GBM IV, Diagnosed Valentine's Day '13

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GBM IV, Diagnosed Valentine's Day '13

by Mendh on Wed Jun 12, 2013 03:39 PM

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My husband was diagnosed with GBM IV Valentine's Day 2013. He completed the initial radiation/Temodar the first week in April. We are still waiting on the next MRI to know if there has been any changes in the tumor. My question, or maybe concern, is his lack of energy and what seems like a decline in him physically. He's lost all of his muscle tone, he's so exhausted and sleepy all the time, sometimes he is too tired to walk except to the bathroom and then right back to the couch or bed, this past week it's been very hard for him to even get himself up. I've read through a lot of the posts here, is this from medications? He's on 2000mg Keppra and 16mg of Dexamethasone a day. He did try to taper off the steroids once before but he ended up having a mild seizure so they put him back on the original dose of 16mg a day. I'm figuring this all out on my own, I wish his team of doctor's had prepared us better for what to expect.

RE: GBM IV, Diagnosed Valentine's Day '13

by Jamtc on Sat Jun 15, 2013 03:40 PM

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Hey My brother was DX a day after on feb 15 he was also on dex but only 4mg a day tommarow completes his first week completely of the dex but unfortunately he got a seizure this morning there still running some text. Did your doctors say your seizure was because of the cutting back of the dex?

kriztenlane kriztenlane
(Inactive)

RE: GBM IV, Diagnosed Valentine's Day '13

by kriztenlane on Thu Feb 06, 2014 08:30 AM

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Hey there,

My 27 y/o boyfriend has a craniotomy and biopsy on V-day '13, Dx shortly thereafter with GBM IV.

How are your loved ones doing?

My man has no cognitive, motor, or physical deficits. He does have seizures, and I've noticed behavioral changes.

Tx: NO to chemo/radiation, he did aggressive naturopathic treatment, diet, detox, supplements and a compound called DCA.

"clean scan" 5 mo after Sx, now recently (11 mo after Dx) a scan with recurrance.

1) How are your loved ones? 2) Have you dealt with any behavioral changes?

Peace and Love,

Kristen

RE: GBM IV, Diagnosed Valentine's Day '13

by PixieHall on Thu Feb 06, 2014 05:14 PM

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My husband too was diagnosed on Valentines Day last year after having some visual problems.  Kristen, can you describe in detail the naturopathic treatment, diet, detox, and the DCA approach?

kriztenlane kriztenlane
(Inactive)

RE: GBM IV, Diagnosed Valentine's Day '13

by kriztenlane on Fri Feb 07, 2014 07:32 PM

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On Feb 06, 2014 5:14 PM PixieHall wrote:

My husband too was diagnosed on Valentines Day last year after having some visual problems.  Kristen, can you describe in detail the naturopathic treatment, diet, detox, and the DCA approach?

yes!

all information on his routine, and all original sources for the research that went into his decision, as well as inspiring documentaries into cancer care are all on his blog:

www.vegkillscancer.blogspot.com

best wishes to you,

Kristen

RE: GBM IV, Diagnosed Valentine's Day '13

by cwhickman on Wed Jul 12, 2017 07:18 PM

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On Feb 07, 2014 7:32 PM kriztenlane wrote:

On Feb 06, 2014 5:14 PM PixieHall wrote:

My husband too was diagnosed on Valentines Day last year after having some visual problems.  Kristen, can you describe in detail the naturopathic treatment, diet, detox, and the DCA approach?

yes!

all information on his routine, and all original sources for the research that went into his decision, as well as inspiring documentaries into cancer care are all on his blog:

www.vegkillscancer.blogspot.com "" target="_blank" rel="nofollow">http://www.vegkillscancer.blogspot.com " target="_blank" rel="nofollow">www.vegkillscancer.blogspot.com

best wishes to you,

Kristen

Kristen,

I am trying to look at this blog link.  It says I have to be invited.  Can you help? Friends mother has stage 4 glioblastoma. trying to research naturopathic treatment!

Courtney

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