Looking for Glioblastoma Multiforme IV survivors (brain cancer) Looking for Glioblastoma Multiforme IV survivors (brain cancer)

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Looking for Glioblastoma Multiforme IV survivors (brain cancer) Looking for Glioblastoma Multiforme IV survivors (brain cancer)

by Miracle123 on Tue Feb 14, 2017 09:35 AM

Quote | Reply

Thank you for this platform.

My Das was diagnosed GBM IV after a Surgery in the month of November 2016. As per our Surgeon , maximum Tumor was removed. He took 6 weeks of Radiation and Temodar except weekends. There were no major side effects before but after a month's break, with Docto's advice he started with Double dosage of Chemos. Which are showing some scary side effects like dizziness, vomitting, weakness  as We have not seen our Dad like this he is the most active Person. 

So Please suggest me

1)What can we do to overcome the side effects of Chemos so that he stays Energetic throughout the treatment.

2) Please suggest us some natural therapies (Soursop leaves, Cow Urine etc.) to cure this disease. and How effective they are ?

3) Please help us with Diet plan.

Thank you. I will be really grateful.

RE: Looking for Glioblastoma Multiforme IV survivors (brain cancer) Looking for Glioblastoma Multiforme IV survivors (brain cancer)

by mlat26 on Sun Feb 19, 2017 03:09 AM

Quote | Reply

I have my mom on CBD oil and Soursop oil. She could not get chemo and radiotherapy because of complications during her stay at the hospital. They did a PET scan a few weeks ago and theres no indication of regrowth. She had the craneostomy on march 2016, almost a year and shes doing really well.

RE: Looking for Glioblastoma Multiforme IV survivors (brain cancer) Looking for Glioblastoma Multiforme IV survivors (brain cancer)

by alibro2003 on Thu Feb 23, 2017 11:18 AM

Quote | Reply

On Feb 14, 2017 9:35 AM Miracle123 wrote:

Thank you for this platform.

My Das was diagnosed GBM IV after a Surgery in the month of November 2016. As per our Surgeon , maximum Tumor was removed. He took 6 weeks of Radiation and Temodar except weekends. There were no major side effects before but after a month's break, with Docto's advice he started with Double dosage of Chemos. Which are showing some scary side effects like dizziness, vomitting, weakness  as We have not seen our Dad like this he is the most active Person. 

So Please suggest me

1)What can we do to overcome the side effects of Chemos so that he stays Energetic throughout the treatment.

2) Please suggest us some natural therapies (Soursop leaves, Cow Urine etc.) to cure this disease. and How effective they are ?

3) Please help us with Diet plan.

Thank you. I will be really grateful.

Hi,

My Dad (aged 75) was diagnosed in April 2015. He found that making himself go out for a walk when he was feeling tired from the chemo was the best thing to combat tiredness as going to lie down only left him more tired. He still walks at least 3 miles every day. 

He eats a healthy diet with plenty of fresh fruit & veg & he takes the following supplements:-

Borage oil

Green Tea

Reishi Mushroom extract

Ginger

Astragalus

Siberian Ginseng

Goji Berry

Turmeric

Echinacea

Barberry bark

Vitamin D

He takes all of these in liquid form as he was sick of taking pills. I don't know if any of them work but so far so good & they are not doing him any harm as he looks and feels great.

Hope this is helful. Good luck & best wishes to your Dad & all of your family,

Alison 

RE: Looking for Glioblastoma Multiforme IV survivors (brain cancer) Looking for Glioblastoma Multiforme IV survivors (brain cancer)

by Miracle123 on Tue Mar 07, 2017 04:47 AM

Quote | Reply

On Feb 19, 2017 3:09 AM mlat26 wrote:

I have my mom on CBD oil and Soursop oil. She could not get chemo and radiotherapy because of complications during her stay at the hospital. They did a PET scan a few weeks ago and theres no indication of regrowth. She had the craneostomy on march 2016, almost a year and shes doing really well.

Hi Mlat26,

Thank you for reply and great to hear about your mom,

Can you tell me from where you ordered this CBD oil and Soursop oil ? are there any suppliers in India ?

Thank you.

RE: Looking for Glioblastoma Multiforme IV survivors (brain cancer) Looking for Glioblastoma Multiforme IV survivors (brain cancer)

by julesaxon on Tue Mar 07, 2017 05:29 AM

Quote | Reply

On Mar 07, 2017 4:47 AM Miracle123 wrote:

On Feb 19, 2017 3:09 AM mlat26 wrote:

I have my mom on CBD oil and Soursop oil. She could not get chemo and radiotherapy because of complications during her stay at the hospital. They did a PET scan a few weeks ago and theres no indication of regrowth. She had the craneostomy on march 2016, almost a year and shes doing really well.

Hi Mlat26,

Thank you for reply and great to hear about your mom,

Can you tell me from where you ordered this CBD oil and Soursop oil ? are there any suppliers in India ?

Thank you.

I enjoy reading about GBM IV success stories so I always share mine. I'm now 4 years from my first GBM IV diagnosis and 3 years from my second when my surgeon implanted chemo laced wafers in my brain. I've had three clear MRI scans since then and I'm doing great. Although I am sometimes a little unsteady walking on uneven ground. Good luck all. Looking forward to reading your positive news. Always believe in yourselves. You can do it.

RE: Looking for Glioblastoma Multiforme IV survivors (brain cancer) Looking for Glioblastoma Multiforme IV survivors (brain cancer)

by flyntrade on Wed Mar 08, 2017 11:09 PM

Quote | Reply

On Feb 23, 2017 11:18 AM alibro2003 wrote:

On Feb 14, 2017 9:35 AM Miracle123 wrote:

Thank you for this platform.

