Signet Ring Cell Carcinoma / Stomach Cancer

9 Posts | Page(s): 1 

Signet Ring Cell Carcinoma / Stomach Cancer

by Rambo_AZ on Tue Nov 16, 2010 04:03 AM

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Hello All, I'm Rambo_AZ & I was recently diagnosed w/Signet Ring Cell Carcinoma of the stomach.  It has spread to the lymph nodes of the chest & there's also a tumor in the chest area (about 3cm x 1.5cm) which is causing a persistent cough, my only symptom of this illness.  I'm writing this msg as I'm interested in others who are currently or who have in the past under gone treatment for this type of cancer to "compare notes."  I hope I can help answer questions for someone and someone can do the same for me.  The chemo treatment I'm doing is Epirubicin, Oxaliplatin, and Xeloda; the Xeloda is oral, 2.3 grams daily -- I'm not sure if I get a dose of this when I do the chemo visit at the hospital.  The hospital chemo is every 3wks and I'm going to have my 2nd treatment this week at the Cancer Centers of America in Goodyear, AZ.  I recommend this place for treatment as once you become a patient there's a team of personnel to treat you and I have full confidence in them.  My only symptom was a persistent cough which started this past June and I finally got properly diagnosed in October to what it was.   I travel for work so this did not help scheduling appts.  The local doctors were very slow to get this properly diagnosed and just threw medications at the symptoms instead of finding the cause of the cough.  I don't know what stage it is and really don't care about the label it may be assigned.  The plan is to do a CT scan on the 3rd hospital chemo visit to see if there's any change and re-evaluate as needed.  Currently the cough is less and I can sleep on my side & stomach again after 2 months of sleeping only on my back due to coughing; I hope this is a good sign.  I cannot stress enough the importance of going to a quality hospital when dealing with an illness such as this and I hope that if someone is unsure of what to do that they will contact the Cancer Centers of America for assistance -- they have a good website and 24/7 phone support which is how I became a patient.  10yrs ago I beat Non-Hodgekins Lymphoma while living near Philly, PA with the help of Jefferson University Hospital; I underwent chemo (CHOP, 6 treatments) and radiation.  Again, I was getting jerked around by a small local hospital so I went to Jefferson and thanks to them I'm still around.  Contact a major medical center for treatment if unsure about your medical care -- DO NOT rely on small medical facilities as they do not have the latest treatments or resources that the large facilities do.  Back to the stomach cancer: side-effects have not been bad for me & I have not had to take nausea medication.  Drinking cold liquid while on these meds is painfull so remember not to do it; you'll only forget once as I did.  Touching cold things such as things from the fridge can be a uncomfortable (feels like you're holding ice even though it's not that cold), sometimes fingers & toes tingle and both of these things can be helped by taking L-Glutamine Powder, an amino acid, about 1 tblspoon a day until symptoms stop or to keep them in check.  My hair just fell out, who cares.  I know this can be a problem for some and it shouldn't be, male or female -- look at the big picture and you'll realize it doesn't matter.  I'm in decent shape for a 41yr old male, 5'9", 175lbs and initially dropped 25lbs but am now stabilized at 155lbs.  I recommend a protein shake w/breakfast and a powerbar fo an afternoon snack -- maintain at least 3 meals a day to keep your strength up and most importantly keep a positive attitude.  Don't load up on supplements as they may have a negative effect on the chemo treatment you're doing -- check w/your doctor before taking anything.  I ask that anyone undergoing treatment for this type of cancer to let me know the treatment you're doing and if anyone has questions please let me know.  Thanks, Rambo_AZ

RE: Signet Ring Cell Carcinoma / Stomach Cancer

by amietaylor on Thu Nov 25, 2010 12:27 AM

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I had signet ringcell carcinoma of the stomach last year, I had 75% of my stomach removed with no radition! Im happy to share my experence

RE: Signet Ring Cell Carcinoma / Stomach Cancer

by amietaylor on Thu Nov 25, 2010 12:28 AM

Quote | Reply

I had signet ringcell carcinoma of the stomach last year, I had 75% of my stomach removed with no radition! Im happy to share my experence

RE: Signet Ring Cell Carcinoma / Stomach Cancer

by Rambo_AZ on Sun Nov 28, 2010 06:50 PM

Quote | Reply

Hi Amie, thanks for responding.  I suspect your cancer was isolated to the stomach but so I'm sure please confirm this for me.  Also please let me since your surgery if you have any lasting side effects or changes to your regular day-to-day activities.  Thanks.

RE: Signet Ring Cell Carcinoma / Stomach Cancer

by english_lass on Thu Jul 07, 2011 08:43 AM

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hi my sister has this and had surgery in nov 2010 to remove part of her colon. unfortunately they did key hole which leaked and she went septic. they had to open her up in dec 2010 and she now has an ileostomy but in jan she developed an abscess which was drained and started chemo in march. They recommended 8 cycles of three weeks, oxyplatin infussion on day 1 with capecitibine for 14 days with one week rest and repeat. but in the middle of 4th cycle she took ill with another abscess in her gut and they had to open her up to wash out on 2 june. they now tell her she can't have anymore chemo and basically that's it. she has stage 3, with 2 lymphnodes out of 11. she has signet ring and we've been told her cancer will re-occur in stomach. USA seems to be more advanced in treating this type of cancer, can you suggest what we can do, please?

