Carcinosarcoma Uterine Cancer

8 Posts | Page(s): 1 

Carcinosarcoma Uterine Cancer

by Patcarl112004 on Wed Jan 27, 2016 10:35 PM

Quote | Reply

Any survivors of carcinosarcoma uterine cancer? 

RE: Carcinosarcoma Uterine Cancer

by jamiemm on Tue Feb 09, 2016 05:13 PM

Quote | Reply

Hi, I am writing on behalf of a loved one. I'm looking for any information on Dr's & treatments. My friend has recently been diagnosed. One yr ago she had uterine cancer, hysteretomy. Now it has spread & mutated to carcinosarcoma. Any help or guidance would be appreciated.

RE: Carcinosarcoma Uterine Cancer

by Patcarl112004 on Tue Feb 09, 2016 09:21 PM

Quote | Reply
I was diagnosed with Carsinosarcoma uterine cancer Almost 3 years ago. My oncologist had me start Chemo right after surgery. One of the chemo drugs was carboplatin, can't remember the other. I also had 3 vaginal radiation treatments that were pretty strong after chemo. So far I am doing well but this is a sneaky cancer and can be very deadly.my doctor said stage means less than type. Another words, it is a type 5 cancer. Immediate care is required as it fast growing and attacks the organs. I have a c125 blood test every 3 months to check for cancer cells and see my oncologist every 3 month. This cancer is very rare and it is difficult to connect with anyone who has experienced it. I send prayers to your friend and wish her well. Speed of treatment is vital.

RE: Carcinosarcoma Uterine Cancer

by jamiemm on Thu Feb 11, 2016 08:15 PM

Quote | Reply

Oh thank you so much for responding!! Who is your Dr and where have you done your treatments? I'm Jamie. My friend, Rhonda, lives in Atlanta, GA, but has been seeing Drs at MD Anderson in Houston. I've been doing a lot of research for her and did note the rarity. I am so happy to hear you are a 3 yr survivor!!! That is wonderful! Have you done other alternative treatments or any specific supplements or diets that you think may have helped keep you progression free? Thank you so much for respondng.You are the single light in this very dark place.

RE: Carcinosarcoma Uterine Cancer

by Patcarl112004 on Fri Feb 12, 2016 06:35 AM

Quote | Reply
My doctor was at Salem Hospital Cancer center in Salem, Oregon. She is into research and is now on the East Coast at Brigham and Women's hospital. (I think) she treated me for the better part of atwo years and was so young, but thorough. Dr. Monroe. Sounds like your friend is in good hands. Really press your doctor for information and read about all the treatments they are giving plus side effects. I read ahead and found that one of the chemos was not good for me because I am allergic to bee venom and it contained that. They gave me the first 4 treatments by filling. Me up with steroids so as to minimize the reaction....didn't help. They put me in the hospital with a 24 hour nurse and administered the treatment slowly so I wouldn't go into anaphylactic shock and die from it and not the cancer. I was not able to finish all the treatments but think the surgery,strong chemo at the onset, and radiation work. I keep very active, eat a good diet but my sleep has been affected. a positive attitude is the best cure in the world, along with prayer.

RE: Carcinosarcoma Uterine Cancer

by VOsborne on Sun Mar 27, 2016 12:37 AM

Quote | Reply
Hi, I would like to say I am a survivor of 2 years. Was diagnosed in March 2014. Had full hysterectomy, chemo(carbo/taxol)5 rounds, 25 radiation treatments.

RE: Carcinosarcoma Uterine Cancer

by Patcarl112004 on Sun Mar 27, 2016 05:13 AM

Quote | Reply

Am coming up on my 3 year anniversary.  Feeling So grateful to be a survivor of this awful disease.  Hope you have many more years of health. My first hint was March 2013 but the biopsy didn't come back conclusive until May.........Surgery followed a week later. Luckily my oncologist was into research also and knew what to do.

RE: Carcinosarcoma Uterine Cancer

by VOsborne on Sun Mar 27, 2016 07:00 AM

Quote | Reply
Congrats on your 3rd year. I too am so very grateful to be a survivor. Everything happened so fast once I had the diagnosis. My hysterectomy was done within 3weeks after biopsy results. I feel blessed to have the doctor and cancer center in my home town. It seems as though both of our doctors knew which road to take. Especially when we compare our treatments. Wishing you many more years of good health....
8 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.