Lessons learned and tips on using Efudex or Carac

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RE: Lessons learned and tips on using Efudex or Carac

by redintheface on Tue Mar 10, 2020 03:21 AM

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On Mar 10, 2020 2:48 AM Amber77 wrote:

Just started treatment and wondering if others work during this process? I work with the public and with all this Coronavirus I’m just wondering how long I should be planning on working?

Excluding the corona virus unless you work in a dirty environment you should be able to work as long as you like. Explain you're undergoing chemotherapy and it's a side effect. Most people will be very understanding. The corona virus is new to all so I'd ask your dermatologist about that.

Good luck to you.

RE: Lessons learned and tips on using Efudex or Carac

by BiglipsVT on Tue Mar 10, 2020 09:48 AM

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I was okay the first week to 10 days and could put make up on; however when you get closer to the 14 day mark, that's when it gets bad.  Best of luck.

RE: Lessons learned and tips on using Efudex or Carac

by DianeAurit on Tue Mar 10, 2020 01:50 PM

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I also continued to work and do my normal routine. I just explained about this treatment and after a while I actually got used to people staring or wondering.  You will be a great role model as you can show others that it is okay to let people see what happens if they don't use sun screen. I wish more of us would go out during this procedure. 

I don't know about any concerns related to the CoronaVirus so like suggested, you might want to consult with your doctor.

RE: Lessons learned and tips on using Efudex or Carac

by PeterPo on Tue Mar 10, 2020 08:22 PM

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On 3 10, 2020 1:50 odp. DianeAurit wrote:

I also continued to work and do my normal routine. I just explained about this treatment and after a while I actually got used to people staring or wondering.  You will be a great role model as you can show others that it is okay to let people see what happens if they don't use sun screen. I wish more of us would go out during this procedure. 

I don't know about any concerns related to the CoronaVirus so like suggested, you might want to consult with your doctor.

Generally, Efudex and similar treatment has no disinfection additives.Due to frequent concomitant skin inflammation in the treatment of Efudextherapy it is usefulespecially after the end of therapy to applyproven disinfectant ointments, e.g.10 Percent Ichthammol Ointment – Contains Petrolatum, Ichthammol, Lanolin, Zinc oxidatum, sometimesCamphor

Modern disinfectant ointments often have an allergizing ointment base.

RE: Lessons learned and tips on using Efudex or Carac

by leonavonhasling on Wed Mar 11, 2020 01:52 AM

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Believe me, you'll know!!  I looked so hideous I covered my face and shopped at night.  Depends how you react and where on your body you apply Efudex.  I didn't want to scare children so I kept myself hidden.  Good luck.  Trust me, you'll know.

RE: Lessons learned and tips on using Efudex or Carac

by Amber77 on Wed Mar 11, 2020 03:12 AM

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Lol I’m sure my co workers will graciously let me know as well! My face is already itching and I realize this is now where near the beginning of what is about to happen. I just wish there was a fast forward button. I am very thankful for this group!

RE: Lessons learned and tips on using Efudex or Carac

by redintheface on Wed Mar 11, 2020 03:41 AM

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If your face itches put some ice cubes in aclean baggie by washed hands and apply to your face, toss the bag when you're finished.

You're going to be fine. Tell your co workers this is a reaction to the chemotherapy. If they're your friends as well they'll be understanding.

RE: Lessons learned and tips on using Efudex or Carac

by Amber77 on Mon Mar 30, 2020 01:05 AM

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This treatment is brutal and my face hasn’t even reacted like some pictures I’ve seen. Just needed to reach out and have someone to talk to. Doing this during the pandemic is really scary. I had no idea this was a pandemic back when I started almost 3 weeks ago. My Dr. had me do one application once a day but after a week she’s had me increase it to 2 times a day. I only have 4 more days but really started experiencing side effects and pain yesterday. I do have a question about how do I know if I’m at the erosion stage on Wednesday? Asking because my doctor's office has closed indefinitely so my follow up appointment has been canceled. I just want to do the complete treatment as I hope that I won’t have to do this again for at least several years.

RE: Lessons learned and tips on using Efudex or Carac

by leonavonhasling on Mon Mar 30, 2020 02:25 AM

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I just wanted to stay up to write to you and encourage you.  I didn't post pictures, but my face looked like someone set a blow torch to it. Hang in there! You're not alone! Just follow the doctor's instructions as they won't have you doing this longer than you need to. The pain is horrific! But since you've come this far don't quit now. You don't want to start all over again, do you?  Don't worry about what erosion stage looks like for you. Your body will do what it will do. Just hang in there. Follow up at the doctor office doesn't do much other than make you feel like you're being heard. . . and you are on this message board. It'll all be okay. I hope I don't have to do this again. . .ever! As for the pandemic, you are probably stuck at home anyway.  I didn't leave for 3 weeks with my face. When I went out at night I covered my face so I wouldn't scare children. Again, follow your doctor's orders and we are all here for you. "This too shall pass." Really.

RE: Lessons learned and tips on using Efudex or Carac

by redintheface on Mon Mar 30, 2020 03:13 AM

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Hi Amber, I saw your post and wanted to reply to it. Everyone's damage and reaction to the medication is different so it's kind of hard to compare. Side effects are common and so is pain. The erosion stage you'll begin to have scabing like a sore that's been picked off and beginning to heal, you'll be crusting, and oozing. Even thought you've not seen it before you'll know because it changes from the stage just before the erosion stage. You'll be able to tell you're peaking. There were times my doctor told me to stop before the initial time, but being you don't have your doctor to tell you, keep to the timeline. If you can take Advil it will help with inflammation and pain. Put some ice in a clean baggy and let it sit there, throw the bag away, don't reuse it. Also when you're sleeping keep your head elevated a little. Keep your pillow cases and towels clean. Stay home away from this Coronavirus.

Hang in there and good luck to you.

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