Looking for survivors of Stage lV Esophageal Cancer

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RE: Looking for survivors of Stage lV Esophageal Cancer

by slammer1944 on Mon Jan 23, 2017 06:52 PM

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On Jan 23, 2017 6:51 PMslammer1944wrote:

On Jan 23, 2017 6:41 PMBeaches1967wrote:

I would love to call , what's a good time and your number again?
My cell # is- . Sam K

Correction, ,Sam K

RE: Looking for survivors of Stage lV Esophageal Cancer

by slammer1944 on Mon Jan 23, 2017 06:54 PM

Quote | Reply

On Jan 23, 2017 6:51 PMslammer1944wrote:

On Jan 23, 2017 6:41 PMBeaches1967wrote:

I would love to call , what's a good time and your number again?
My cell # is- . Sam K

Correction., Sam K

RE: Looking for survivors of Stage lV Esophageal Cancer

by onthemend on Mon Jan 23, 2017 08:42 PM

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On Jan 23, 2017 1:45 PM slammer1944 wrote:

I went to Mass General after being told by my Maine Dr. That there was nothing that could be done to save me. At MGH ,I was put into a Clinical Trial, 9 weeks Chemo, major operation, 5 more weeks chemo and (5) years later I am considered to be :"Cancer-Free". Would love to talk to you-easier than by e-mailI also have good contact info at MGH and how to get into them. Sam

I concuer with Sam. I also was told up-a-here that their was no hope. I went to Danna Farber then to Brigham & Womens. Received lots of radiatuon and chemo. Then surgery "Lapascopic" and still more chemo. Next month I go for my six month Cat. which brings me out to four and a half years. I was staged at 3-B. I tell you truly that it was rough in the beginning but I now live a normal life, some life stile changes but nothing drastic. I eat what ever I want, my weight is stable at 225lb. I sleep with out a wedge and take "no meds"  25 mg of Metoperol ? for the heart.                      Prayer and a "I will not give in to this" attitude I belive helped me and of course the support from my wife. I will be 68 next one in a month. 

Kevin   onthemend

RE: Looking for survivors of Stage lV Esophageal Cancer

by slammer1944 on Mon Jan 23, 2017 08:47 PM

Quote | Reply

On Jan 23, 2017 8:42 PM onthemend wrote:

On Jan 23, 2017 1:45 PM slammer1944 wrote:

I went to Mass General after being told by my Maine Dr. That there was nothing that could be done to save me. At MGH ,I was put into a Clinical Trial, 9 weeks Chemo, major operation, 5 more weeks chemo and (5) years later I am considered to be :"Cancer-Free". Would love to talk to you-easier than by e-mailI also have good contact info at MGH and how to get into them. Sam

I concuer with Sam. I also was told up-a-here that their was no hope. I went to Danna Farber then to Brigham & Womens. Received lots of radiatuon and chemo. Then surgery "Lapascopic" and still more chemo. Next month I go for my six month Cat. which brings me out to four and a half years. I was staged at 3-B. I tell you truly that it was rough in the beginning but I now live a normal life, some life stile changes but nothing drastic. I eat what ever I want, my weight is stable at 225lb. I sleep with out a wedge and take "no meds"  25 mg of Metoperol ? for the heart.                      Prayer and a "I will not give in to this" attitude I belive helped me and of course the support from my wife. I will be 68 next one in a month. 

Kevin   onthemend

Kevin, great story.My story is VERY similar. I am 72 now-was diagnosed when I was 65. Live a very normal life, still work, play golf a LOT. And all due to getting a second opinion. Would have been dead 6-7 years ago if I had not got second opinion and got down to Masss General. Sam

RE: Looking for survivors of Stage lV Esophageal Cancer

by onthemend on Tue Jan 24, 2017 03:41 PM

Quote | Reply

On Jan 23, 2017 8:47 PM slammer1944 wrote:

On Jan 23, 2017 8:42 PM onthemend wrote:

On Jan 23, 2017 1:45 PM slammer1944 wrote:

I went to Mass General after being told by my Maine Dr. That there was nothing that could be done to save me. At MGH ,I was put into a Clinical Trial, 9 weeks Chemo, major operation, 5 more weeks chemo and (5) years later I am considered to be :"Cancer-Free". Would love to talk to you-easier than by e-mailI also have good contact info at MGH and how to get into them. Sam

I concuer with Sam. I also was told up-a-here that their was no hope. I went to Danna Farber then to Brigham & Womens. Received lots of radiatuon and chemo. Then surgery "Lapascopic" and still more chemo. Next month I go for my six month Cat. which brings me out to four and a half years. I was staged at 3-B. I tell you truly that it was rough in the beginning but I now live a normal life, some life stile changes but nothing drastic. I eat what ever I want, my weight is stable at 225lb. I sleep with out a wedge and take "no meds"  25 mg of Metoperol ? for the heart.                      Prayer and a "I will not give in to this" attitude I belive helped me and of course the support from my wife. I will be 68 next one in a month. 

