Leiomyosarcoma treatment options

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Leiomyosarcoma treatment options

by hhrevilla on Sat Apr 27, 2013 07:02 PM

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Hello everybody.

I had been diagnosed with Leiomyosarcoma. I had a tumor removed from my kidney almost 2 years ago. Now, I find out that there are some nodules in my lungs and another tumor on the left side of my neck.

Given my medical history with kidney problems and high bllod pressure, I had been reccomended to take Gemcitabine and Docetaxel. I have been advised that other drugs would create other problems. These drugs apparently have had some success with uterine conditions.

Does anybody have any experiences to share?

Also, I am planning to get a second opinion from a sarcoma oncologist in Los Angeles. Would anybody reccommend an specialist?

Thanks for your support.....

RE: Leiomyosarcoma treatment options

by SisterofLMS on Sun Jun 02, 2013 11:22 PM

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My sister has been dealing with the same cancer for 4 years now. She goes to Dana Farber in Boston. She will never be cured but they have found differnt things that have worked at keeoing her alive and feeling well enough to enoy her life.

RE: Leiomyosarcoma treatment options

by marcello on Thu Aug 29, 2013 11:20 AM

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Hi,

Ive had Leiomyo of  the IVC which was discovered in Sept 11. Had it removed in Nov 11 and after 3months in RPA Sydney Australia it has metastisised to my lungs. started chemo in Feb 13 as could not do it earlier as I was too weak. My oncologist started me on Gem and Doc which has had some success over the 5 month period (6 Cycles). They were 2cms and now they have shrunk to half the original size. at the moment I have stopped the chemo as my my oncology team wants to monitor the lesions. Gem was tolerable for me but the Doc with Gem knock me about(managable though) Cant recommend anyone for you but we are in the best countries to be treated.

all the best

RE: Leiomyosarcoma treatment options

by strut_17 on Wed Nov 13, 2013 02:08 PM

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I went through this with my mom for 6 years.  I would look for a place called alternative medicine. Email me if you are interested in other ideas, my dad spanned the globe to keep my mom alive. At one place she was at in Mexico she saw a guy with lms that no longer had any tumors.  By the way she was very healthy for 5 years most people couldn't believe she had cancer so  the 6 years was a blessing. If your ready to fight ill give your some great resources to do that.

RE: Leiomyosarcoma treatment options

by Sarcoma138 on Thu Nov 14, 2013 03:47 PM

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What alternative meds are you referring to?

RE: Leiomyosarcoma treatment options

by trina19 on Thu Feb 14, 2019 03:12 PM

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On Nov 13, 2013 2:08 PM strut_17 wrote:

I went through this with my mom for 6 years.  I would look for a place called alternative medicine. Email me if you are interested in other ideas, my dad spanned the globe to keep my mom alive. At one place she was at in Mexico she saw a guy with lms that no longer had any tumors.  By the way she was very healthy for 5 years most people couldn't believe she had cancer so  the 6 years was a blessing. If your ready to fight ill give your some great resources to do that.

Hi Strut,  

I saw your post and was looking for alternative treatments in Mexico with experiences in leiomyosarcoma.   

I was diagnosed with uterine LMS Jun 2017, did a hysterectomy.  Was told no cancer found in other areas so chemo/radiation required.   June 2018 my cancer spreaded to my left back muscle, lung, and liver.   I went in for 4 cycles chemo (Gem & Dex) and it didn't work.  Doctor put me on Doxorubicin and Olavatumab (trial drug).  I had 6 cycle of Doxorubicin chemo, the drug relieve my pains, stabilized the back and liver lesions but the lung lesions seem growing.  

Doctor has stopped the Doxorubicin chemo as this will damage my health.   I'm afraid the tumors will keep growing if no Chemo.  I'm looking into alternative treatments to slow down my cancer.  Greatly appreciated if you could forward me any resorted you have to do this.  Thank you so much!

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