KEYTRUDA WORKS

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RE: KEYTRUDA WORKS

by Kenave on Thu Mar 29, 2018 01:26 AM

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That’s great news. Keytruda for me was out of the norm fast. I had only one site (still do, extremely small) but My Oncologiest wants me on it forever as Keytruda has little long term treatments compared to many others. I wish your husband only the best and hang in there by giving him love and support.

RE: KEYTRUDA WORKS

by Redrose40 on Sun Apr 08, 2018 08:40 PM

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I am glad that this is helping so many people. Unfortunately it has not helped my husband.  The side effects were so bad that after six treatments they stopped it. 

RE: KEYTRUDA WORKS

by lsv12 on Sun Apr 08, 2018 11:14 PM

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I am sorry to hear that. Is he currently on another form of treatment?

RE: KEYTRUDA WORKS

by Redrose40 on Wed Apr 11, 2018 01:22 AM

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He is going to be starting Mek inhibitor Mekinist with a Braf inhibitor Tafinlar. I posted on the message board (discussion) on Sunday Agent Orange and Melanoma if you would like to read it. Thanks for replying and I hope you are still doing well!

RE: KEYTRUDA WORKS

by Kenave on Wed Apr 11, 2018 01:43 AM

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I’ve been down the Agent Orange path with the local VA and its tlike alking to a steel I beam at best. To the VA it’s not an issue as it was only a defoliant and nothing more. This I’ve been told three times by VA doctors who are young enough to be my college graduated son. I don’t think they can even spell Vietnam let alone find it on a World map. Now that I’m gone off subject and way too political......Sorry I wish that everyone could go into total remission with little side affects that I did using Keytruda.

RE: KEYTRUDA WORKS

by dshampine on Wed Apr 11, 2018 03:00 PM

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My husband passed away Feb. 2016!  He was denied treatment with Keytruda at stage III but when it came back in the lymph nodes in the neck they gave him Opdivo which they told me it was the same as Keytruda.  He got one treatment which reduced the lymph node but unfortunately he suffered a brain bleed as it had metastisized to the brain (they didn't check him for that even though historically melanoma typically goes to the brain) he died two months later under hospice care!

RE: KEYTRUDA WORKS

by dshampine on Wed Apr 11, 2018 03:01 PM

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Passed away in 2016!

RE: KEYTRUDA WORKS

by Redrose40 on Sat Apr 14, 2018 12:18 AM

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So glad it worked for you. Yes, the VA is a joke. The doctors never are the same, like changing underwear. No one stays. I am grateful that I carry the insurance for us both and it is covering my husbands treatment. We did register with the Va as a back up in case we needed it. He starts his new treatment tomorrow. Hoping that this buys us some time.

RE: KEYTRUDA WORKS

by Redrose40 on Sat Apr 14, 2018 12:19 AM

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So sorry for your loss. I don't know how much time my husband has as it is spreading. 

RE: KEYTRUDA WORKS

by Andrearae on Fri Apr 20, 2018 12:32 PM

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I  tolerated 4 Keytruda treaments and then experienced GI side effects which means the med is toxic for me. I have not yet been cleared to resume treatments. 

I'm wondering how others cope with stage 4 melanoma which is a terminal diagnosis. I am 55 years old and my PCP (former friend) told me for years my mole was of no concern.  She handed me a death sentence and I accepted it.

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