Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

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RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by rbton on Thu Mar 10, 2016 12:46 AM

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Thanks Connie You are very lucky that an esphagectomy will be done this is great.Wishin g Tom a speedy recovery.All the Best Bob

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by Bond007 on Thu Mar 10, 2016 02:48 AM

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Good Luck Connie !!!!! Wishing Tom well and a speedy recovery ?? Tom has done so well.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by joensteph on Mon May 02, 2016 03:17 PM

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Honestly its not all that lucky that surgery can be done.  My husband had it done a year ago this Wednesday and his cancer is back already! :( As much as they claim this is the best chance at survival I believe it really only is for Stage one and two patients.  It seems many Stage 3 patients have a recurrent bout with cancer. Now I wish we wouldn't have had surgery as now he has to live with the effects of surgery while still battling cancer.  Its not fair.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by slammer1944 on Mon May 02, 2016 03:35 PM

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On May 02, 2016 3:17 PMjoenstephwrote:

Honestly its not all that lucky that surgery can be done.  My husband had it done a year ago this Wednesday and his cancer is back already! :( As much as they claim this is the best chance at survival I believe it really only is for Stage one and two patients.  It seems many Stage 3 patients have a recurrent bout with cancer. Now I wish we wouldn't have had surgery as now he has to live with the effects of surgery while still battling cancer.  Its not fair.

Not always true. Many times it is who the Dr is and the hospital involved. I was Stage #3-4,went to Mass General and 6 years later am Cancer-Free"-as was a friend of mine -same Stage 3 and is now Cancer -Free after 5 years. Be glad to recommend who I went to. Sam Kelley.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by joensteph on Mon May 02, 2016 03:50 PM

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My husband had a very experienced surgeon at Moffitt Cancer in Tampa who has successful done tons of these surgeries.  So that had absolutely nothing to do with it.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by bobdonaghy on Mon May 02, 2016 04:06 PM

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wishing all of you the best of luck.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by charter on Wed May 04, 2016 12:07 AM

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success story!  very encouraging.  wonder what was the size of the tumor at the GE junction?

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by Cheryl680 on Wed May 11, 2016 02:06 AM

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Hi - my husband was diagnosed in sept of 2015 with adenocarcinima of the GI junction also with a large tumor stage 4 with lymph node involvement in stomach and chest Also one node in neck which gave him the stage 4 diagnosis. He started off with chemo cocktail of FU and cistoplatin every 2 weeks with a pack to take home for 3 days. He sailed thru 10 treatments fairly well, was always able to swallow food so that wasn't a problem he then went to 28 days of radiation very aggressive to 3 different areas he also sailed thru that until the last week he's been hit really hard with extreme fatigue and no appetite. He's just starting to lose some weight now. We are at Sloan Kettering and the care has been wonderful but I'm very disappointed about the no surgery, I was led to believe he would have surgery and I see many stage 4 's that do so I'm going to get some more opinions about that. The radiologist said there's a good chance the cancer will be gone when they do the the scans in 6 weeks but recurrence is very high of course because of the staging. This has totally rocked our family. My husband was a healthy 59 year old who always worked out never smoked or drank, we have 2 college age children that adore him. He had symptoms for 3 weeks before diagnosis, they thought is was just gall bladder. We remain hopeful and strong but the statistics are so awful for stage 4 it has devastated me. I as I'm sure u are are hoping he's the special guy that defies the odds and is able to walk my daughter down the aisle some day. Let's stay in touch since our stories are similar. Cheryl

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by Bond007 on Wed May 11, 2016 04:57 AM

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Hi Cheryl ..your husbands story is very similar to my husbands cancer journey..my husband was diangnosed Oct 1st 2015 Anenocarcinoma he has a 7 cm tumor at the JE junction close to the stomach after PET scan they discovered Lympe nodes in the abdomen that had cancer as well of some nodes around the chest area. His HER2 came back negitive. He had 10 radiation treatments first then started chemo ECX Dec 8th. He was about to have his 8th chemo treatment but his Ct scan lastweek came back and showed some new Lympe nodes so she wants to start new chemo drugs on him they are call Paclitaxel and Ramucirumab we are just waiting for approval from insurance and hopefully starting soon, until he starts the new drugs he is continuing to take the chemo drug Zeloda. Rick did have difficulty swallowing food this is what took him to the doctor and endoscopy found the cancer. What sent your husband to the doctor ? The radiation was the hardest on my husband he lost a lot of weight because he couldn't eat and also had trouble drinking. He has since gained 30 pounds and weighs 170 ish. My husband was 59 when diangnosed as well but is no 60 he as well was a very active healthy non smoker and drank occasionally, we were absolute shocked !!!!! What prognosis have they given you husband? They were not very optimistic with Rick's cancer ..warning us it's very aggressive and like to come back and they did mention the incurable word to us but they are continuing to treat him so we are praying and hoping each day for him to continue fighting this nasty beast.....Here is my email address ....I would like to stay in touch. Good luck in your husbands journey.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by kel104852 on Mon May 23, 2016 02:48 AM

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I am 69 years old and overweight but otherwise in good shape. Last Aug I was diagnosed with 4th stage esophageal cancer and was given approx. 3 mo. to live as it had spread to the liver, lymph nodes and brain. I am a fighter and refused radiation but had 6 treatments of chemo and did research on alternative treatments and my last brain scan and crt scan showed NO cancer whatever. so never give up hope!

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