Anaplastic Astrocytoma Survivors?

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Anaplastic Astrocytoma Survivors?

by Ghog43 on Wed Oct 26, 2016 10:24 PM

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23 years ago I had a Grade 3 anaplastic astrocytoma removed. The surgery was followed with chemo and radiation. I am trying to find other long term survivor stories of the similar cancer.

Please reply if there are any out there who have been over 20 years clear. My doctor had one of 20 years clear that just returned. I am hopeful that they are wrong about me and mine will not come back!

RE: Anaplastic Astrocytoma Survivors?

by jonjt488 on Wed Oct 26, 2016 11:21 PM

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Congratulations on your long life and continued success!

I had 99% of a primarily grade II astrocytoma removed 14 days ago.  The oncologist who is covering me found that some portion (a few percentage points) of the tumor mass had grade III abnormalities.  The assessment of that tumor is not yet complete so, I don't know exactly how much is actually considered maglinant. 

Additionally, an abnormal growth appeared just north of this primary tumor.  The oncologist does not yet know if this abnormality is glial in nature, or not.  Considering the presence of the large, removed tumor, I'm going to assume that this small, unconspicuous abnormality is a grade II/III astrocytoma, as well.

In any case, I didnt want to hijack this treat.  Instead, I wanted to congratulate your survival and success!  It's wonderful that you are well, 23 years after your procedure.  I, too, am interested in tracking the long-term success of folks who had glial turmors removed.

Have a great evening!

RE: Anaplastic Astrocytoma Survivors?

by Dodgerblue on Thu Oct 27, 2016 01:17 PM

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   Wow!  23 years is outstanding.  I'm about to hit three years.  I think there is always that chance of recurrence, just the way it is.  No reason to think you won't continue to do well though.  Keep enjoying life, everyone would love to have the success you've had!  You been blessed.

Dodger

RE: Anaplastic Astrocytoma Survivors?

by Ghog43 on Thu Oct 27, 2016 05:34 PM

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On Oct 27, 2016 1:17 PM Dodgerblue wrote:

   Wow!  23 years is outstanding.  I'm about to hit three years.  I think there is always that chance of recurrence, just the way it is.  No reason to think you won't continue to do well though.  Keep enjoying life, everyone would love to have the success you've had!  You been blessed.

Dodger

My doctors have ALWAYS told me that if I live long enough, it WILL come back. In fact, EVERY doctor tells me that! I don't like them ;-)

I suppose they know what they're talking about, but now that I've out lived anyone on their records, they don't have any data, so they just tell me to "carry on" :-D

RE: Anaplastic Astrocytoma Survivors?

by Ghog43 on Thu Oct 27, 2016 06:00 PM

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On Oct 26, 2016 11:21 PM jonjt488 wrote:

Congratulations on your long life and continued success!

I had 99% of a primarily grade II astrocytoma removed 14 days ago.  The oncologist who is covering me found that some portion (a few percentage points) of the tumor mass had grade III abnormalities.  The assessment of that tumor is not yet complete so, I don't know exactly how much is actually considered maglinant. 

Additionally, an abnormal growth appeared just north of this primary tumor.  The oncologist does not yet know if this abnormality is glial in nature, or not.  Considering the presence of the large, removed tumor, I'm going to assume that this small, unconspicuous abnormality is a grade II/III astrocytoma, as well.

In any case, I didnt want to hijack this treat.  Instead, I wanted to congratulate your survival and success!  It's wonderful that you are well, 23 years after your procedure.  I, too, am interested in tracking the long-term success of folks who had glial turmors removed.

Have a great evening!

Thanks for your comments. I don't think you hijacked anything. I WANT to hear from other survivors.

My tumor was primarily grade 3, but grade 4 in the center. I was recently divorce and raising 3 young girls by myself, so I never even questioned my survival rate. I KNEW I would survive! I had to raise them. People would ask me what my prognosis was, and I told them I had no idea. I had never asked that question.

Good luck with your treatment and please share your success story with me!

RE: Anaplastic Astrocytoma Survivors?

by jonjt488 on Thu Oct 27, 2016 11:45 PM

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Thanks for the reply!

Thanks for the info about your experience.  It's really wonderful to hear that you are without recurrance, after 23 years.  I'm very happy that you survived, that you are functional, intelligent and happy! :)

I'm setup for chemotherapy and radiation therapy in a few weeks.  My doctors decided to threat two areas with the same chemicals, so as to reduce or eliminate the chances of recurrance, in the future.  We will see how things go.

Great to speak with you!

RE: Anaplastic Astrocytoma Survivors?

by eternalife on Fri Oct 28, 2016 01:21 AM

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Hi all,

A good friend of mine is almost four years a survivor.. Keep going folks.... we are all on borrowed time.

Best

RE: Anaplastic Astrocytoma Survivors?

by talebia.s on Sun Oct 30, 2016 07:46 PM

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Hi. Great success story. Can you please tell us what you did and didn't do? You are aninspiration.

RE: Anaplastic Astrocytoma Survivors?

by Ghog43 on Sun Oct 30, 2016 09:15 PM

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I don't think it was anything I DID or DIDN'T do. It just NEVER occurred to me that dying wss a possibility. It wasn't until I had a new family doctor tell me it was an honor to have a an astrocytoma survivor as a patient! I was kinda shocked. Every duvet since has been impressed at my survival too.

RE: Anaplastic Astrocytoma Survivors?

by jonjt488 on Sun Oct 30, 2016 11:00 PM

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On Oct 30, 2016 9:15 PM Ghog43 wrote:

I don't think it was anything I DID or DIDN'T do. It just NEVER occurred to me that dying wss a possibility. It wasn't until I had a new family doctor tell me it was an honor to have a an astrocytoma survivor as a patient! I was kinda shocked. Every duvet since has been impressed at my survival too.

Hey Ghog43,

It sounds like you had stage 4 Astrocytoma or, otherwise known as Glioblastoma Multiforme (and so in title, it wouldn't be considered anaplastic).  That affliction has an average death rate of ~90-95%, after approximately 18 months. 

The fact that you are alive 2+ decades after your procedure and have not had a recurrance is absolutely wonderful!  It seems that your affliction was rather centralized AND that your doctors were successful in removing and killing enough cancerous cells for your cancer to never return.  That's why all your doctors have felt so good about you.  I, too, am happy that you are doing well! 

I, personally, am not certain what will happen in my future, because my affliction is considered incurable.  But, seeing that you are doing well is very, very, very encouraging.

God bless!

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