Best neuro oncologists for AA GR 3

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Best neuro oncologists for AA GR 3

by DianneMF on Wed Dec 17, 2014 05:15 AM

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We have been to all of the major brain tumor centers on the East Coast As my neurosurgeon always says , there is no magic bottle of Temodar & surround yourself with a team you can trust Can anyone tell me the names of the NO they trust I am seeing Dr Landolfi in NJ right now having fired U Penn due to their lack of responsiveness Right now - 2nd MRI only- my daughters (age 23) residual tumor is stable It is so very hard living 8 weeks at a time. Is there anyone you can all suggest to try? Or is this just our life now ?

RE: Best neuro oncologists for AA GR 3

by Dodgerblue on Wed Dec 17, 2014 02:26 PM

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It is your new reality, she will be getting routine MRI's for the rest of her life.  Find an NO team she can trust and encourage her to live fullly between those MRI's.  A little anxiety on MRI day is normal, but being in a constant state of stress about a reoccurance is no good for anyone.  With her age and the advances science is making, she has a very good outlook, but that's just my opinion.  Good luck,

Dodger

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