Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

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RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by cmaries on Mon Feb 22, 2016 06:38 PM

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If he can eat the chemo is working...thae chemo is shirinking his tumor. As long as it is stable or shrinking they will continue with that regimine.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by Bond007 on Mon Feb 22, 2016 07:36 PM

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We live in Ontario Canada. Rick was diagnosed Oct 1st 2015 we as well were in complete shock after endoscopy to here Cancer never had it entered our mind. I have to say the cancer centre hospital has been wonderful and treatment started straight away the only thing is they are not the most optimistic about saying he will be cured but only God decides on when that time will be so we try to stay positive. My husband is very positive and alway has been throughout this cancer I'm the worry wart. The beginning was had because of the swallowing issue and when they did the radiation at the beginning (10 treatments) they did say it would get worse before it gets better and it did his throat got so sore it was difficult to even swallow fluids. The just wanted to start some treatment until they waited for the her2 to come back. After 2 chemo sessions which started Dec 8th 2015 he was able to eat solids. Rick goes for his treatments ever 3 weeks and I find the few days after the treatment is not feeling great but gets better and better till next treatment. I'm not sure how many they plan to give him they haven't mentioned that yet likely they will know more after results of the scan. Love to stay in touch with you I wish you all the best. Donna

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by Bond007 on Sat Feb 27, 2016 01:30 AM

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Hi....we got the results from CT scan everything is shrinking so we are pleased he has had 4 chemo treatments she said he could be on chemo 9 months. On the scan there is a suspicious spot on his bone on his pelvic bone he has no pain there but she said it could be a old injury even from a child he has grown a little since last scan so they are calling it suspicious so bone scan next week to make sure it's not cancer. I asked her about the chemo drug your husband is on foxfili and the other one and she said it's not for esopagus it's used for pancreatic and colon cancer , so I don't know. I hope they know what they are doing I get so worried sometimes.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by bobdonaghy on Tue Mar 01, 2016 01:59 AM

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While folfox is primarily used for breast cancer, there have been very good results with using it on esophageal and colon cancers.

I was diagnosed with stage 4 ge anenocarcinoma Sept 29, 2015. I have completed 10 chemo sessions( every other week). I was on folfox for 9 of those sessions. A ct scan on new years eve day showed the primary tumor shrank from 7 cm to nearly resolved. The leasons on my liver are half the size they were in Sept and the few lymph nodes affected have also shrunk to nearly normal size.

Due to wanting to avoid permanent motor neuropothy, oxaliplatin was removed from the regiman I receive.

I feel great, weight is stable and nausea is a thing of the past.

While this is all encouraging, my oncologist advises staying on the present regiman for the rest of my life. We do plan on having another ct scan mid march to see where we are.

My thoughts and prayers are extended to all who suffer from this terrible disease.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by cmaries on Tue Mar 01, 2016 02:40 PM

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Bond007....good to hear your good news of ct results!

My husband was also told EOX would be comparable to FOLFOX.  He was told this by two other oncologists when we sough other opinions when first diagnosed.  If tumors are shrinking, then the chemo he is on is working...that's what they want.  Hey whatever works!

Bobdonaghy...good news for you...my husband was also told he would be on chemo for the rest of his life..until the latests scans were clear.  But the chemo was for palliative treatment at that time.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by VickiH on Tue Mar 01, 2016 05:56 PM

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Hi

My dad was diagnosed April 2014 with esophageal cancer and a metastasis to the adrenal gland.  He was given 6-12 months to live with palliative treatment (radiation). His oncologist did not want to give him chemo because of his age, and surgery would never be an option because of that. His radiologist argued with the oncologist who eventually, yet skeptically, agreed to the concurring radiation, chemo regimen.  He had 49 radiation treatments and 5 chemo infusions.  At the end of that treatment, he was weak, but cancer free.  In September of 2015, we moved my parents to the Nashville area to be near my sister and I , and during a routine dilation, another spot of EC was found at the junction of his esophagus and stomach.  His new oncologist started him on oral chemo (Xeloda) two weeks on, one week off.  The tumor shrunk a little and has basically stayed the same on that regimen. He is able to eat, go to church, and walks at least two miles every day--even when he is feeling very tired (the chemo causes low blood pressure).  He is not sick or nauseous from the chemo.  He eats very well.  His weight is stable. He is coming up on the two year mark.  His oncologist says she cannot cure him , but she can make him better without making him sicker...So far, that has held true.   She says that he can remain on this chemo regimen indefinitely...We have been given the gift of time and we are so appreciative of that ...and an oncologist who truly cares about her patients. We don't know how much longer these "good times" will last, but we savor them all.  We are planning a big family vacation at the beach this summer, and Dad's oncologist says she may give him a chemo break if his next scan is stable.  Did I mention that my dad is 86 years old?   Hope springs eternal...Never Ever Give Up :)

Blessings,

Vicki

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by PrincesMartinez on Wed Mar 02, 2016 03:22 PM

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On Feb 22, 2016 6:38 PM cmaries wrote:

If he can eat the chemo is working...thae chemo is shirinking his tumor. As long as it is stable or shrinking they will continue with that regimine.

Hi everyone,

My father was diagnose with stage IV esophageal cancer with mestasis in left shoulder, right hip and the bones that proctecting the lungs. He had finish the 3 cycles with every week chemo. He cant eat through his mouth since August last year. He has a Jejunostomy tube feeding to support his nutrition. We are from the Philippines and we do not have that financial resources to support my father's medication. We made lot of loans to different people. What we have is hope and prayer everyday.

God Bless us all and have more Faith everyday!

 

 

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by PrincesMartinez on Wed Mar 02, 2016 03:24 PM

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On Mar 02, 2016 3:22 PM PrincesMartinez wrote:

On Feb 22, 2016 6:38 PM cmaries wrote:

If he can eat the chemo is working...thae chemo is shirinking his tumor. As long as it is stable or shrinking they will continue with that regimine.

Hi everyone,

My father was diagnose with stage IV esophageal cancer with mestasis in left shoulder, right hip and the bones that proctecting the lungs. He had finish the 3 cycles with every week chemo. He cant eat through his mouth since August last year. He has a Jejunostomy tube feeding to support his nutrition. We are from the Philippines and we do not have that financial resources to support my father's medication. We made lot of loans to different people. What we have is hope and prayer everyday.

God Bless us all and have more Faith everyday!

 

 

By the way my father is 47 years old.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by rbton on Mon Mar 07, 2016 12:54 PM

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Hi 

My name is Robert and I was diagnosed in Sept. 2015. I originally was treated with 5 Chemo treatment once per week and 23 radiation treatments (Radiation treatment 5 days a week Monday to Friday) in preparation for surgery. A CT scan was performed prior to surgery and what was interpreted as an abscess on my right buttock was biopsied and determined cancerous also. Inoperable I am presently in chemo therapy receiving ECX treatments .Chemo once every three week andCapectabine daily for 21 days. I should be receiving my third Chemo treatment this coming Monday. I have read the posts hear and have spoken with a member recently. I will check also with my oncologist about EOX, ECX, and the encouraging post onFolfox and Folfiri Treatments. I found this website terrific with the posts and conversations both encouraging as well as informing giving me a better understand of Esophageal Cancer. Wishing everyone All The Best today and in the future. Thanks Bob.

 

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by cmaries on Mon Mar 07, 2016 12:58 PM

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Good Luck Bob...my husband Tom will be having his esohagectomy on Thursday...we never thought he would be able to have the surgery...keep your spirits up!  There is hope!

Connie

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