RE: Signet Ring Cell Carcinoma / Stomach Cancer

by english_lass on Thu Jul 07, 2011 08:43 AM

Quote | Reply

hi my sister has this and had surgery in nov 2010 to remove part of her colon. unfortunately they did key hole which leaked and she went septic. they had to open her up in dec 2010 and she now has an ileostomy but in jan she developed an abscess which was drained and started chemo in march. They recommended 8 cycles of three weeks, oxyplatin infussion on day 1 with capecitibine for 14 days with one week rest and repeat. but in the middle of 4th cycle she took ill with another abscess in her gut and they had to open her up to wash out on 2 june. they now tell her she can't have anymore chemo and basically that's it. she has stage 3, with 2 lymphnodes out of 11. she has signet ring and we've been told her cancer will re-occur in stomach. USA seems to be more advanced in treating this type of cancer, can you suggest what we can do, please?

RE: Signet Ring Cell Carcinoma / Stomach Cancer

by english_lass on Fri Jul 15, 2011 12:33 PM

Quote | Reply

Hi Rambo

I'm wondering how you are doing? My sister has signt ring stage 3 and has only managed 4 chemo sessions. she did Oxiliplatin and Capecitibine.

I'd love to know how you are responding to your treatment.

English Lass

RE: Signet Ring Cell Carcinoma / Stomach Cancer

by Mexbest on Sun Apr 07, 2013 12:19 PM

Quote | Reply
Hi Rambo,my mom has been diagnosed with signet ring cell carcinoma, stage 3 Tomour completely removed,no metastasis,she's scheduled to begin radiotheraphy How bad is it if you have gone through it?

RE: Signet Ring Cell Carcinoma / Stomach Cancer

by bobbob on Mon Sep 04, 2017 02:54 PM

Quote | Reply

On Nov 16, 2010 4:03 AM Rambo_AZ wrote:

Hello All, I'm Rambo_AZ & I was recently diagnosed w/Signet Ring Cell Carcinoma of the stomach.  It has spread to the lymph nodes of the chest & there's also a tumor in the chest area (about 3cm x 1.5cm) which is causing a persistent cough, my only symptom of this illness.  I'm writing this msg as I'm interested in others who are currently or who have in the past under gone treatment for this type of cancer to "compare notes."  I hope I can help answer questions for someone and someone can do the same for me.  The chemo treatment I'm doing is Epirubicin, Oxaliplatin, and Xeloda; the Xeloda is oral, 2.3 grams daily -- I'm not sure if I get a dose of this when I do the chemo visit at the hospital.  The hospital chemo is every 3wks and I'm going to have my 2nd treatment this week at the Cancer Centers of America in Goodyear, AZ.  I recommend this place for treatment as once you become a patient there's a team of personnel to treat you and I have full confidence in them.  My only symptom was a persistent cough which started this past June and I finally got properly diagnosed in October to what it was.   I travel for work so this did not help scheduling appts.  The local doctors were very slow to get this properly diagnosed and just threw medications at the symptoms instead of finding the cause of the cough.  I don't know what stage it is and really don't care about the label it may be assigned.  The plan is to do a CT scan on the 3rd hospital chemo visit to see if there's any change and re-evaluate as needed.  Currently the cough is less and I can sleep on my side & stomach again after 2 months of sleeping only on my back due to coughing; I hope this is a good sign.  I cannot stress enough the importance of going to a quality hospital when dealing with an illness such as this and I hope that if someone is unsure of what to do that they will contact the Cancer Centers of America for assistance -- they have a good website and 24/7 phone support which is how I became a patient.  10yrs ago I beat Non-Hodgekins Lymphoma while living near Philly, PA with the help of Jefferson University Hospital; I underwent chemo (CHOP, 6 treatments) and radiation.  Again, I was getting jerked around by a small local hospital so I went to Jefferson and thanks to them I'm still around.  Contact a major medical center for treatment if unsure about your medical care -- DO NOT rely on small medical facilities as they do not have the latest treatments or resources that the large facilities do.  Back to the stomach cancer: side-effects have not been bad for me & I have not had to take nausea medication.  Drinking cold liquid while on these meds is painfull so remember not to do it; you'll only forget once as I did.  Touching cold things such as things from the fridge can be a uncomfortable (feels like you're holding ice even though it's not that cold), sometimes fingers & toes tingle and both of these things can be helped by taking L-Glutamine Powder, an amino acid, about 1 tblspoon a day until symptoms stop or to keep them in check.  My hair just fell out, who cares.  I know this can be a problem for some and it shouldn't be, male or female -- look at the big picture and you'll realize it doesn't matter.  I'm in decent shape for a 41yr old male, 5'9", 175lbs and initially dropped 25lbs but am now stabilized at 155lbs.  I recommend a protein shake w/breakfast and a powerbar fo an afternoon snack -- maintain at least 3 meals a day to keep your strength up and most importantly keep a positive attitude.  Don't load up on supplements as they may have a negative effect on the chemo treatment you're doing -- check w/your doctor before taking anything.  I ask that anyone undergoing treatment for this type of cancer to let me know the treatment you're doing and if anyone has questions please let me know.  Thanks, Rambo_AZ

hi I'm bobbob reading your story has given me encouragement I have  cancer of the bowls spread to the lungs I go tomorrow to see if they can give me chemo I live in ireland  on January 2016 my bowles stopped working my doctor give powders to help me go to the toliet and after 8 months I was in a lot of pain went to the hospital and thats when they discovered I had cancer the consultants were not very pleased with my GP you have given such good advice thank you again BOBBOB

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