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Chances of it being cancer?

8 Posts | Page(s): 1 

Chances of it being cancer?

by whiterabbit on Sat Mar 27, 2010 08:45 PM

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I understand that HSIL doesn't mean cancer.

But, would a pap smear show cancer?

 

So does it mean that I have ZERO percent chance of having cancer? That's what I need to know.

 

My colp isn't scheduled until April 28th.

 

The whole reason I went in for a pap smear, after 5 years of not going because I have very high anxiety in regards to having a pap, was because my period changed. I was bleeding longer, heavier and more painful and more frequently. It came within 23 days and I thought that was too strange so I went ahead and found a family Dr to have the pap. I figured it was hormones. I was also experience pain once in a while during sex, but very severe pain. It wasn't like he was too deep, it was just painful during sex, all of sex. And I started having urinary tract infections a lot more frequently. I've always had them, but this was every single month, and then every other week, and then every few days. 

 

Well the pap smear was so painful. It felt like the same kind of pain I have during sex at times. She said everything looks normal but I did bleed from it. I've never had so much pain and blood during a pap smear before.

Then she called and said I need to have a colp because I had high grade SIL changes in my cells. I told her that previously I had genital warts and she said that it wasn't the type to cause 'this cancer'.

 

So I have an agonizing month wait. Sorry for the long post.

 

I've done a lot of research and think I understand that most likely it will be confirmed with the colp and biopsy and then I can have a simple procedure to remove the abnormal cells. My question is, how likely is it that they discover it is actually cancer? I want and need to know the facts, or I'll end up fantasizing the worse for myself. I'm really scared.

Thanks for reading. I appreciate all replies.

RE: Chances of it being cancer?

by lin30 on Sun Mar 28, 2010 05:40 AM

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As soon as we hear that horrible "cancer" word, we become terrified, and understandably so.  There's not a whole lot that anyone can say to comfort you right now.  You will continue to research, as we all did, and it seems the more you read, the more afraid you become.  What I am going to tell you is only based from my own personal experience, and is not necessarily what will happen in your case.  My intention isn't to scare you, but just to let you know about the possibilities. 

HSIL means that your pap test showed abnormal cells.  You are right that this does not mean that it's cancer, but unfortunately it is a possibility.  My symptoms were similar to yours (the changes in menstruation and pain during intercourse) and it had been over six years since my last pap test.  Luckily cervical cancer progresses very slowly and I caught it in time.   Cervical cancer isn't always caused by HPV.  There are other factors including long term use of oral contraceptives, smoking, and family history. 

I went to the colposcopy clinic for a biopsy which showed pre-cancerous cells.  My doctor scheduled a LEEP.  The results of the leep showed stage 1B1 cancer cells.  It was very scarey to hear this, but even if it is cancer, it is still very treatable.   I underwent a radical trachelectomy which removed all of my cancer cells.  It left me with 1cm of my cervix to preserve fertility, and I didn't have to undergo radiation. 

It's impossible to say what will happen in your case.  I just want you to know that the majority of the time the abnormal cells havn't become cancer yet, and even if it has, it's completely treatable.  I know I can't say anything at all to keep you from worrying.  Try to focus on the best case scenario.  The biopsy could get all of the cells, or maybe you'll just have to get a LEEP which is an outpatient procedure and will have you as good as new in no time.

I hope I havn't made things worse.  Just know that I went longer without getting a pap, and that I had symptoms for almost two and a half years that were ignored by doctors.  I know that waiting until the end of April is going to be tough, but try to hang in there and please let me know if I can help you with anything.  Best of Luck!

 

RE: Chances of it being cancer?

by whiterabbit on Sun Mar 28, 2010 01:28 PM

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Thank you for responding.

 

I do feel better knowing that even if it is cancer, that in the early stages radiation/chemo can be avoided and it is easily removed. I guess the fear is about that, and the recurrance of it.

 

I really appreciate you writing back. I do feel scared because I just have this bad feeling. While my symptoms haven't been going on for 2 years they have been for maybe 9months-1year. It was when my period on a normally 37-40 day cycle came after only 23 days and lasted for 10 days with one day of extremely heavy clots and bad cramping that I started to take myself seriously. I can't help thinking, what if I continued to just not get a pap and one day woke up with full blown cancer. I feel lucky to have caught it at stage HGSIL but I still have a feeling that it's more than that. Just in the pit of my stomach, which could just be nerves. I will find out in April/May I suppose and let you know the results. Thanks so much for responding.

RE: Chances of it being cancer?

by sillylilly on Wed Mar 08, 2017 04:44 PM

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Hi,

I'm so sorry to hear you have had to go through this also.  I don't know if you still visit this site but I'd thought I'd give it a try.  Do you mind me asking what your results showed? I am sitting here in very similiar situation. Another 2 1/2 week wait for colposcopy and loosing my mind with worry.  

