Stage 4 Glioblastoma in Thalamus

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Stage 4 Glioblastoma in Thalamus

by Jangel on Wed Dec 02, 2015 01:24 PM

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Hello..a relative was just diagnosed with Glioblastoma in his thalamus. They were not able to due surgery..just a biopsy to confirm this diagnosis. I know that the prognosis is grim. He is starting chemo and radiation. He is being treated at Sloan Kettering which is wonderful though they haven't offered any clinical studies or surgical options. Looking online I have come across many Drs that have done other things. Such as laser surgery, herpes/cold injections to tumor, and more. Anyone have any luck with any of these? Also what's opinions on hyperbaric chamber? Alkaline water? Hemp oil? Burzinski protocol? Seems like so many claims. We want to try everything!

RE: Stage 4 Glioblastoma in Thalamus

by Chrissyb33 on Wed Apr 18, 2018 01:40 AM

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Hi! I just came across your post and was wondering how your relative made out at Sloan Kettering? My husband was just diagnosed a few weeks ago with a stage 4 thalamic glioblastoma. He suffered complications after the biopsy and is still trying to recover. Our plan was radiation and chemo, but we need to get over this hump first. Wishing you the best. Chrissy

RE: Stage 4 Glioblastoma in Thalamus

by Jangel on Fri Apr 27, 2018 08:19 PM

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So sorry to hear about your husband. Unfortunately my relative did succumb to the illness. He did have some success with clinical trials for immunotherapy, it bought him a few precious months. I wish nothing but light and love for you and your hubby during this difficult time.

RE: Stage 4 Glioblastoma in Thalamus

by Chrissyb33 on Fri Feb 15, 2019 05:04 PM

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Thank you for your kind words. Unfortunately my husband passed away in August from this disease. He was not able to participate in any clinical trials, but did receive about a week of radiation. I wish there was more we could have done. Take care, and god bless.

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