Vin stage 3

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Vin stage 3

by Debbie51 on Wed Jan 25, 2017 12:08 AM

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Hi i had a severe itch which my doctor kept telling me was because of my age and the menopause! I was told to get some vagisal cream for the dryness ( even though I wasn't dry!!) but the itching got worse it never worked 2 years later I had a smear test that came back irregular and a appointment was made for me to attend the colposcopy clinic ( within 5 days of results) I had a biopsy taken from neck of womb so while I was there I mentioned to the consultant about this itch. she told me to jump back into the chair and she took a biopsy. One week later the result came back saying I had vin 3. Within 2 weeks a operation was scheduled as a day case under general anthestic. I was told I would have laser treatment to my vulva and possible incision if needed. I woke up feeling very sore and I was told I had been given local anaesthetic down below as well to help with pain. I was discharged 6 hours later. The doctor just said it went well and I would be seen again for a check up in 6 months but she would be passing me onto a general surgeon to check my anus and bridge gap as there she noticed there was some lesions there. Now comes the horrible bit. I have had both my labia lips removed completely ( both sides) which NO ONE had told me in the hospital after my operation (I found out myself in a mirror at home!) all my vulva has been deeply lasered and cut with dissolvable stitches ( not been told how many) plus the entrance and inside the channel of my vagina! I have been sent home with no instructions how to look after it other than do not use tampons or have sex for 2 weeks! ( they are having a laugh!!) and I will be seen in 6 months!! the pain was hell I couldn't even get in and out of bed properly for 2 weeks. To pee was horrfic! I learnt to pour a jug of warm warm over my vagina as I pee so the pain did not hurt so much. I also learnt if I needed a poo to cover over my vagina and hold it so it wouldn't hurt. It is now 4 weeks since my op and I have seen no one till the other day when I called my emergency doctor as I had a severe infection. It is disgusting to think that a person is treated this way mentally and physically with no professional looking to see how it's healing for 6 months! All I hear is about female mutalation on young girls and it's got to stop well what about supporting woman who has this kind of surgery with support and after care! Do we not count because ours is an illness!!!. I have done nothing but cry as I feel so isolated and alone because of the after treatment (or lack of!!) I have been told the reason I won't be seen for 6 months is because they need this to recover before they can do more tests to see if they have got it all! I was given a sick note for time off work for two weeks! (Very unrealistic) I had to ring the clinic and they told me on the phone at least 6 weeks which is when I should start to feel more comfortable to sit and walk! So my friends out there, pour a warm jug of water over your vagina every time you pee,use a flannel to dry yourself not toilet paper as that sticks to you, buy a doughnut ring cushion to sit on (I couldn't live without it!) it's so comfortable. Plenty of pain killers for first two weeks, I use my husbands boxer shorts as they are so much easier and don't lay on you body and they are not so tight like woman's pants. Plus if you have periods ask your doctor to give you tablets to with hold your periods for a while because it's easier than trying to deal with a period while you are healing! (As iv found out!). But never feel you are the only one going through this and you feel like a freak because you are not!. But unfortunately in England no one seems to care and a 6 month check up with no one surporting or checking you till then is disgraceful!!! And I'm still waiting for an appointment to see the other surgeon in case it's spread to my anus. Does anyone really care anymore about how people are feeling. Ps thank goodness I have the support of good friends and a lovely husband ( 27 years together) so it's not just women who has many different partners as I have been faithfully all my married life! Good luck to anyone else going through the same as me, hold strong and it is ok to cry x

RE: Vin stage 3

by Dee543 on Mon Feb 27, 2017 10:48 PM

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Oh wow I can't believe your story. That's horrible the lack of communication they had with you. To not find out you had both sides removed until you went home?! It took me a whole year before someone finally did a biopsy and found out why I had the intense itchiness. I only had one labia minora removed and I had a week follow up and now will be going to my four month follow up next week. I hope that since all that has happened to you that you have found a better more attentive doctor. Sounds like you've been through a lot. It does feel better to know that at least you can count on family and friends for support.
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