Esophageal Cancer and back pain

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Esophageal Cancer and back pain

by zpittS4400 on Tue Jan 10, 2017 03:39 PM

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My husband was diagnosed with Esophageal Cancer, Stage IV with metz to the liver and lymph nodes. Has been on chemo for a little more than 6 months.  The blood work pretty good and the ct scans show that the tumors have radically shrunk in the liver.  Now he's having serious back pain that keeps him up most nights. While he was in the chemo chair and the pain again took over, I spoke to the Chemo nurse and his doctor's nurse, they saw the pain in his face and added Dilauded (sp) to his drip and that took away the pain. He also got a prescription for Hydromorphone, which we had filled.  This doesn't seem to work.  The pain was so bad, his oncologist had another, more intricate ct scan done the same day.  The results are, the tumors are still shrinking, but not the lymphnodes in his abdomen are growing(they're still small, but growing. This could be the reason for all the back pain.  We have another meeting scheduled for later this week to discuss the findings.  Any idea on what's going on, has the cancer spread?  I will ask these questions at the next appointment, but if you could give me some advice or ideas as to what we're looking at, it would be greatly appreciated.

RE: Esophageal Cancer and back pain

by MollysMom135 on Wed Jan 11, 2017 09:25 PM

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I have no advise. But if it were me, I would definitely ask if the nodes were pressing on nerves. One of the best medicines I have found for nerve pain is Neurotin, also goes by Gabapentin. But just a suggestion.

RE: Esophageal Cancer and back pain

by eternalife on Wed Jan 11, 2017 09:52 PM

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Sorry to hear this... my husband had back pain initially for months , he thought he just had strained his back... however a year later after further tests discovered he had EC.... the pain left eventually and he assumed chemo for 18 months.. he was diagnosed a stage IV.. with mets to the lymph and one rib... I don't need to say more.. chemo works for some cancers.. EC is terribly aggressive and the prognosis is not always good... my husband expired after a valiant fight...

Don't give up.. let your husband decide which way he wants to go.. chemo radiation or not.. that's what I did... and have no regrets.. was there with him when he took his last breath.. may he now rest in peace.. he was only in his 50s when he died.. way too young.

Best to you,

RE: Esophageal Cancer and back pain

by Joeb1 on Wed Jan 11, 2017 11:33 PM

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Wait for results. When you have cancer you tend to think every pain is related to the cancer. I've  learned not to worry until you know for sure. Even then worrying will not help.

RE: Esophageal Cancer and back pain

by jjohn1004 on Tue Apr 18, 2017 05:20 PM

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My husband was diagnosed stage IV 3/15.  He went through chemo and there was no sign of cancer for a year.  He suddenly began complaining of leg and back pain.  It rapidly got worse, and we knew something wasn't right.  Our oncologist thought it was sciatica and blew us off.  I noticed his alkaline phosphate level was 3x normal and that this is a sign of cancer in the bone.  Called the oncologist and questioned this and we were in for a cat scan the same week.  Cancer all throughout his bones and he is now back on chemo and pain free.  If you feel something isn't right - ask and then ask again.  My husbands alkaline phosphate level doubled from 300 to 650 in the time it took to get someone to listen.  (Normal is 100)  Get a second opinion if needed.  Trust your gut! 

RE: Esophageal Cancer and back pain

by zpittS4400 on Tue Apr 18, 2017 07:25 PM

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During the 2nd week of January, my husband decided he couldn't eat or drink, except for taking his pills. This went on for 2 weeks. He was so weak, he'd hold on to the walls to go down the hallway, all the while refusing to go to the hospital or even his doctor.  He insisted on keeping his chemo appointment. I called the nurse ahead of time and let them know what was going on and asked for them to have a wheelchair ready.  His doctor was amazed at his condition after seeing him 16 days prior.  He was immediately put in the hospital and died on February 2.  I feel this didn't need to happen, he didn't have to die.  The certificate shows "sepsis and the secondary cause, cancer."  My poor husband. I'm sorry I know I should be giving you folks hope, but I just can't yet.  I'm just not ready.

RE: Esophageal Cancer and back pain

by Caryroleson on Sun May 14, 2017 02:02 AM

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My husband was diagnosed with stage 3 small cell cancer of the esophagus.last August. He did very well with the first round of Chemo. No serious side effect and gained all his weight back. The Pet scan after treatment showed very small EC tumor and lymph nodes were smaller as well. But end of February his Ct scan showed one lymph node behind the stomach had grown. He took off one Chemo med and added taxol. My husband did not do well with it. He started with lower back pain on his left side and the doctor had a Ct scan done. Same lymph node has gotten bigger. Doctor wants to meet next week and change his Chemo med. does anyone know what other Chemo med is used for EC? During taxol infusions he lost all the weight he had gained.

RE: Esophageal Cancer and back pain

by kingzombi60 on Thu May 25, 2017 11:51 PM

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Could you be more specific as to what kind of back pain and exactly where he was feeling it? burning? stiffness? sharp like a knife? ache? on spine? ribs? thanks...concerned waiting for my test results.I'm also having back pain.

RE: Esophageal Cancer and back pain

by Laylan000 on Mon Jul 09, 2018 06:52 PM

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Hi I been having difficulty swallowing for for 3 months or so now and I also have some lower back it’s worse in the mornings. Now I have been feeling extremely tired and all I want to do is sleep. I have body jerks and itchy skin. I have been seeing yellow discharge for past month or so. My question for you is how did the doctors first find out it was esophageal cancer. Did it show in a blood test or something else. Pls help. I have not done anything about it as of now I just need answers please. :(

RE: Esophageal Cancer and back pain

by clabei92 on Thu Jul 26, 2018 03:27 PM

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my dad just passed a little over a week ago from the same cancer, same back pain. He couldn't eat. He was in the hospital just withering away and when the doctors finally mentioned a feeding tube it was too late, he passed 3 days later. I am so angry. It seemed so preventable. I am very dissapointed in my dads oncologists..

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