Does anyone know anything about T-cell LGL Leukemia?

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RE: Lgl Medications

by ddixon on Mon Jul 01, 2013 10:42 PM

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Hi! Sorry to hear your son is not responding well to treatment, so stressful for him and you too. If either of you is looking for a more active place to meet other members (this thread hasn't been posted on in many months), try googling for a group on rare share dot org. There is also a private group on facebook that typically has several posts per day. (Some of these sites explicit prohibit linking of any kind, sorry).

RE: Lgl Medications

by Triumphe64 on Mon Jul 01, 2013 10:47 PM

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The facebook group is very active and informed.

They link journal articles, etc.

RE: Lgl

by AntoniaJo on Sun Sep 08, 2019 01:06 AM

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Hi Linda,

I was recently diagnosed.  My ANC is bw 1100 and 1300.  How often do you get labs done?  How are you doing now.  I am scared.

RE: Lgl Leukemia

by AntoniaJo on Sun Sep 08, 2019 01:09 AM

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I am so glad to read about someone who is doing well.  I am recently diagnosed.  How often do you get your labs checked? My ANC is between 1100 and 1300.

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