Endometriosis or ovarian cancer?

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Endometriosis or ovarian cancer?

by Alice94 on Tue Nov 24, 2015 12:48 PM

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Hello everyone!

I'm new to this site and I apologize if there's been another thread like this before. I'm also not a native speaker, so my english isn't perfect.

I'm 21 years old and since August I have been having painful ovulations (along with the very painful periods, but this for a longer period of time). One month ago (19th of October) my ovulation pain didn't fade out, it only got worse as time passed. The pain is located just where the ovaries are, but it is in the whole pelvic area and also goes down the area of my pubic bone and down my legs (I hurts when I walk). I'd describe the pain as constant pressure that won't go away, along with sharp, stabbing pain that is often felt as burning. I have normal levels of CA 125 (22.5), and my transvaginal ultrasound and ultrasound of abdomed all came out fine. The only thing my gynecologist was able to see was water retention (stagnated water? Sorry if this isn't the right expression) that is located bellow my uterus (he said that endometriosis could cause that). My blood test was alright, except for the fact that I have elevated levels of platelets. My gynecologist prescribed me Visanne for endometriosis. I am terrified that it might be ovarian cancer, but he claimed that I was too young to have it, that he doesn't think there is any chance of that) and that he won't send me off for laparoscopy just yet. I also have some difficulties urinating; even though I drink somewhat normal amounts of water, I pee quite frequently and I also have a hard time starting peeing. Also, when I finish I usually get the feeling that I could go more, but I can't. I'm having chest pain along with pelvic pain, but don't know if it's connected anyhow, could just be anxiety, ...

I would really appreciate it if you could tell me some of your experiences and opinions. And I also have a question ... if this is cancer, how fast does it usually progress? Do I have one month to try if this Visanne medicine is helping me (in which case I'd be diagnosed with endometriosis) or do I have to encourage my doctor that I want to have laparoscopy done as soon as possible. And is it possible to have ovarian cancer without bloating, digestion problems and feeling full quickly after eating? My doctor also said that cancer isn't usually painful and that since I am in quite a lot of pain, this isn't the case.

Thank you so much for your time.
Have a nice day. :) 

RE: Endometriosis or ovarian cancer?

by Wrendie on Wed Dec 30, 2015 12:28 PM

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I had uterine cancer and ovarian cancer I have to say the cancer was painful I was tired full and it hurt when I sneezed I am receiving chemotherapy and had a radical hysterectomy in2013 mow I am having chemotherpy in 2015 but am actually doing better . The treatments are better now .i would get a second opinion for your answers I would make sure

RE: Endometriosis or ovarian cancer?

by share1234 on Wed Dec 30, 2015 07:17 PM

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Hello Alice 94.

If I were you I would make an appointment with a 'Gynelogical Oncologist'.  Find a very reputable one in your area. 

You don't have to have cancer to see one.  Just gynelogical concerns for which you want to verify its NOT cancer. 

If you were to have a laparoscopy for biopsy or any kind of gynelogical surgery you want that to be via a skilled specialist....again, that would be with a 'Gynelogical Oncologist'.

You are obviously scared and want to rule out cancer asap. 

See the right Dr for this.  Make sure its a good one. 

Hopefully it is not ovarian cancer at all but the sooner you rule it out the better. 

Good Luck.  I hope it all turns out well and you find the right Dr. who can help you.

RE: Endometriosis or ovarian cancer?

by Chiqlet on Wed Aug 24, 2016 10:40 PM

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I agree with "Share" in her above post. 

Please find a well-regarded Gynocologist Oncologist in your area.  I had severe pain for two months when I was in my late 30's, only to discover that I had Stage IV Endometriosis for many years, but hadn't had any symptoms until that time.  The only test that will definitely diagnose endo, and tell you what is going on in your body is a laprascopy.  The test is a procedure done same day in the hospital or surgical center.  Please though, find yourself a good gynocologist oncologist - they treat many other female ailments of the pelvis - not just cancer.  Do not be scared away by the title.  GOOD LUCK! 

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