Kevin   onthemend

Kevin, great story.My "" target="_blank" rel="nofollow">http://story.My " target="_blank" rel="nofollow">story.My story is VERY similar. I am 72 now-was diagnosed when I was 65. Live a very normal life, still work, play golf a LOT. And all due to getting a second opinion. Would have been dead 6-7 years ago if I had not got second opinion and got down to Masss General. Sam

Amen to that brother. A second is a must.........

RE: Looking for survivors of Stage lV Esophageal Cancer

by wolfgang1950 on Tue Jan 24, 2017 09:14 PM

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Hi We posted on here some time ago now, so much has happened , a lot good and positve.  Wolf was diognosed July 15 EC and was given an initial diognosis of six months no treatment 12 months plus with treatment.  Followed six months heavy Chemo EOX , surgery not possible as there were four enlargened lymph nodes in the chest area.  Half way thro chemo the tumor and lymph nodes reduces by 40% amazing!  Wolf eating well and getting stronger.  Finished chemo in Dec 15 and no treatment just scans and dr appt every three months.  I was diognosed too with breast cancer in Oct 15 , surger x 2, chemo and radio but all good for me thank goodness now!  We have read many cancer books and now follow our own way, good diet, anything to keep his immune system strong.  I reseached a tablet/tea Essica and he has taken that for last six months.  Last scan September and still not movement , scan again last thurs and results this thursday!  We prayer to god and our dear angels!  We took a dream holiday 1st October till November 16 16 and had a whale of a time. Singapore, Bali and then hired a motorhome and 3 weeks down the east  coast of Aus, heaven!  Wolf is so positive, won't give up, not his time he says, still working full time on his butty wagon, 'Wolf it down burger bar'!  We think they want to take a biopsy if scan remains the same, we are worried about this as we feel the cancer may move via blood lymph?? We asked what would be the reason, they said, maybe offer more treatment, why not another type investigation.  What do you think. We are in UK at Christies?  thanks , stay strong the power of mind and love are the strongest xxxx Sue and Wolfe xx

RE: Looking for survivors of Stage lV Esophageal Cancer

by PatriSolo on Wed Feb 15, 2017 04:08 AM

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I was diagnosed in June of 2016 with Stage IV Adenocarcinoma of the gastro-Esophageal junction. Metastasis via blood to the liver. February 2017 PET and CT have determined no effective disease. I did take 12 doses of 5FU (stopped oxiplatin after 9 treatments due to neuropathy). I also did tons of supplemental alternative care. Main points 1.) Stopped feeding the cancer. Immediately started no sugar, very limited carb, modified ketogenic diet. Only proteins were turkey, chicken and fish. Only small amounts of carbs, two low glycemic index fruits a day (one in my beet, carrot, apple ginger cold pressed juice), a teaspoon of Faro or Quinoa twice a week and steel cut oats once a week. No honey, no agave, no syrup, only stevia or erythrytol as sweetener. 2.) Increased alkalinity. Starting checking waking pH, wanted 7.0 or higher. This was so difficult to do with my natural body chemistry and with chemo. I took 4 oz of fresh cold pressed wheatgrass, took AM and PM alkaline shakes, and took nitrogreens powder supplement which is all kinds of powdered grasses. Also started eating at least on container of power greens a day. 3.) Increased oxygenation. Started drinking Ozonated water, 104 ozs a day. Bike 30 mins to three hours at least 5 days each week. Took at least there far field infra-red saunas weekly, 122 F for a half hour in the beginning and 140 F for a half hour at the end. This also causes apoptosis. 4.) important supplements. Trypsin and chymotrypsin increases chemo uptake into the cancer and not good cells and strips off the cancer lipid coating to be easier to attack. Curcumin kills cancer stem cells, must be liposomal and taken with black pepper. EGCG is especially good for Esophageal cancer.

RE: Looking for survivors of Stage lV Esophageal Cancer

by thewoodman on Wed Feb 15, 2017 05:12 PM

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sam, 

I am not so punctual and sometimes lose tract of time and diminsion.  Talking is slightly difficult , voice extremly weak and hoarse...so email is the best for me..and would love to converse..ideas always best from outside sources...email is..or we can do instant chat on the messasge board.  Just give me time and I will try to figure out how to use the chat board...I am happy that you are doing so well..keep at it..wood

RE: Looking for survivors of Stage lV Esophageal Cancer

by thewoodman on Wed Feb 15, 2017 05:18 PM

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ken,

Thanks for the information and reply.  It is always nice to have new hope and info.  I just cannot bring myself to the Chemo, surg, radiation thing...and am going the alternative, that is a mostly dietarty mode, therapy thing..So far, I am surviving and I do hang on  to the "I will not give in to this" attitude...any other info and support you may offer will be appreciated.  wood

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RE: Looking for survivors of Stage lV Esophageal Cancer

by slammer1944 on Fri Feb 17, 2017 07:31 PM

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On Feb 15, 2017 5:12 PMthewoodmanwrote:

sam, 

I am not so punctual and sometimes lose tract of time and diminsion.  Talking is slightly difficult , voice extremly weak and hoarse...so email is the best for me..and would love to converse..ideas always best from outside sources...email is..or we can do instant chat on the messasge board.  Just give me time and I will try to figure out how to use the chat board...I am happy that you are doing so well..keep at it..wood

Wood, feel free to e-mail me at - Ok? Sam

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