BRAIN CANCER CAREGIVER

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Brain Cancer Caregiver

by glendarbbainter on Tue Mar 29, 2011 10:32 PM

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My husband has been fighting glb stage 4 for two years now and i am at my wits end at times.  He sits and thinks about stuff that is not important to me, but is important to him, i guess.  I need some encouragement on how to deal with this awful cancer.

 

RE: BRAIN CANCER CAREGIVER

by CelPB on Tue Mar 29, 2011 11:31 PM

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I can identify with you, and I'm only 7 months into my husband GBM journey.  Lately, everything is so important to him that I have to drop whatever I'm doing to come look, listen, fix, etc.  Even when I said I had to drop my son off at school before he was late, my husband still insisted that I should stay and listen.  I don't know how to deal with this either, but the whole family is trying to adjust.  You're not alone!  Hang in there.  You've done a wonderful job as he has been fighting it for 2 years. 

(If you post your questions on the Brain Cancer board, you'll get more responses).

Peace to you.  Celeste

RE: Brain Cancer Caregiver

by Tere1 on Thu May 26, 2011 08:40 PM

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I can totally understand what you are going through. My husband has the very same cancer and is still here after 3 years and 2 months. And like you there are times that you get tired of hearing the same stories over and over and carring one sided conversations orlike someone else wrote, just dropping off averything just to go see, listen orp pay attention to what they wnat at the moment.

I was told that patience is agreat atribute to posses in life - I say it's a difficult one to develop if not painful at times.

We really need to give ourselves permission to care for ourselves or we'll fall apart .

Hang in there. :)

RE: Brain Cancer Caregiver

by Terrah on Thu May 26, 2011 08:59 PM

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YOU TIME! YOU TIME! YOU TIME! I cannot say it enough. As a caregiver, give yourself permission to go have lunch or drinks with a friend, go see a funny movie, wander aimlessly in a store for a few hours...anything! I feel guilty spending time away from my husband - always thinking you don't know how much time you have left, etc... But I am a much happier mother, wife, and caregiver, when I get some breathing room. Give it to yourself. You deserve it!

RE: Brain Cancer Caregiver

by Sonso on Thu May 26, 2011 11:32 PM

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The prior responses on taking time for yourself are right on target.  GBMs wreak havoc in the patient's psyche and they actually have little, or no, control over their responses (mood swings, volatility, infantile behavior, etc.).  There is no question that this disease is entirely 'vicious', and that you must enter a zen-like, existential state to truly cope with it.  Figure out the deeper meaning of things, and hold tight.

RE: Brain Cancer Caregiver

by Jeffs_wife on Sat Aug 27, 2011 09:44 AM

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My husband has been fighting this Monster for 3 years. At first I thought I could do it all and I did still doing it. But there are somedays I just want to stay in bed and put the cover over my head and hide or evern change my name. I love my husband with all my heart we have been together for 24 years and this is not the man I fell in love with now there are time My Jeff does come out and it does help but most of the time the New Jeff is here. I hate there is so many of us out here and there is so many that is fight this Monster. Now I need to take my on advise to get out and breath it's hard to do it's like when I'm out I see couple and I Miss that with us it's like everyone has a normal marriage and living it up and then I come home to being a mother to my husband and doing everything. So for me it's better to stay in my bubble so I want hurt has bad. Then when I fell this way I feel bad because I know Jeff has to feel worst because he can't work, play golf, drive and the thing he miss the most is serving our country. He loved being in the Army he has served 23 years before he got sick so he misses this the most. But when he start to talk about it I get really up set because if it wouldn't have been the Army Our life wouldn't have been this way. The Brain tumor came from being over sea for 9/11 so I'm a little made at time with them. But on their account they have took care of us and out daughter now it wasn't easy to get everything but being a part of Special Forces helped. Sorry so long like everyone on here I don't talk to no body. My prayers are with everyone here. God Bless you all Missy

RE: Brain Cancer Caregiver

by Sonso on Sat Aug 27, 2011 12:40 PM

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Not the Army that caused the tumor; there is no known cause for GBM.  That is the sad truth. 

RE: Brain Cancer Caregiver

by Jeffs_wife on Sat Aug 27, 2011 08:42 PM

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There was 150 guys in his unit and 3 has brain cancer they think it came from some chemicals they was exposed to. So yes the army should have clean the place us before they sent our guys over there to sleep!!!!

RE: Brain Cancer Caregiver

by Disneycartoon on Sat Oct 22, 2011 01:59 PM

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I'm sorry for how u feel, actually I'm new in using this blog, my dear friend who was suffering from this disease 3 tears ago, is suffering now from its back. he knwe that his GBM is back only two weeks ago. his spirit is so down and I'm trying to help but I think i make it worse everytime. I came here to know your stories and experience in lifting spirit so that I can help him to overcome this stage. Also I want to know if there are cases for GBM free persons?

thanks 

RE: Brain Cancer Caregiver

by pdbiar on Thu Aug 16, 2012 03:50 PM

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Hi I do not communicate as much as I should here but want to let you know yes there is hope. Today I celebrate 7 years since diagnosis. I was given 6 to 18 months. Told to get my life in order. I had the normal surgery radiation and Temador chemotherapy. R occipital they did place glidal wafers in the surgical cavity. I suggest that everyone patient and family who are going through this need to be on a happy pill mine is Lexapro. This is a complicated disease our brain is so complex and is so fragile. We as patients want our love ones to have a life take time for yourself and than maybe we will be easier to deal with. Without our caregivers many of us would not be able to be where we are. I am so sorry for the stress for the caregivers and pain for the patient. Everyone on this site new and old that come back to check on others are warriors. I pray for everyone thank you to all the wonderful caregivers. Blessings and my love to you all Pat
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