Has anyone else experienced this

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Has anyone else experienced this

by carrieg55 on Wed Feb 12, 2014 01:20 PM

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Hello everyone I finally decided to take the plunge and join the group, I have been on this site reading all the blogs trying to find answers wondering if anyone is going through the same thing as my husband is.

This is our story:

It will be 3 years ago on 2/17/2011 that my husband was diagnosed with sqaumous cell carcinoma stage 4 lung cancer it started with severe pain in his arm right by the bicep, he had went to the doctor several times same result everytime "we don't know what it is here take these pain meds".

In the mean time he had a sore on his leg that looked like psorisis it was about the size of a half dollar they did a biopsy turned out to be squamous cell carcinoma he had it removed. A year or so later it returned another surgery to have it removed, this time the doctor said we want you to have a PET scan you have been on embrol for a very long time it has a tendency to weaken the immune system lets do this as a safety precaution.

The PET scan showed a spot on his lung a biopsy was done  hence the diagnosis of stage 4 lung cancer. Hubby started chemo and radiation treatments chemo on Mondays, radiation 38 treatments everyday except weekends.

After 10 months of chemo hubby could not take it anymore his veins had collapsed, they were hard from so many infusions he did not have a port the oncologist assured him the needle was small try it if later decided he wanted a port they could do it.

The oncologist then prescribed Tarceva. Hubby got better, he did experience all the side effects that came with chemo hair loss, nose bleeds, weight loss, nausea, loss of a few fingernails, allergic reaction to one of the chemos given, you name it he seemed to have it.

Hubby seemed to get better no side effects with the tarceva. PET scans were done every 3 to 4 months. there were two that had a shadow the radiologist said he thought it was fluid. The oncologist said to be on the safe side lets do a biopsy, the results revealed he had a new type of cancer adenocarcinoma, the oncologist said this doesn't happen often but, it does happen, this has thrown us a curve ball. The oncologist said he thinks the radiation and chemo scraped away the squamous cells and this was at the core of the tumor, they always will diagnose the prominent tumor.

Cyberknife was the next step of treatment ordered. It was rough hubby received 5 treatments in a row each one was 1 hour long. the treatments were successful the tumor shrunk.

Recently in the past few months hubby experienced severe pain again in his arm same place as the initial pain started when he was first diagnosed, this time it came back with a vengeance. the oncologist referred hubby to a pain specialist. After a month or so he came up with a combination of meds to bring some relief, lyrica and hydromorphone, of course other meds that he was on initially.

Another PET scan was ordered, this time it showed cancer has spread to his spine and arm it was the opposite arm that the pain was in, the new tumor on the spine was on the neck in the bone. Radiation was started immediately for palliative treatment. 20 treatments were given on spine and neck and arm. Side effects are severe sore throat, because of the sore throat hubby has not been able to eat swallowing is difficult as a result 10 lb weight loss in a week. Chemo was given, this time we got a port put in, 3 chemo treatments were given every Monday same as the past treatments.

Hubby now weighs 138.2 lbs and is 5"11 chemo treatments have been stopped due to the weight loss and weakness. I have been drawn to the internet trying to see if anyone has had the same experience is this the end? always looking for answers. I read that when the cancer spreads to the spine and bone this is usually the final stage. I am seeing hubby going down hill right before my eyes, this seems to be going very quickly. I am heartbroken, at a loss what to do, we have had 3 years didn't even think we would have that, last year was a good year we have had a lot of ups and downs, last year we were able to travel do things we did before.

I am afraid this is the end or nearing the end of this journey. Hubby has coughed all night long, his breathing seems labored, anyone else have this kind of experience?

I am sorry this is long just seems that there is so much that has happened I am at a loss.

RE: Has anyone else experienced this

by sue1234 on Wed Feb 12, 2014 02:40 PM

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I am so sorry about your husband. I don't have any wise words of wisdom, as my husband has different kind of cancer. Know that you are in my prayers. Your husband has had three years, that in itself is a miracle. Love him, spend time with him, treasure every day. (((Hugs))) sue

RE: Has anyone else experienced this

by billyj on Wed Feb 12, 2014 03:10 PM

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So sorry you two have to go thru all of this.....prayers on the way

RE: Has anyone else experienced this

by carrieg55 on Wed Feb 12, 2014 04:54 PM

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I do feel as though we have been blessed to have the three years we were given. I just hate thinking this may be the end, no matter how much you try to prepare you are never prepared. It just doesn't doesn't make this any easier, I feel helpless and feel like things are spiraling out of control and this is a bad dream I wish I could wake up from. I take comfort in knowing I am not alone I know that everyone on this board is fighting some sort of battle wether being the caregiver or the one battling this horrible disease. thank you for your response when I posted on the lung cancer blog some of the posts were kind of old wondered what happened to everyone.

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