Grade 4 astrocytoma diagnosis

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Grade 4 astrocytoma diagnosis

by cmh4kids on Mon Apr 22, 2013 10:21 PM

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 My brother was just diagnosised with Stage 4 astrocytoma 2 weeks ago and has underwent the surgery to remove the tumor a weeks ago today. They have told us that they removed 99% of it.  He is doing really great so far.  No memory problems, able to walk and do alot for himself yet.  He is living with me at the present since I have a 1 story home and don't work.  

He starts thearapy tomorrow for speech and left side vision.  the doctors and nurses all were amazed at how well he was doing.  He goes back and has the stitches out on the 30th of April and then probably will start Chemo.  

Can you tell me if the fact that they got 99% and he has no memory lost, able to walk fine, etc is that a good sign.  Please anything you can tell me I would appreciate.  Thanks so much and I'm so sorry for anyone who has to go through this.  God bless you all.

RE: Grade 4 astrocytoma diagnosis

by eternalife on Mon Apr 22, 2013 10:28 PM

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Hi,

My friend had surgery for grade 2 astrocytoma and is one year post. She had only radiation, it was found her DNA would not respond to chemo. It is a wait and watch game with this. She has a MRI every 3 months right now, still quite tired, but just got her license back and can drive again. She has to be on a lot of meds to keep down possible seizures and initially had to take meds to help reduce the swelling on the brain. She did lose her hair , it is growing back nicely , of course she has some scarring from the place where the surgery was done. Overall, she remains optimistic, only 54 years old.

Best to you and your brother.

 

RE: Grade 4 astrocytoma diagnosis

by jpearson472 on Tue Apr 23, 2013 12:15 AM

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Hi there,  sorry to be the bearer of bad news.  AA4 is called Gbm because GBM is always a grade 4.  The more tumor they got out the better, but GBM always comes back.  I had regrowth 6 months after my surgery. when it came dback it was inop.  I am now dealing with my 2nd growth and possiblly  a new growth  thru the mid line and on the right side  origional tumor left temprol lobe.  with treatment average is 15 months im almost at 2 months

RE: Grade 4 astrocytoma diagnosis

by rmp1399 on Tue Apr 23, 2013 02:45 PM

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My mom is 64 and they resected 99% of the tumor as well and she also went to therapy. She actually had a stroke because her tumor was bleeding and her left side was effected. She stayed in rehab for about 3 weeks. She is 100% cognition and mobility now (which also amazed doctors, as you said yours were with your brother!). I would say she is back to normal. 

The doctors tell us her performance status is a big deal with how well she will respond to treatment, but with this type of cancer it seems to  effect everyone so differently. It is almost a case by case basis. I think it is important to keep a positive and encouraging attitude. There will definitely be ups and downs along the way. My mom just finished her 6 weeks of radi/temodar and has a month off before she starts the maintenance phase of temodar. She has responded pretty good so far. She is tired and takes a nap in the afternoon and tries to stay active when she can. She also is going to be involved in a clinical trail. I would suggest looking into those as well if you can.  Good luck to you! We've found that being the caregivers is a huge role. My dad, brother and sister try to take everything about this situation off her plate so she can just focus on trying to live her life as normal!  She says every day is a great day  because she is here and she almost did not live through that emergencry surgery!

RE: Grade 4 astrocytoma diagnosis

by motionman on Fri Jan 10, 2014 04:42 PM

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My mother is 70. She was diagnosed with GBM in Feb of 2013. Her tumor was removed and she had radiation therapy and temozolomide. All is well coming up on a year since the tumor was removed. One thing in her favor is that she has the MGMT gene. I finally convinced her to come down to MD Anderson Clinic in Houston for testing. I will keep y'all posted. Thanks for the space.

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