But some patients reported missing face-to-face contact, study found
by Dlynn1210 on Fri Dec 23, 2016 02:11 AM
I am severely claustrophic and after the first treatment I told the technicians they were never getting me back in that 'cement mixer' again. Once was one time too many. That is when they ordered Ativan and as others have stated - it becomes our best friend during treatment. I had to use it before every treatment but once I had completed all of my radiation I never took another one.
I wish your dad the very best and you can assure him many of us have been down that road and we made it. I am cancer free for 9 years now!!! The horrors of the treatment are a distant memory that I rarely think about.
by Sister58 on Sat Dec 24, 2016 12:40 AM
by hisprincesstoo on Sat Dec 24, 2016 01:10 AM
actually, I didn't know what to do with the mask after I was done. Some talked about destroying it, ignoring it, and all sorts of ways to show victory over this part of treatment.
I actually decided to have my youngest son hide it by taking it after the last session til I asked for it. It took me 6 months, but I did ask for it one day. Now it is a conversation piece in my living room. I'm glad I didn't destroy it. Most don't undertand what we have gone thru, this is just one of the ways we can share our story in a way most ppl understand.
by Sister58 on Sat Dec 24, 2016 01:17 AM
by Dlynn1210 on Sat Dec 24, 2016 01:40 AM
I told the nurses at the hosp to throw it out it but my hubby thought it was a good idea to hold onto it. A year later while we were on a mission trip the hose broke on our washer flooding the lower level of our home. Servpro came in to clear out the damage and one loss was the mask. I can't say I miss it - it came with too many bad memories!
by trixie1 on Sat Jan 07, 2017 05:50 PM
by Dawg1 on Wed Jan 18, 2017 01:59 AM
The nine years is music to my ears!
by KyGal_KY on Fri Feb 17, 2017 07:36 PM
Oh boy, the dreaded face mask!! I couldn't even make it through the fitting - I was given a shot of Ativan -- didn't even touch my panic so they gave me another which finally bought me down to where they could fit me. Right then they gave me a script for Ativan and said to take it an hr or so before I came in for my radiation. After 6-7 treatments I was able to survive without the Ativan. Hope this med helps your Dad!
by emifriend on Sun Feb 19, 2017 09:45 AM
I agree with all the above posts.. *** I took a Xanax before my treatments, ***I brought in an old cd that I had not heard in a while-- something I loved and knew every word too still ( Tapastry, Sweet Baby James, and Court and Spark - Dating myself here, I know) *** and before every treatment, I made the techies tell me how many of people they had treated that week and that they had not hurt anybody during the treatment.
The pill calmed me, the music distracted me and the reassurance was reassuring-- every single day. For the most part that worked for me... I only had to stop the treatment once or twice ( out of 35) due to anxiety--and even that was reassuring in a way because when I cried WOLF they responded fast.
I hope he has a better day tomorrow.
by emifriend on Sun Feb 19, 2017 09:56 AM
Opps--I just read the date on the original post. December! Hope the issue was improved for your dad.
As for the masks, in Nashville- we donated them to artists who created things (art) out of them, that were then auctioned to raise money for HNC patients. The evening was called Courage UnMasked--and the initiative was started in another city before Nashville. Here's a link if anybody is interested:
The evening really helped me reframe the experience in some small and big ways. Having the artists tell our stories, hear our angst and bring beauty to it all was a powerful thing.
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