RE: Epithelioid Sarcoma 13yr old (Pazopanib)

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RE: Epithelioid Sarcoma 13yr old (Pazopanib)

by heidibosma on Thu Mar 19, 2015 11:11 PM

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Diagnosis: Epithelioid Sarcoma metastasis to lymph node 

My daughter was diagnoses with stage II E.S at 10yrs old. This is a extremely rare sarcoma cancer. She underwent partial amputation of her hand with clean margins. A year later it developed in her lymph nodes. She received radiation and chemotherapy and it appeared to be  in her liver. Chemotherapy did not work! Docs believe radiation has worked for the liver and Lymph nodes. She has been on Pazopanib for approximately (800mg) 8 months.  She experienced many side effects including elevated liver enzymes (reduced to 600) and diarrhea, joint pain, and silver hair (her favorite). All of which have been some what manageable.  My question for you all is how long have you been on the drug without sign of disease?

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