desmoid tumor on left side of mandible

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desmoid tumor on left side of mandible

by bbpope on Mon Oct 01, 2012 05:09 PM

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Hi everyone!  So sorry to hear about all of your experiences with these tumors.  I am a 25 year old female (almost 26 years old).  When I was 3 years old, I fell out of a high chair onto a linoleum floor and hit my chin.  2 weeks later, I had this enormous tumor growing from my mandible.  I had two rounds of chemo with absolutely no luck.  When I was 4 (or 5?), I was put on Tamoxifen which completely made the tumor go away within a few months.  I have been tumor free (knock on wood) for the past 21 years.  I am so lucky that Tamoxifen worked for me, and I encourage anyone to give it a try if they have the option.  My parents were told to keep a close eye on me when I reached puberty (the estrogen spikes could make it come back), but luckily this didn't happen.  I am somewhat nervous about getting pregnant with my history of the tumor, I intend to talk to a physician with a thorough knowledge of the disease before deciding to have children.  I am currently being tested for the APC gene mutation (which causes FAP), but I am hoping for negative results.  Just wanted to share my story.  Good luck to you all!

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