Is it wrong to have hope?

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Is it wrong to have hope?

by LeonRay on Sun Feb 14, 2010 11:55 PM

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   Hey, I'm new, so forgive me if I'm out of line. And please correct me at any time if I'm wrong...........

   People take hope in a whole lotta ways, it has to be mesured for each individule (pray for spell check).... somtimes studied and often reasearched. Each person is different. I hear treatable, just no cure a lot. Mobile and can carry on a conversation, care for ones self and your age can all factor in. (No one has the number your looking for.) 

  Yea, he's an MD, does research for Duke, and is looking for people for a study. ( link is 3 years old) I still think theres some truth to it..... the study is still on going. And this is just one. Thank you god for the time I have, were not done with this ride yet. 3 months to a year so be it. Thank you. Were not done till its over.

                               Leon Ray

Patients with glioblastoma multiforme

are not universally incurable with an

ever-increasing, albeit small,

fraction of patients who appear

to survive the disease.

   Henry S Friedman, MD from Duke university  http://www.virtualtrials.com/pdf/Friedman.pdf

RE: Is it wrong to have hope?

by heart_and_soul on Mon Feb 15, 2010 03:06 AM

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Leon there are those who make it! WHy not you? (Rah rah rah, go Leon!)

Have you read the work of Ben Williams? He had a GBM in like 1991 or something. Did a ton of research and figured whatever he could take that didn't interfere with the chemo was worth a try... for example anti-oxidants. Fish oil, Maitake mushrooms, etc.

Also come check out www.yasg.com which is Young adult Survivors of Glioblastoma. Click on enter and then click on FORUMS. You will see a buncha threads but if you look for the longtime survivors there are some amazing and very encouraging stories. Also click on BIOS.

There is also a singer named David Bailey... great website, lots of heart.

Please believe. There turns out to be all kinds of variations in GBM's. If you got lucky lol you got the kind that responds to chemo etc. I am rooting for you.

Sarah

m/o Andy 27 dx gbm/pnet 1/09, has had a bunch of recurrences, now off chemo... hanging in there

RE: Is it wrong to have hope?

by misscyndi on Mon Feb 15, 2010 03:21 AM

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GONNA TRY THAT AGAIN, WITHOUT HOPE WE HAVE NOTHING AND HUSBAND OF MINE WE HAVE THIS ,

Hope faith and love  It will get us far :O)

cyn~

RE: Is it wrong to have hope?

by Oudave83 on Mon Feb 15, 2010 04:06 AM

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On Feb 15, 2010 3:21 AM misscyndi wrote:

GONNA TRY THAT AGAIN, WITHOUT HOPE WE HAVE NOTHING AND HUSBAND OF MINE WE HAVE THIS ,

Hope faith and love  It will get us far :O)

cyn~

Here here...faith hope and love...kindness and forgiveness.....always and forever.....to the last breath....one day, one year, 20 years from this very moment......let Him help carry Your cross.....see the outstretched hand inviting you.....it isn't how many days we each have, it is what we do with each remaining day we each have  that counts my friend......you can do this!!!!!!!!!

Dave

oudave83

RE: Is it wrong to have hope?

by Liveeverymoment on Mon Feb 15, 2010 04:14 AM

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If you don't have hope, then what do you have?  Do you think when my sister's cell phone rang at 4:30 in the morning with the news that her husband had a brain tumor, that we both threw our arms in the air and said, well, that's that?

As has been stated many times over, GBM patients are not statistics. They're real people. You, our mothers, fathers, sons, daughters, brothers, sisters....Every one of them deserves to hope, to believe they might beat this beast.

Each day is a gift. Never give up hope.

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