  My Dad  however was in no condition to travel . He was extremely weak,  unstable on his feet, disoriented and  had very trembly hands and chin.  I remember thinking  and feeling like " this is it, all down hill from here."  

But I was so wrong.  He got stronger and less sleepy as  the month went on, he continued to walk and exercise and regain his appetite. He  started his monthly Temador dosage of 420  for 5 /23  in March 08 but was only able to do  this for one month. His platelet count never quite recovered and has been hovering around 75,000mg since then.  He has been off all chemo, decadron, etc since March 08 and has had no reoccurence to date.

 I can only pray that he continues to feel good, stay strong and fight this beast  of a cancer in his head. And  I am  so grateful  to have had this past year with him, to love, to  cherish and to  appreciate  my time with him all the more. He truly is  an incredible man.

 

Mary , Father diagnosed 12/08 GBM

RE: Good News...One year since diagnosis

by Dads1fan on Tue Dec 08, 2009 09:07 PM

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 Whoops.. I meant off all treatment since March 09.

 

Mary

RE: Good News...One year since diagnosis

by Sherylrjr on Tue Dec 08, 2009 10:02 PM

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Hello Mary,

I believe this is called " A MIRACLE". So many times we are looking at the Big Picture instead of looking where we were 6 months ago and today. During this time you have had many memories made to carry on in your life. This is what is really important. Taking time to be with your Dad.

I will continue to pray that each day brings more memories for you and your dad.

This Christmas will have many blessings!

Sheryl

Son 34 dx Mar 08 AA 

 

T

RE: Good News...One year since diagnosis

by zookeeper on Tue Dec 08, 2009 11:00 PM

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Thank you so much for that post!  I'm clinging to every little bit of hope I can right now.  I'm trying to stay in the here and now instead of what MIGHT happen with my mom.  I'm so thankful for you that you've had this time with your dad and will pray his good health continues

RE: Good News...One year since diagnosis

by luckywife on Wed Dec 09, 2009 02:31 AM

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We all needed to read your post and hear some good news tonight. Thank you for lifting us up.

Holly

Husband dx GBM IV 2/09

RE: Good News...One year since diagnosis

by sonia09 on Wed Dec 09, 2009 04:39 AM

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Hi Mary,

Your message is so inspiring & great to read first thing in the morning! It's so lovely that your dad is doing so well after being off treatment for so long. Fingers crossed for many more celebrations.

Your message gives me great hope too - yesterday we met our oncologist who said that now that my mom is done with 6 cycles of Temodar (5 days), we should stop the chemo as it has been hard on her. My brother father & I had such a terrible evening discussing this and what may / can happen once mom's off treatment. I shall now accept what our oncologist suggests, and hope for our own miracle.

Thank you again. Best wishes to you & your family, and a special hello to your dad from me :)

RE: Good News...One year since diagnosis

by SmittysLove on Wed Dec 09, 2009 04:47 AM

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How wonderful to hear. Thank you for sharing with us.. we need inspiration like this.

May you have a wonderful holiday this year! I'm sure you will.

Smitty'sLove

husband dx 7/09 GBM IV

RE: Good News...One year since diagnosis

by moms_caregiver on Wed Dec 09, 2009 08:08 AM

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Thats awesome! Now i can finally go to sleep knowing that there is someone out there beating this monster! (don't worry, I'm knocking on wood). May you and your family have a wonderful holiday!!!! You are in my heart, Maria

RE: Good News...One year since diagnosis

by Dads1fan on Wed Dec 09, 2009 06:08 PM

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Hi everyone, thank you so much for your kind words for my Dad.  
To be completely honest I almost feel bad posting my Dad's good news when there are so many of us on this board that are in a lot of pain and  are scared and don't have  the same good news to share.  But then I feel  the need to share his experience  in order to give, if not  that one person, some hope.  Last year at this time his Dr. was unsure whether or not my Dad would even make it to New Years. And then after his brain surgery,  and some pressuring about our time range  left with him  from my sister,  our NO  gave us a range of 3 months + .  But here he is, a year later , doing incredibly well and enjoying his life. That said  I know we are not guaranteed these results every time , and this beast of a cancer could be lurking around the corner on the next MRI  but  what I have really learned in the past year is  to celebrate the now and to try my best to  keep up a positive attitude for him, for my Mom and my 3 small children who so desperately love their grandpa. 
Love, strength  and much  hope to you  all during this holiday season!
Mary

RE: Good News...One year since diagnosis

by mbmom on Wed Dec 09, 2009 06:12 PM

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Thank you SO MUCH for posting! Especially that the fatigue, etc. got better! There's so much my dad wants to do, like traveling, but he's in no shape to do it right now.  Your post gives me hope that he might yet regain some strength & energy!

Happy, Happy Holidays!

Bev

daughter of Craig, dx 8/09 gbm

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