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Bladder Cancer

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Bladder Cancer

by Donald_p_1 on Tue Feb 14, 2006 12:00 AM

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To Stephanie: Many thanks for taking the time to respond to my Message board info. I have been reading very much about alternative Cancer treatments, that do Not make me so sick, with burning stomach type irritation, and plugging of the ears, etc. My cancer is: small cell carcinoma of the Bladder, and it invaded the muscle, that surrounds the bladder, and stopped at the fat tissue, touching the cuscle. Because it invaded the "muscle", I was told I would need 5 "chemo" rounds (consisting of 3 days each, with about 15 days rest between the rounds. I have taken 2 rounds, and got sick, and fatiged. My one inch tumor was removed 12-1-05, and I took chemo on 12-27 thru 12-29, and 1-17 thru 1-19 , 2006. My chemo treatment was Also Cisplatin, and also included v16, Etopisine. Did your husband's tumor invade the muscle just outside the Bladder, or was it confined "within" the bladder itself?? My Urologist thinks the safe path is to remove the bladder , as does the well know Cancer Center in Houston, Texas, but I don't like that route either, but might have to go that way, in the end. Does the neobladder function the same as the Old badder, or does a "bag" need to be worn? Again, thanks for the Reply to "Bladder Cancer" on the Message Board, it has been the only one I received. I hope I receive some more, also.

Bladder Cancer

by Penguin on Wed Feb 15, 2006 12:00 AM

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Hi Donald, I had bladder cancer for 12 years before a tumor popped up that was muscle invasive and trying to get outside the bladder. I had my radical cystectomy on 11/01/05 with a neobladder, the neobladder works like the original bladder they take a piece of intestine and build a new bladder out of it hook it up just like the old one and away you go. Even if you are not a candidate for the neo bladder it sounds like your present bladder needs to go if the cancer gets outside the bladder and into other areas of your body your chances of survival will drop dramaticly it needs to go while you have it contained in the bladder. I never needed chemo and that is why I did not respond until now but from what I hear from people like Stephanie the chemo is much worst than the surgery to remove the bladder. I am 3 months post op now and pretty much back to normal if not a little better if your doctors say it has to go then let them take the cancerous so and so out and get on with your life. I am sorry if this sounds a little rude but I can't understand the reason some people want to keep their bladder and chance letting the cancer spread to other areas. Look at it as if you have your enemy conered and he is trying to dig his way out you have a team that can stop him but you tell them no so he gets away not a good idea. If you have any questions please ask also go to www.acor.com and go to the bladder cancer cafe there are 500-600 bladder cancer patients at all stages of the disease that can give you great advice also go there and look up "tales from the trenches" Tim RC 11/01/05

hi Donald

by Steph2005 on Wed Feb 15, 2006 12:00 AM

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Hi Donald, My husband's cancer did go into the first layer of the muscle wall. Fortunately, the chemo worked to stop the cancer and he is now cancer free. As I said before, the chemotherapy was by far the worst part of this horrible experience. My husband was so tired, weak and nauseous for a good majority of the treatment. He lost a lot of weight. As Tim (Penguin) stated, with the neobladder you pee just as you always have; no bag or anything. Some people are not candidates for neobladder, for my husband, it was an operating room decision. If my husband had not had the chemotherapy, it is highly likely that he would not have been able to get the neobladder. I would talk to your doctor about it. Also, if you choose to have the bladder removed, make sure you get a good surgeon. We live in Louisville, KY and the doctors here in our town were not even familiar with neobladders; the only option they had for my husband was a bag. We traveled to Indianapolis, IN and my husband was treated by a doctor that has been performing this operation for over 15 years. Thanks to the second opinion we received in Indianapolis, in a couple of months my husbands lifestyle should be as good as it was (maybe better!) pre-cancer. If you have any additional questions, please don't hesitate to ask. I learned so much here after my husbands diagnosis. Knowing that other people overcame this horrible disease was a huge inspiration to us. Good luck. Steph

Bladder Cancer

by Donald_p_1 on Sat Feb 18, 2006 12:00 AM

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Hi Penguin: Many thanks for the reply and the info on Bladder Cafe. I am working on it.I guess my problem is that the Cancer (small cell carcinoma of the Bladder, got outside the bladder, and into the Muscle that lines the outside of the bladder. The Urologist the Oncologist, said that they have No reliable test that shows whether or Not the cancer cells have been killed in my entire body. My Urologist said that even a biopsy (spelling ?)( of the area where the Tumor was removed (2 and 1/2 months ago), that showed NO cancer cells, would Not mean that I was free of caner cells in another part of my body , that is why they want to remove the bladder(even though they may find later, that the bladder was cancer cell Free).The Oncologist said that if No bladder removable, I should receive the Radiation along with more Chemo, even though they cannot determine that I have cancer cells in part of my body, other than the bladder. I feel this is "Overkill", and appreciate you responce to my message board. If anyone else "OUT THERE", has a comment, I sure would like to hear from them. Thanks again, Donald P. Donald P.

