Picato (ingenol mebutate) gel?

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RE: Picato (ingenol mebutate) gel?

by tracyz on Sun Apr 01, 2018 05:59 PM

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Hello -

I did Picato on my chest a few weeks ago so I could see what I was getting into and currently I am on day 4 for my face (and last night was my third nigt of applying). Thank goodness that is over and just healing now. I have had a pretty severe reaction.  At lot of pain and burning since walking up the second day. Application of the 2nd and 3rd dose were immediate burning and no relief until I washed in cool water about 9-10 hours later. I took iburprofin and benedryl to try and find some comfort.

For my face, today (day four) is defintely the worst. My face is exactly as many have described.  Severely burned, swollen, many raw areas, scabs, and peeling. My eyes were almost felt swollen shut yesterday and this am when I woke up.  I look pretty disfigured. I am using bags of frozen peas in a soft towel gently placed on my face to help cool and help the swelling. I have a small fan (nail fan) that i have been using as close as I can get it for the past 2 days. I just take it with me everywhere I am sitting and gives me some relief. It is a lifesaver for me. I slept with it on my nighstand as well blowing cool air.

I wanted to add that my dermatologist subscribed Biafine cream for me to use.  The Biafine cream helped my chest so much and am using it on my face hoping it heals more quickly.  

This is not where I purchased it and don’t know anything about avibon.com ….. I got my at the dermatogists office but here is a link to show the cream. you: avibon.com /Biafine-Emulsion-186g-w-Free-Shipping-Tracking-3400932857012.htm" target="_blank" rel="nofollow">https://www.avibon.com /Biafine-Emulsion-186g-w-Free-Shipping

I will continue using in a few times a days from here on out while healing.

When I went in for check up for my chest at day 10, he suggested the biafine which I got at his office and right away I saw improvement.  Hopfing the same for my face. I started using biafine day 2.  After I washed off first application I put on biafine.  Then again after washing out second picator dose, etc. Now that I am no day 4 using a few times a day along with CerVe face cream througout the day to keep moist and cool. 

There is no way I could of been in public the last three days since starting.  I look like a burn victim.... I have 7 days off work so hoping to be back at work next Monday April 9th. 

I have follow up at my derm to check my face April 6th. 

Hoping the biafine helps me heal quickly.  It is scary how serverely burned you get... my chest healed fine but just nervous because it is my face.... To be continued.... 

RE: Picato (ingenol mebutate) gel?

by tracyz on Sun Apr 01, 2018 06:07 PM

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On Apr 01, 2018 5:53 PM WalterP wrote:

If it's any consolation the unwanted stuff returns after Levulon Blue Light therapy, too. It makes things somewhat better/clearer but is nowhere near the almost certain cure the company claims. The derm still has to spot freeze areas afterwards. The good news about it is Medicare pays for it in the US. 

FWIW the derms I've visited the last few years are only recommending Picato to treat small spots as opposed to large areas. 

I'm constantly amazed how many people on this forum ignore the instructions to use it on no more than a two inch square area, smear it all over their face and scalp, and act surprised they're suffering. 

Yes, I questioned my derm about the two inch square recommendation and he told me to do whole face for max benefit. I am not suprised... as I knew it was coming  given I had done my chest already, just painful and scary none the less...

RE: Picato (ingenol mebutate) gel?

by WalterP on Sun Apr 01, 2018 06:48 PM

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Well there also seems to be an epidemic of derms failing to disclose just how gory things get with Effudex/Picato. That is certainly true, too. Unfortunately, just cause someone is a doctor or lawyer doesn't mean they have any common sense. 

RE: Picato (ingenol mebutate) gel?

by tracyz on Sun Apr 01, 2018 07:29 PM

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On Apr 01, 2018 6:48 PM WalterP wrote:

Well there also seems to be an epidemic of derms failing to disclose just how gory things get with Effudex/Picato. That is certainly true, too. Unfortunately, just cause someone is a doctor or lawyer doesn't mean they have any common sense. 

Yes totally agree.  It is a pretty severe reaction, even when you know its coming it is hard to go through.

RE: Picato (ingenol mebutate) gel?

by andreaki on Mon Apr 02, 2018 11:54 AM

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Why are you putting a cream on after you wash off the Picato?  Wouldn't it be better to let it do it's job and wait until the last application?  Just asking.

RE: Picato (ingenol mebutate) gel?

by tracyz on Mon Apr 02, 2018 03:56 PM

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On Apr 02, 2018 11:54 AM andreaki wrote:

Why are you putting a cream on after you wash off the Picato?  Wouldn't it be better to let it do it's job and wait until the last application?  Just asking.

No, it doesn't interfer with the Picato doing its job is my understanding. My derm is who told me told me t start appying after the 1st day and it does not hinder the Picato working.  I applied Picato and waiting 10 hours. After washing thatis whey I applied Biafine.  The did second treatment later than evening... waited 10 hours and washed and applied again. I didn't use along with Picato. Only after 10 hours.

RE: Picato (ingenol mebutate) gel?

by barmoor on Wed May 16, 2018 06:17 PM

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Hi I applied the 3 tubes of Picato 5 weeks ago, although some of the dead skin has fallen off, the scabs have not, has anyone else been in this position after 5 weeks

RE: Picato (ingenol mebutate) gel?

by jovrlnd on Wed May 16, 2018 06:45 PM

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I would have the doctor apply the Picato or anything else.  Thats what they should be getting paid for. Do not do it yourself. (I try to stay away from those topicals and insist on liquid nitrogen treatments. )

RE: Picato (ingenol mebutate) gel?

by WalterP on Wed May 16, 2018 07:01 PM

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Um, that's because you're still in the stage when liquid nitrogen can spot treat conditions here and there; when AK or whatever spread to everywhere, good luck with that. And there are no doctors that come home with you. Nice fantasy, though!

RE: Picato (ingenol mebutate) gel?

by jovrlnd on Wed May 16, 2018 07:52 PM

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I had a doctor at a leading Cancer Hospital order an Rx for Efudex for a spot area less than one square inch.  I thought it over and decided this is not appropriate.  When I returned I asked for a liquid nitrogen treatment. I am very satisfied with the iquid nitrogen treatment result. 

if you decide to go with a topical, then get the Rx and make an appointment for early in the morning at the doctor's office so the doctor can apply it. if the doctor does not agree to apply it, then find another doctor.

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