Tested positive for "Lynch Syndrome"

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Tested positive for "Lynch Syndrome"

by Sehwhat on Fri Aug 01, 2014 03:02 AM

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They claim  that is what caused both my cancers Rectal and utrine. kinda worried

RE: Tested positive for "Lynch Syndrome"

by helentoys on Tue Sep 09, 2014 08:33 AM

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Do you have blue eyes or brown eyes?  Genetics is what gives you the color of your eyes and everything else about your specific body.

Unfortunately, Lynch syndrome causes endometrial cancers is about 80% of the women who test positive for this mutation.  The genetist that you saw should have explained this to you. A mutation is a gene that has been miswired in some fashion. Color blindness is a gene mutation causing the person affected by it to have some inablility to see colors.  

Check with the American Cancer Society for their information on endometrial cancer.  They do have a very good article on diagnosis, surgery and treatment.  Now all we have to do in convince the medical profession that women are not whiners and complainers over nothing.

My mother had endometrial cancer and died from colon cancer, typical indicators of Lynch syndrome.  There have been six women out of sixteen in only two generations of my family that have ended up with reproductive cancers.  Four are deceased.  The medical professions response to my being "overly concerned with myself" was to tell me that there was nothing wrong and "you are not going to get cancer." 

Well, my imagination is stage IIIC2 with metasis into my lungs.  After a year of two different chemo treatments with a hyterectomy plus last spring, will under go further testing to see if anything worked.  

What would my outcome be today if I had gotten the hysterectomy I asked for back in 2002? Not likely to be incurrable cancer.

I'll pray for everyone of the women in this world to receive the appropriate medical care.  Don't need more deaths because doctors refuse to listen.

RE: Tested positive for "Lynch Syndrome"

by grouthex on Mon Jun 06, 2016 02:32 PM

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No lynch syndrome is NOT cancer! Also called hereditary nonpolyposis colorectal cancer, it is a risk for colorectal cancer and other cancers (endometrial, ovarian, small intestine, hepatobiliary, brain, skin, etc) It is characterized by a defect in the DNA's mismatch repair system. Individuals with lynch have about an 80% lifetime risk of colon cancer. What you are talking about with the family history, etc is the Amsterdam Criteria and it isn't always correct - up to 40% of patients don't meet the criteria.
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