Bladder Cancer

by Donald_p_1 on Sat Feb 18, 2006 12:00 AM

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Hi Steph 2005 (Stephanie): Many thanks for you last message. Would you please read my reply to "Penguin of 2-18-06, it would be about the same info that I would tell you about in this message. Thanks. My Dr. does not do the "neobladder", and could you tell me the name of the Medical Center in Indianapolois, IN, that did the "neobladder"?? Hope to hear from you. Donald P.

Bladder Cancer

by Penguin on Sun Feb 19, 2006 12:00 AM

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Donald, If you have muscle invasive bladder cancer you only have two options one is to have it removed the second is to go through raditation/chemo. It is possible that they got it all 2.5 months ago the problem is invasive bladder cancer has a very high rate of recurrence and also has the abilty to get outside the bladder and into other organs this is why they want to take an aggressive approach. I am not that familiar with small cell carcinoma as mine was high grade TCC a much more common variety.Do you have a copy of your path report? and what does it say? You might want to get a second opinion it never hurts. I am a big advocate of bladder removal as it lets them get in there and do pathology on other organs that surround the bladder and gives a better picture of whats really going on. Tim

Bladder Cancer

by Donald_p_1 on Sun Feb 19, 2006 12:00 AM

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Hi Penguin: Thanks for the additional info. What you said was about what the Dr. Said. My Oncologist called the Andereson Center, In Houston, Texas, and that is where "he" got his "Opinion of my case". The problem with removing the Bladder, is that they "also" remove the Prostate, and the uretha...I would not be a happy camper with that. Have you done any reading on the Therapies used by Naturopathic Doctors ?? I discussed my cancer with a Naturophic Dr. Feb 16, 2006, and he said that his NATURAL therapy would remove the foods that "feed the cancer", and would build up my immune system, to help kill the cancer cells. Also, are you aware of a Medical center, other than the Anderson Center, that could perform the procedure call "neobladder replacement.?? Thanks again, Donald P.

Bladder Cancer

by Penguin on Sun Feb 19, 2006 12:00 AM

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Donald, First off you need to ask why they want to take your prostate and uretha . They did hollow out my prostate but I still have it and they didn't touch my uretha( except to unhook and rehook it to my new bladder ).They will take them if the cancer has spread to those areas but like it or not if that is the case they need to go. Have they run biopies on either one? I am very skeptical about the food doctor are you willing to risk your life with this guy? I would need to talk to at least 10 former bladder cancer patients and know the stage of their disease to even think of going down such a untested road.I think YOU really need to talk to a doctor that has a lot more experience with bladder cancer and I urge you to call my doctor at Vanderbilt here in Nashville he is one of the best in the country it will take you a while to get an appointment but he is worth the wait His name is Dr.Joseph Smith Chairman of the board of urology for Vanderbilt Medical center his number is 615-322-2880 in closing Donald you have a very serious form of bladder cancer that you cannot allow to get out of hand Please call Dr. Smith first thing Monday morning. Good luck Tim

Bladder Cancer

by Donald_p_1 on Sun Feb 19, 2006 12:00 AM

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Hi again Tim (Penguin) I sure do appreciate you taking time to pass on to me, the good information about your Bladder cancer. I will call Dr. Joseph Smith Monday 2-20-06.Can I tell him "Tim" recommended him? How long has it been since you had your new bladder done? I guess you also, live in Nashville , is that correct? In answer to your question, no, a biopsy was not done one the prostate and uretha, but a MIR was done, and it was Normal. The X-ray for chest was also, Normal. My bladdder tumor was removed 2.5 months ago, and 7 days ago, the MIR OF MY BLADDER was "Normal", but the Urologist said , even a Normal MIR of the bladder does Not rule out some remaining cancer in the bladder. My Ocologist wants to give me Radiation, but I don't want that. Also, with your "hollowed out" prostate, do you still a reasonable Sex Life?? Also, How long after the new bladder was put in, did you feel good, and felt like yourself? Tomorrow, Feb 20, 2006, I will have an MIR of my Kidney, to see if any cancer has moved to that part of my body, so as to get a good handle on just what my overall situation is. Sorry to bend your ear so much, but I am scared of this "cancer business", and much appreciate you telling me about your experience. Respectfully, Donald Briggs (Donald P.)
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