Searching For Bladder Cancer Survivors

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Searching For Bladder Cancer Survivors

by maureen_m_2 on Mon Feb 03, 2003 12:00 AM

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Anyone survived stage 3 bladder cancer without having the bladder removed? Please let me know what type of treatment you had. My father-in-law really wants to talk to someone who has survived --- he's been diagnosed with stage 3 bladder cancer. Thank you, Maureen M.

Rare Bladder Cancer

by Bluriderjm on Sat Feb 19, 2005 12:00 AM

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i was diagnosed with a very rare bladder cancer called mucinous adenocarcinoma sarcoma in the bladder dome. There are only 6 to 7 known cases in the U.S. and i was told by my physician 10 known in the world with no cure, or treatment. I was operated on in July 2001 and am still a cancer survivor. I had a high grade malignant neoplasma exhibiting both features of mucinous adenocarcinoma and sarcoma like areas. I had part of my bladder removed. I also had my belly button removed as part of the urachus which remained after birth became cancerous. This is very rare also. I continue to have my checkups every 6 mos. and am doing great. My physician each time i go for my checkups calls me a lucky woman as if i'd waited another 2 months i wouldn't be here. Miracles do happen but you have to have a positive attitude. I have from day one and continue to do so. Attitude has a lot to do with recovery. Just thought i'd share my experience. Jean

Bladder Cancer

by Cheddar2221 on Fri Mar 18, 2005 12:00 AM

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Maureen My husband was diagnosed in November 2004 with bladder cancer. It really has been a tough time. He is having surgery to remove the bladder on the 28th of March. His cancer is a high grade invasive stage 3 cancer deep in the muscle. We have researched and researched for the best option for him but the Drs. say it needs to come out. If he didn't have the surgery he could only have chemo & radiation and they don't believe that it could be cured with that. I have read about a man that didn't want his bladder out when the Dr. said it needed take out. My husband doesn't want his out either but he does want to live. Any way this man did'nt have his out, instead he chose to have treatments. When he saw the treatments weren't doing the job, he then wantedn the bladder removed. But it was too late, the cancer had spread and the Drs. could not take the bladder. Please tell your fatherinlaw not to wait too long. It has been almost 4 months since my husband was told about the cancer & two months since they told him they wanted to take the bladder. And I pray to god that it hasn't spread already.

Metastatic Urachal Mucinous Adenocarcinoma

by Pjbatch on Thu May 12, 2005 12:00 AM

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Hi Jean. I hope this meassage finds you well! Thank you for sharing your story. At first my mother was diagnosed with urachal adenocarcinoma. After it traveled from her bladder to the orbital area...it acquired a middle name due to the type of tumor. She had similar surgery to her bladder and most recently a craniotomy. They are discussing further treatment at this time. Was your tumor mestatic? Where are you being treated? and most importantly, how are you feeling now? God Bless, Paula

Update Please

by Heart on Tue Oct 18, 2005 12:00 AM

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How is your hucband doing? Deb

Update Please

by Heart on Tue Oct 18, 2005 12:00 AM

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What has happened to your husband since your last wrote? Did he have his bladder out and what did they find? Deb

Bladder Cancer

by Penguin on Fri Oct 21, 2005 12:00 AM

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I was diagonised with Bladder cancer 12 years ago, it was a grade 3. Went through surgery and 6 weeks of chemo. A small tumor came back 2 years later, had that removed, no chemo. Another 2 years a tumor came back had that removed, no chemo. I was cancer free for 8 years. I just had another tumor come back but it had grown into the bladder muscle wall. My doctor is going to remove my bladder and build me a new one. I will see him this morning to discuss options and go over the procedure. I will try to post a weekly update on my progress to allow anyone who is facing this to see excately what you can expect to go through. I will be as honest and graphic as I can be to tell the true story. Please understand there is nothing more important than a postitive attitude when confronted with cancer. You only have two choices you can be happy (that they found the cancer before it killed you) or you can be depressed. Ask any doctor the prognosis of a depressed person, you won't like the outcome. You really need to take this in stride and have faith in your doctor, if you are not convinced that you have the best doctor and team fixing you find another doctor. Bladder cancer is no fun but if caught early survivoral rates are very high. Get your check ups and listen to what your doctor tells you. Most of all have faith. Life does not put obstacles in front of you that you cannot climb over unless you believe that they are too big.

Dear Jean

by Beachgal on Tue Nov 01, 2005 12:00 AM

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Hi Jean, I am so thankful to have found your post. My sister in law has just been diagnosed with the exact type of cancer you had. Since it is so rare, I've had a hard time finding any type of info. I was hoping that I could ask you some questions about your treatment. Your success has been inspiring & positive. She is wading through many opinions from oncologists, and wanted more info on the partial bladder removal. She is not sure if she should do chemo before or after the surgery - although since most chemo is not effective on this type of cancer, it may make more sense to have it removed first? I hope you see this! Thanks! Meg

Also!

by Heart on Sat Dec 31, 2005 12:00 AM

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Has your husband experienced any other complications or is it just this last bout about the blocked kidney which is bad enough? Tell your husband athat this can be cured according the the doctors and that its time and more procedures to cure the problem if its the same as dad. Lets hope the docs are correct! Best to you. DEb

Blocked Kidney

by Cheddar2221 on Sat Dec 31, 2005 12:00 AM

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Deb, It isn't a blocked kidney, He had renal insuffienciy and his kidney is not emptying all of the way. Plus he has soft tissue in front of the new bladder that they won't know if it is cancer until they cut him open. He doesn't want to be cut open any more. How is your Dad doing now>
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