Desmoid tumor very good success

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Desmoid tumor very good success

by suiters28 on Tue Feb 17, 2015 04:58 PM

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Hello,

I've been meaning for the longest time to post about my husband's experience with this.  He was diagnosed in Sept 2013 with a desmoid tumor with dimensions of 17 x 15 x 16 in his lower left stomach/abdomen.  At his last scan in Dec 2014, the dimensions are now 5.6 x 3.7 x 4.4.  His oncologist started him on 150 mg of sulindac twice a day and 20 mg of tamoxifen once a day.  They didn't want to operate because of the size and location near the lower bowel was too risky. We have cleaned up our diet, cutting back on salt, sugar and carbs just trying more healthy, organic when we can but nothing too laborious to manage.  He's also on number of supplements, much of what's listed here http://www.bioinnovations.net/products.asp?dept=1079 . You don't have to buy from this doctor although I will say his products are very good quality wise and I have been taking them for years. Dr. Richard Becker himself is a lymphoma survivor of 17 years so I thought he ought to know.  There are also books recommended that you might be familiar with already.  One that is excellent is Your Blood Never Lies by James LaValle.  I use that to help me understand my blood tests each year.  As FYI, I took Dr. Becker's iodine/kelp to see if it would help with a mild hypothyroid issue where my TSH was 3.6 in Nov.  When I went back to my primary care doc in mid Dec it was down to 2.0 taking one day five days a week, 250 mg.  I've cut back to 1 3-4 days a week. However, there are many good and reputable companies around.  I rotate my husband's schedule every 6 months or so to keep things fresh but he always take a multi, Carlson omega 3 fish oil, turmeric 500 mg, vitamin d3 about 5000 mg or more. When this first happened this board and info was invaluable to me with others sharing their experiences.  There are very few places where you can find any info so I will always be thankful that I ended up here.  My prayers go out to all who are suffering through this or any cancer.  It's brutal to work through, but support, information and hope offers a lot to all of us who are in need. I hope this helps someone as much as you all helped me.

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