RE: Chances of it being cancer?

by Crazyscared on Mon Mar 27, 2017 05:56 AM

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In in the same boat. In very scared and I'm going crazy with the what ifs. How did everything turn out for you?

RE: Chances of it being cancer?

by sillylilly on Mon Mar 27, 2017 10:16 AM

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Hi CrazyScared, I'm so sorry to hear you are worried as well.  It's been a whirlwind of stress in my life lately. In the process of selling my home and dealing with all of this as well.  I had  my colposcopy on Friday. The procedure itself(biopsy) was relatively quick but i have to be honest, it hurt. The doctor said he didn't see anything alarming ("nothing jumps out at me as looking worrisome" is how he put it)  but he biopsied two areas and sent me on my way. I now have to wait another 4wks for results. ugh So I'm still sitting here worried about what they will find.It 's never a good time to hear bad news but right now couldn't be a crazier time for me. I really can't afford to be sidelined with surgery, cancer etc.. I'm trying to stay positive but there are days that I just can't stop worrying.  I'm still bleeding a bit from the procedure and had some cramping the first few days. I hate having to wear a pad so i hope it doesn't drag on too long.  :( Just know you are not alone..praying for the best for both of us.

RE: Chances of it being cancer?

by LizzyPepper on Fri Jul 20, 2018 08:29 PM

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I know it's been 8 years since you posted this but having found this myself, I can only assume that people are still reading this and still looking for answers. 

I'll add my two cents having been there that might help for reassurance. 

In the summer of 2015, I had a pap come back abnormal, so went for a colposcopy. During that colposcopy, I had a biopsy, and in that biopsy they found high-grade cell changes, so they decided to do a LEEP. It wasn't painful as I had localized freezing, just a little uncomfortable (I'm sure 99% of that was mental). A couple of weeks after that, I got a call from the clinic I was at asking me to come back, but wouldn't say what it was about. But, of course, I knew. And I was terrified. Like, hyperventilating-terrified. Cancer scares the hell out of me. So I went, and she said that in the tissue they removed, there was a 1mmx3mm cancerous lesion. The great news was, it had already been removed via the LEEP and my margins were clear so no further treatment was needed. That didn't make me any less afraid. But like someone said previous, cervical cancer grows very slowly, so I was panicking over something that was so incredibly treatable. Since then, I go for colposcopies every 6 months. At my last colposcopy they said I had high grade changes again, so I need to go back in 3 months rather than 6 for a biopsy, but I'm much calmer about it this time, because I trust them completely and have been through it and know that whatever happens, it's very treatable. 

The chances of it being cancer when you have an abnormal pap are slim - VERY slim. Abnormal cell changes come in all shapes and sizes, some low-grade which often go away on their own, and some high-grade which might need a biopsy and a little further treatment, line conization or LEEP, to get rid of them so you don't have to worry anymore. But all of those procedures are minimally invasive and easy, and should leave you good as new. As you can see, even in my case where I actually did have a small amount of cancer, the treatment was quick and easy and took care of it! And truly, there was nothing to worry about. I'm just a bit more diligent now and make sure I go to my appontments so that IF anything does come up, we can nip it in the bud and move on. 

Please try not to worry too much. It's truly more than likely nothing that can't be quickly taken care of, and if by whatever super slim chance it does happen to be the C-word, you're still ok. You'll be fine. Now that I understand it a bit better, it's a lot less scary. Cancer isn't automatically a death sentence, and treatment can be very quick and easy. But truly, more than likely you have absolutely nothing to worry about. The reason people take cell changes seriously, which can be terrifying to anyone told to come in for a biopsy or colposcopy because your mind automatically goes to the worst case scenario, is that they can take care of anything before it progresses. They're just diligent. 

Treat yourself to some self-love, take some good deep breaths, and tell yourself it'll be ok, because it will. I promise xo

RE: Chances of it being cancer?

by Tinkydog on Thu Nov 15, 2018 01:20 PM

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Hello!  I'm glad someone recently posted.  I really need someone to listen to me??.  I've battled VIN (vulva dysplasia)for 3 years and now told I gave HSIL.  I've had abnormal paps for 4 years,  started with LSIL in2016 to now the HSIL. All to do with HPV. I had a colposape (spelling?) Done 3mos. ago.  OB GYN said he didn't see anything that alarmed him, but biopsied anyways.  Came back with HSIL.  Did cryro.  Went back in last week for check in, did another pap and same results,  i reveived an email in MyChart ( on line through insurance).  He said to come back for anotherpap in 6 MOS!   I thought how odd.  If it's the same result why are we waiting.  Called doc and he said if I want to I could come in a few weeks for another colposape but not overly concerned.  Does that seem odd?  He's a highly respected doc and was recommended to me by my family doc. Had him for 4 years now.  I trust him.  Am i overly panicing?  I did schedule for 3 weeks from now on my own doing.  Just wondering if anyone has any reasoning for a 6 month wait? Thank you, anyone, for any help.  Deb

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