Grade 3 anaplastic Astrosytomia

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Grade 3 anaplastic Astrosytomia

by echarlick91 on Tue Jan 03, 2017 09:43 PM

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On December 8th my boyfriend was rushed to the hospital because he had a seizure at work, which was later found to be a brain tumor on his left frontal lobe.   He was admitted that day and had surgery the follow morning.  And we were thankfullly home a few short days later, actually on my Birthday December 11th. 

The doctors were so optimistic about everything and that they got all the tumor we didn't think anything else of it.  Even though we need the tumor had to be tested.  We went back in to get his staples removed and found out we would be referred to an oncologist, to talk to us about radiation and chemotherapy.  We found out he had a grade 3 anaplastic Astrosytomia brain tumor the day before christmas eve....  And i've been a mess since.  I keep reading survival stories to stay positive. 

I never thought that we would be dealing with this.  He also has two boys that live with us ages 6 and 8, we explained to them the treatment and why he will be doing this.  Being the caretaker, i get overwhelmed, tired, stressed and don't know how we are going to make it financially.  Then i read these stories and it really helps lower my stress.  Because if he can make it, fight this and live a long healthy life, then money doesn't even matter! 

RE: Grade 3 anaplastic Astrosytomia

by Dodgerblue on Wed Jan 04, 2017 01:38 PM

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Wow, December 8th was same day I found out i had a unwelcome guest residing in my head, 2013 though. I also had a complete resection and went through 6 weeks of radiation and with concurrent chemo followed by 6 month of monthly chemo.  I was 38 at the time of my diagnosis.  Survival stats can be very scary, but brain cancer is a very uncertain illness.  There are many long term survivors of AA3 and GBM!  Learning to live with that uncertainty is certainly a challenge at the onset of this dx, but I find most people make peace with it and learn to live their life fully with a gratefulness for every day.  If you have any questions about anything, feel free to private message me.  Don't private message from an iphone or ipad though as the site has a bug that make message blank if sent from a mobile device.  

Dodger

RE: Grade 3 anaplastic Astrosytomia

by Wifeofmichael on Wed Jan 04, 2017 04:07 PM

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So sorry you had this happen so close to your birthday, ( happy birthday, and I mean that sincerely) my husband's tumor DX and subsequent treatments all happened around his birthday. Keep reading the survival stories and over time you'll learn to not sweat the small stuff. This site has lots of resources so you don't have to feel like you are doing this all alone. Dodger blue is right, there are lots of long term survivors out there. In June of 2012, we were given two options for my husbands tumor; surgery/ radiation or hospice. My guy is still here, he's pretty beat up from this experience and yes, we have a new normal, he will always struggle with what you or I take for granted, we're pretty poor now and forever but you are so right. Who cares! This morning he was watering his house plants. Better than pushing up daisies. Concentrate on trying to get rest when you can. Our oncologist always said, when the baby sleeps, you sleep too! She knows caregivers run a marathon everyday and burnout is a real danger over the years. We want years, not just months and so far we've been blessed with the latter. The best to you and your family, prayers going out to you all :)

RE: Grade 3 anaplastic Astrosytomia

by echarlick91 on Wed Jan 04, 2017 04:19 PM

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Thank you for that message!!!  There is hope and there are ups and downs.  One thing i was worried about was not being able to start Radiation right away becuase our out of pocket costs were 3800 for the Temolozomide.   we got a call last night from the pharmacy saying he was approved for a $4000 grant!!!!   This was amazing news. 

RE: Grade 3 anaplastic Astrosytomia

by Dodgerblue on Wed Jan 04, 2017 05:08 PM

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Check with your hospital's finance dept., they are often able to assist patients or refer you to organizations that can be of assistance and guidance.

Dodger

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