14 out of 28 treatments.

14 Posts | Page(s): 1 2  Next 

14 out of 28 treatments.

by Elegy on Fri Feb 03, 2017 01:52 PM

Quote | Reply

Hello,

I hope this message finds everyone well. I hope some of you have a minute to answer my questions and offer some advice.

I am a 32 year old male, who after losing my voice, was diagnosed with Squamous cell carcinoma of the larynx. 

I had a neck dissection to remove the tumor on my left vocal cord. They saw that the cancer did not spread beyond the larynx. I did a Pet Scan to confirm what the surgeon stated. 

I was told that radiation would most likely happen before surgery so I ended up putting on alot of weight, I ate alot and lifted weights. (180 to 240lbs) 

I am at the middle of my treatment and the two main issues im having is pain swallowing ( feels like a rock in my throat) and I am constantly coughing up phlem and having to spit throughout the day. My saliva is over producing. 

Ive tried different types of foods and even soft foods cause pain, the only thing that seems to be ok is a creamy soup.

Any advice on the phlem and what to expect the next 2 weeks? I took short term disability so I can battle this and not have to worry about work. 

I've been trying hard to stay hydrated and take a multi vitamin daily. I am trying to see if maybe I should try to juice some veggies to make sure I heal allright. 

The worst part is the constant coughing and spitting. 

btw I've read alot of the posts on here so Ive done the baking soda salt rinse like 4 times daily, I got magic mouthwash but that only numbs the mouth even when I gargle, Ive taken Tylenol 3 and and crushed them into warm water to gargle but with no avail. I was thinking of maybe buying mucinex for the phlem? 

Sorry for the long post. Thank you all

Paul

RE: 14 out of 28 treatments.

by JPaul18535 on Fri Feb 03, 2017 10:26 PM

Quote | Reply

Hi Paul,

Wow, 50% of the way through treatment.  I had SCC BOT, 35 radiation treatments and 2 doses of chemo.  No surgery.  

I recall my half way point, after that, my memory is kind of a blur.  But I do recall the excess saliva, I kept something with me during this period of treatment because the saliva I was creating was overwhelming and, for some reason, I couldn't swallow it.  I'm not sure there is much you can do to prevent the excess saliva.  All I can say is, the next phase will probably be the opposite.  You will dry out and will have something like Biotene with you at all times.  I had the mouth wash and kept the spray in my pocket and next to my bed for use throughout the night. 

As for swallowing.  I too had that.  I went from 210 lbs to 142 lbs over my treatment.  Besides the Ensure/Boost, I would get an extra-large milk shake from Steak and Shake.  It still took me well over 1 1/2 hour to drink the milk shake.  

Seems like you have your wits about you which is good.  This site is also a great resource.  I wish I had found this web site prior or during my treatment.  

Good luck to you and hang in there.  You'll be through your other 50% of treatment in no time.  

Regards,

Jeff 


 

RE: 14 out of 28 treatments.

by Elegy on Sat Feb 04, 2017 12:03 AM

Quote | Reply

Thanks Jeff, I appreciate your input !

RE: 14 out of 28 treatments.

by PopPop on Sat Feb 04, 2017 12:05 AM

Quote | Reply

Paul, 

I am glad to see you are at the halfway point of your treatments, unfortunately, things are going to get worse before they get better. 

I too did the Baking Soda and Salt solution gargle, rinse and spit routine. I did it as often as every 20-30 minutes if needed to help me keep my mouth/ throat semi-numb. I would gargle and spit most of the solution out, but would swallow a small amount to hit my throat.

Try to get as much fluid in as possible, hydration is important. Some people have had success with room temperature Ginger Ale as well with the mucus issue.  Don't be shy on asking for pain meds when the discomfort in your mouth and throat gets too much to stand.  

My Best to You and Everyone Here

RE: 14 out of 28 treatments.

by Elegy on Sat Feb 04, 2017 04:51 PM

Quote | Reply

thanks for the great insight !

RE: 14 out of 28 treatments.

by louisb323 on Thu Feb 09, 2017 08:15 AM

Quote | Reply

I'm 48 and have 6 treatments left out of 33.

For the pain I take hydrocodone.

You didn't mention a g- tube. My doctor recommended one and I had it put in at the beginning anticipating the pain and discomfort of swallowing. It's saved me from having to swallow food, but it's been a huge pita. Not sure if that's still an option for you this late in the game.

Discuss this with your doctor. S/he may just prescribe some stronger painkillers.

For saliva I've been using the baking soda/salt rinse. I also found just sipping, swishing and swallowing water throughout the day helps break up thick saliva.

RE: 14 out of 28 treatments.

by mixbrix on Fri Feb 17, 2017 03:30 AM

Quote | Reply

On Feb 03, 2017 1:52 PM Elegy wrote:

Hello,

I hope this message finds everyone well. I hope some of you have a minute to answer my questions and offer some advice.

