Stage 4 Bladder Cancer

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Stage 4 Bladder Cancer

by Dean182 on Sat Sep 20, 2014 05:26 PM

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Hi,

My father has stage 4 bladder cancer. He was diagnosed with stage 3 muscle invasive cancer almost two years ago, an absolute nightmare two years. They wasted no time in performing a RC, which they were confident that they removed all of the cancer. Operation went well, and he recovered very quickly until he suffered a medication induced mini stroke. When ruled out any chemo, due to his condition at the time.

Having made a full recovery from the stroke, on his 6-month scan. It showed the cancer was back, exactly where the tumor had grew through his bladder onto the pelvic wall. No node involvement. The first chemo regime didn't work, he started to get pelvic pains, and it turned out the tumor had progressed and was causing nerve/muscle pain. He had some radiotherapy, and went onto taxol. He has seen good results from this. The tumor originally measured 5.5x7.5cm and at the half way scan, it was 5.7x3.5cm so although it’s changed shape a bit, it's shrunk considerably. 

At this stage there is still no node involvement or distant mets, the spread is local with only the one mass. He is on some medication for the nerve/muscle pain, which is keeping the pain down, walks and still works. Leads a normal-ish life.

He has two more treatments left on his last cycle of chemo, and is having a scan this week. But they have just told us there is no further treatment on the market at the moment, and there will be no more chemo for at least two years? I fully understand no one can live on chemo. And chemo breaks are common, but to rule out anymore chemo?

I get the impression they just want to monitor him. Has anyone been through anything like this, or have any advice? I want to push for surgery, but they have never mentioned anything about removing the tumor through surgery. Surely whilst the cancer is currently under control, and only locally spread there must be something further they can do to at least attempt the progression?

Thanks,

Dean

 

RE: Stage 4 Bladder Cancer

by wvleroyhayes on Sun Sep 21, 2014 04:31 PM

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Hey Dean. I had, have stage 4 bladder cancer. I'm a little confused about what you are asking. Maybe there is some confusion bewteen you, your Dad and the Docs. The normal thing would be to let him finish his scheduled treatments,then have a scan. Doesn't make much sense having him have a scan this week and then continue treatments unless he is doing well enough that they think they could go ahead and spare him from further chemo. I see no reason for surgery. Mine did spread to my lymphnodes, my ribs and a lung. Surgery was never mentioned, however the fact it got in his pelvis seems they would be giving him bone treatments though,. Zometa is what I had and had it for months and months after chemo. Side affects, it deteriorates the jaw bone and a dentist will not touch you the rest of your life. Besides opting for Zometa like I mentioned the rest of your post is just confusing some.

RE: Stage 4 Bladder Cancer

by finnsey on Wed Nov 18, 2015 11:40 PM

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Hi My husband has stage 3-4 bladder canceer, they told us right waway he would have to have his bladder emoved because bladder cancer is a cancer that like to return.  My husband just had his bladder emoved and a neobladder built.  He is still in the hospital at this point. 

RE: Stage 4 Bladder Cancer

by Nancyfulton on Sun Sep 16, 2018 01:37 PM

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On Nov 18, 2015 11:40 PM finnsey wrote:

Hi My husband has stage 3-4 bladder canceer, they told us right waway he would have to have his bladder emoved because bladder cancer is a cancer that like to return.  My husband just had his bladder emoved and a neobladder built.  He is still in the hospital at this point. 

My husband had is bladder removed and is doing quite well.  He had has stage 4 micro papilary bladder cancer.  They removed his bladder, prostrate and lots of lymph nodes.  No scans yet

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