Surviving Grade 3 Anaplastic Astrocytoma

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Surviving Grade 3 Anaplastic Astrocytoma

by Beach1 on Thu May 04, 2006 12:00 AM

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I am trying to find hope for my husband who was diagnosed on February 18th with a grade 3 anaplastic astrocytoma. We have 4 small kids that love their Dad! He was very down today, because we have not heard of anyone who has survived longer than two years with this type of tumor. I am making it my quest to find someone, preferably multiple people! Please let me know if you know of anyone, and at what time they are at. Thanks for your help

Lots of Survivors

by Jennyrad on Thu May 04, 2006 12:00 AM

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Hey, I'm so sorry to hear about your husband. You asked for survivors past 2 years, so here's one! My awesome dad, age 52. Diagnosed on May 6th, 2001 with a brain tumor, grade 3. My dad has 6 kids, ages 30-12 who love him, too, and has been living a normal life for 5 years since his diagnosis of a brain tumor. In the beginning, he, too, was a bit thrown. Who wouldn't be? But then one day he decided to make peace with this beast. He came to the conclusion that everyone is "terminal" and he wasn't going to let a black cloud hang over his head. He's never let it get him down and says that he doesn't even think about it every day, and that's why he thinks he's does so well. He's had a few bumps in the road, but has shown all around him what it means to be a "survivor." Recently he said, "The last 5 years have been the best years of my life - and they've all been with cancer." Tell your husband to hang tough and to not dwell on the statistics.

Long Term Survivors

by Alexia on Thu May 04, 2006 12:00 AM

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Hi A web site I found helpful is brain tumor .org. then go to surviver stories.I think you can even contact them if you like.I hope it gives you some strength.You must be so tired trying to look after everyone.I have 3 children 1 3 and10 and my mom has been staying with me since her surgury in oct.My husband has been working out of town for almost a year now so I know how a little hope can give you the strength to get thru the day.I hope your one of the lucky ones.Someone has to be and your husband deserves to see his children grow so I hope it`s him.Make sure you do get 2nd opinions at duke or md anderson or some well respected brain tumor center.I wish you all the best.Susan

2 + Years

by Brainychick on Thu May 04, 2006 12:00 AM

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I'm Grade 4, glioblastoma I was diagnoed in Oct. 2003

Still Here

by Sarah_Smiles on Sat May 06, 2006 12:00 AM

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Hi, my name is sarah & i'm 32 yrs. Old w/ a 2 yr. Old little girl. I was diagnosed with the same tumor as your husband july 2004. It's inoperable, but i'm doing great. I would recommend duke u. In north carolina. Please call me if you want - it's much easier than typing. --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- sarah

RE: Surviving Grade 3 Anaplastic Astrocytoma

by lisa.e on Sat Mar 31, 2012 06:04 AM

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On May 04, 2006 12:00 AM Beach1 wrote:

I am trying to find hope for my husband who was diagnosed on February 18th with a grade 3 anaplastic astrocytoma. We have 4 small kids that love their Dad! He was very down today, because we have not heard of anyone who has survived longer than two years with this type of tumor. I am making it my quest to find someone, preferably multiple people! Please let me know if you know of anyone, and at what time they are at. Thanks for your help

My husband was diagnosed with grade 3 anaplastic astrocytoma December 2011. We have 9 children between us 5 grown and 4 still at home. Robert had surgery in December however they were not able to remove all the tumor due to the location on the brain stem, he completed Radiation and chemotherapy in February.  Do you mind if I ask how your husband is doing?

RE: Still Here

by lisa.e on Sat Mar 31, 2012 06:07 AM

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sarah, do you mind if I ask how you are doing?  My husband was diagnosed Dec. 2011. Unable to completely remove the tumor due to location, brain stem.  He completed radiation & chemotherapy February. 

RE: Lots of Survivors

by lisa.e on Sat Mar 31, 2012 06:14 AM

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thank you for this story. It helped. My husband was diagnosed December 2011. Unable to completely remove the tumor, due to the brain stem location chemotherapy & radiation for 6 weeks after healing from the surgery. He finished that in February.  We have 9 children between us 5 grown and 4 still at home 15-girl 12-boy 11-girl & 8-boy. We also have 5 grandchildren with a 6th on the way.  I cant imagine life without my husband.  The doctor's prognosis is 12 months to 2 years (at best 5 years) my husband just smiles and says woohoo I will shoot for the 5 years. He is so much stronger then me in dealing with this.

RE: Lots of Survivors

by zookeeper on Sun Apr 01, 2012 01:22 AM

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My mother was diagnosed at 57 (almost 58) with AA3. Here we are 2 1/2 years later and she is doing GREAT! Life has returned pretty much to normal for her. If you were to meet her today, you'd never know what she went through 2 years ago. She's a fighter and has shown this beast she won't go down without a fight!

I know how encouraging stories like this were to me when I first joined CC. It is possible to return to a mostly normal life after brain cancer. I'm so thankful for all the people on this site that were so encouraging to me in the beginning. I hope my mother's story can give someone else out there the same kind of hope!

Blessings

Janice

RE: Lots of Survivors

by ShawnaRae3 on Mon Apr 02, 2012 07:11 AM

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I am a grade III AA also, I was diagnosed in Dec 2008. I can honestly say my life has returned to normal & did right away. I found that my 2 daughters needed to see me get up & live my life normal. I could not expect them to believe, have faith, & stay strong if I wasn't. Maybe I am too hopeful but I don't believe they throw every patient into the same statistics nor should we. There is a lot of soul searching that occurs in the first couple years, I was & still am terrified. However I decided one day months after my diagnosis that I cannot live like I know I am dying, I will live like I never knew. This is my story I will write the ending, I am not a study or a statistic. I am a daughter, sister, mother, & wife. My name is Shawna, I hope you find some peace with it because it is really hard to absorbe all the info & keep your fear, anger, & sadness from becoming you. Enjoy today, don't worry about tomorrow. Every day whether we have been told time is limited should be cherished not dwelled upon because of it. Take Care,
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