I am a 32 year old male, who after losing my voice, was diagnosed with Squamous cell carcinoma of the larynx. 

I had a neck dissection to remove the tumor on my left vocal cord. They saw that the cancer did not spread beyond the larynx. I did a Pet Scan to confirm what the surgeon stated. 

I was told that radiation would most likely happen before surgery so I ended up putting on alot of weight, I ate alot and lifted weights. (180 to 240lbs) 

I am at the middle of my treatment and the two main issues im having is pain swallowing ( feels like a rock in my throat) and I am constantly coughing up phlem and having to spit throughout the day. My saliva is over producing. 

Ive tried different types of foods and even soft foods cause pain, the only thing that seems to be ok is a creamy soup.

Any advice on the phlem and what to expect the next 2 weeks? I took short term disability so I can battle this and not have to worry about work. 

I've been trying hard to stay hydrated and take a multi vitamin daily. I am trying to see if maybe I should try to juice some veggies to make sure I heal allright. 

The worst part is the constant coughing and spitting. 

btw I've read alot of the posts on here so Ive done the baking soda salt rinse like 4 times daily, I got magic mouthwash but that only numbs the mouth even when I gargle, Ive taken Tylenol 3 and and crushed them into warm water to gargle but with no avail. I was thinking of maybe buying mucinex for the phlem? 

Sorry for the long post. Thank you all

Paul

I'm 4 1/2 years from having one vocal cord and half my voicebox lasered out and 33 radiation treatments. I still have a major mucus problem.  If I lay down, I start coughing, so I sleep in the recliner.  From the start I've had a prescription for Mucinex, 2 600MG tablets, twice a day.  It works perfectly, and if I forget to take them, my coughing reminds me.  In the beginning I drank lots of cold Coke, which made my throat feel much better, but the Mucinex is the miracle worker.  Hope this helps.  :)

RE: 14 out of 28 treatments.

by KyGal_KY on Fri Feb 17, 2017 07:24 PM

Quote | Reply

My dr gave me the patches they use for seasickness -- they help dry you up!

RE: 14 out of 28 treatments.

by Whitewhale on Sat Feb 18, 2017 09:55 PM

Quote | Reply
Hello this is Bob coming up on 1 year of post treatment cancer on left vocal cord. Call it cancer of the glottis. Had surgery and 28 radition treatments. Had pet scan full body when dianosed. And several cat scan of throat area. You sound like what I went threw I am 53 when I found out started losing voice. I hope you are doing good. As for the ph elm I used it all and I just pushed threw it and you will one day at a time and it get worse at the end. I lost my voice for about a month after rt. and it had me concerned big time. But I did sleep up right too. And was on the massage board quite often I am sorry you got this both do wish you all the best in your journey as I am coming up on my 1 year post rt. and it has been one humble experience which you will see. I have my ent scope me once a mouth and go to onclologist every three months and you are on pins and needles when that come up. I wish you and all the best any thing I can help you with please feel free to ask as I may be able to help. Main thing was the fear of the unknowing but I read on the message board I would rather live with cancer then die with cancer. To me that means live live to its fullest. One day at a time I stopped drinking 18 years ago. which I had the cure for that desease in my hand but this I rely on my doctors and my faith and I will deal with this one day at a time. It's gonna be tough the next month so hang in there all the best to all Bob

RE: 14 out of 28 treatments.

by Whitewhale on Sat Feb 18, 2017 10:04 PM

Quote | Reply
Hello this is Bob coming up on 1 year of post treatment cancer on left vocal cord. Call it cancer of the glottis. Had surgery and 28 radition treatments. Had pet scan full body when dianosed. And several cat scan of throat area. You sound like what I went threw I am 53 when I found out started losing voice. I hope you are doing good. As for the ph elm I used it all and I just pushed threw it and you will one day at a time and it get worse at the end. I lost my voice for about a month after rt. and it had me concerned big time. But I did sleep up right too. And was on the massage board quite often I am sorry you got this both do wish you all the best in your journey as I am coming up on my 1 year post rt. and it has been one humble experience which you will see. I have my ent scope me once a mouth and go to onclologist every three months and you are on pins and needles when that come up. I wish you and all the best any thing I can help you with please feel free to ask as I may be able to help. Main thing was the fear of the unknowing but I read on the message board I would rather live with cancer then die with cancer. To me that means live live to its fullest. One day at a time I stopped drinking 18 years ago. which I had the cure for that desease in my hand but this I rely on my doctors and my faith and I will deal with this one day at a time. It's gonna be tough the next month so hang in there all the best to all Bob
14 Posts | Page(s): 1 2  Next 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.