Proton raditation

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Proton raditation

by Workman on Wed Feb 24, 2016 10:41 PM

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Has anyone had experience with proton therapy?

i am looking for alternatives for pancreatic cancer other than IMRT.

RE: Proton raditation

by Ipadgrannie on Sat Feb 27, 2016 09:07 PM

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YES. I just finished a 5 day course of proton treatment for bile duct cancer.the doc said it was all gone. I had stage 2+ with 2 lymph nodes infected but no metastasis. My surgeon told me to check out a teaching hospital. There was one 2 hours away. We drove every day but the hosp had made arrange with local motels/hotels for reduced rates for those who needed to stat there. I def would look into that Best of luck to you.

RE: Proton raditation

by Workman on Sun Feb 28, 2016 05:24 AM

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did you have surgry prior to radiation?

RE: Proton raditation

by MrBrightside on Tue Apr 26, 2016 02:48 PM

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Your question was posted a while back but I'll respond in case of any value for someone.

I just completed Proton treatments going every weekday for 6 weeks at MGH in Boston for a brain tumor (oligodendroglioma grade 3) that I have had multiple surgeries on plus chemo since 2010. 

The staff there was excellent.  I commuted daily by train from CT to Boston which worked out well for me.  I could sleep on the train both ways.

I had to meet with them first to discuss my case and then once they approved me for treatment my insurance had to approve it which they did.  My oncologist at Yale referred me there which was helpful in the sharing of my medical files and MRI results.  I don't know how much non-Proton radiation costs, but my Proton treatments were about $6-9k per DAY.  Not cheap.  I was thankful that my health insurance approved it.

I'm also participating in a study where they will track me going forward.

My first follow up MRI since treatment is this Friday.  I have some video and pictures of the treatment facilty I hope to post here soon.

RE: Proton raditation

by georgedonahue on Wed Jun 01, 2016 07:46 AM

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Greetings!

Thank you for your answer.

How did you feel after the treatment and how effective it was ?

RE: Proton raditation

by MrBrightside on Sat Jul 16, 2016 05:49 PM

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Not sure if your question was directed to me, and if so, sorry for not seeing it sooner.

I had an excellent follow up MRI at 3 months following my proton radiation.  My Dr at Yale was quite pleased with it and recommended only follow up MRI's for now and no further treatment at this time.  Mass General also reviewed my MRI and recommended the same thing.

I was working three days a week on the road and two from home slowly easing back into things.  I think this worked out well.  Due to my work getting much busier lately, I am unfortunately back to 5 days and a pretty busy schedule.  But I try to lay low when not working.

Lots of rest, a nap during the day, eating healthier including dropping added sugar are all things I now do.

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