Pain on Temodar

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RE: Pain on Temodar

by Mack1994 on Fri Jan 12, 2018 01:21 AM

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On Jan 12, 2018 12:58 AM Supportliz wrote:

We’re currently using CBD oil (a very high dosage) but that is not working well. Do you mind telling me the kind of inhaler you have? Did you also try the oil first with no prevail?

i USE A t-pEN, SET ON 3.5V, THE CBD IS 500MG ISOLATE. I started to use the oil as soon as I started to experience pain. I did not want to go to opiods or other synthetic pain meds. I have a friend who's sister has pancreatic cancer and she recommended to me.

I'm sorry I don't have any other suggestions, perhaps a pain specialist, if you can find one, as pain management is an emerging field. I wish you the best.

RE: Pain on Temodar

by weAre1 on Sun Jan 14, 2018 09:24 AM

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My husband also has been experiencing severe leg pain, little relief from oxycodone, but nuerontin has done the trick!!  And nuerontin(gabepentin) is a seizure drug as well!!  It works more on nerve pain so is beneficial with GBM and all it entails. I'm a RN as well as the wife of a GBM 4 patient.  I reccommend trying the nuerontin.  Good luck.

Dawn

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