My Das was diagnosed GBM IV after a Surgery in the month of November 2016. As per our Surgeon , maximum Tumor was removed. He took 6 weeks of Radiation and Temodar except weekends. There were no major side effects before but after a month's break, with Docto's advice he started with Double dosage of Chemos. Which are showing some scary side effects like dizziness, vomitting, weakness  as We have not seen our Dad like this he is the most active Person. 

So Please suggest me

1)What can we do to overcome the side effects of Chemos so that he stays Energetic throughout the treatment.

2) Please suggest us some natural therapies (Soursop leaves, Cow Urine etc.) to cure this disease. and How effective they are ?

3) Please help us with Diet plan.

Thank you. I will be really grateful.

Hi,

My Dad (aged 75) was diagnosed in April 2015. He found that making himself go out for a walk when he was feeling tired from the chemo was the best thing to combat tiredness as going to lie down only left him more tired. He still walks at least 3 miles every day. 

He eats a healthy diet with plenty of fresh fruit & veg & he takes the following supplements:-

Borage oil

Green Tea

Reishi Mushroom extract

Ginger

Astragalus

Siberian Ginseng

Goji Berry

Turmeric

Echinacea

Barberry bark

Vitamin D

He takes all of these in liquid form as he was sick of taking pills. I don't know if any of them work but so far so good & they are not doing him any harm as he looks and feels great.

Hope this is helful. Good luck & best wishes to your Dad & all of your family,

Alison 

I was diagnosed with GBM in Aug 2014 at the age of 57. I also had surgery, six weeks of radiation and chemo.  I continued on Temodar for another 12 months taking the higher dose for 5 days then 23 days off.

My wife researched alternative supplements and has me taking several of the same things that alibro listed.  

I take;

green tea extract 500 mg 3 per day,

tumeric curcumin with bioperine 750 mg 3 per day,

vitaminD 1000 IU 2 per day 

lycopene 10 mg 3 times a day,

coriolus versicolor (mushroom extract)500 mg 3 times a day.

Of course there is no way to know if these supplements help but worth it to me to cover as many bases as possible.

I walk five miles a day and feel great.  My wife keeps me on a low carb diet.  No white sugar lots of veggies etc.

I get an MRI every three months and so far no regrowth.  I just passed 30 months since diagnosis.

I also believe that keeping a positive attitute is critical.  

Hope this helps.  

Jim

RE: Looking for Glioblastoma Multiforme IV survivors (brain cancer) Looking for Glioblastoma Multiforme IV survivors (brain cancer)

by bl2860 on Wed Mar 22, 2017 03:33 PM

Quote | Reply

On 3? 08, 2017 11:09 ?? flyntrade wrote:

On Feb 23, 2017 11:18 AM alibro2003 wrote:

On Feb 14, 2017 9:35 AM Miracle123 wrote:

Thank you for this platform.

My Das was diagnosed GBM IV after a Surgery in the month of November 2016. As per our Surgeon , maximum Tumor was removed. He took 6 weeks of Radiation and Temodar except weekends. There were no major side effects before but after a month's break, with Docto's advice he started with Double dosage of Chemos. Which are showing some scary side effects like dizziness, vomitting, weakness  as We have not seen our Dad like this he is the most active Person. 

So Please suggest me

1)What can we do to overcome the side effects of Chemos so that he stays Energetic throughout the treatment.

2) Please suggest us some natural therapies (Soursop leaves, Cow Urine etc.) to cure this disease. and How effective they are ?

3) Please help us with Diet plan.

Thank you. I will be really grateful.

Hi,

My Dad (aged 75) was diagnosed in April 2015. He found that making himself go out for a walk when he was feeling tired from the chemo was the best thing to combat tiredness as going to lie down only left him more tired. He still walks at least 3 miles every day. 

He eats a healthy diet with plenty of fresh fruit & veg & he takes the following supplements:-

Borage oil

Green Tea

Reishi Mushroom extract

Ginger

Astragalus

Siberian Ginseng

Goji Berry

Turmeric

Echinacea

Barberry bark

Vitamin D

He takes all of these in liquid form as he was sick of taking pills. I don't know if any of them work but so far so good & they are not doing him any harm as he looks and feels great.

Hope this is helful. Good luck & best wishes to your Dad & all of your family,

Alison 

I was diagnosed with GBM in Aug 2014 at the age of 57. I also had surgery, six weeks of radiation and chemo.  I continued on Temodar for another 12 months taking the higher dose for 5 days then 23 days off.

My wife researched alternative supplements and has me taking several of the same things that alibro listed.  

I take;

green tea extract 500 mg 3 per day,

tumeric curcumin with bioperine 750 mg 3 per day,

vitaminD 1000 IU 2 per day 

lycopene 10 mg 3 times a day,

coriolus versicolor (mushroom extract)500 mg 3 times a day.

Of course there is no way to know if these supplements help but worth it to me to cover as many bases as possible.

I walk five miles a day and feel great.  My wife keeps me on a low carb diet.  No white sugar lots of veggies etc.

I get an MRI every three months and so far no regrowth.  I just passed 30 months since diagnosis.

I also believe that keeping a positive attitute is critical.  

Hope this helps.  

Jim

Hi Jim, May l know which brand of curcumin you are taking? thanks

RE: Looking for Glioblastoma Multiforme IV survivors (brain cancer) Looking for Glioblastoma Multiforme IV survivors (brain cancer)

by sable4545 on Wed Mar 22, 2017 03:54 PM

Quote | Reply

Hi,

How did you come up with this list for your Dad?

And how much (measurment( for each of the separate items you listed do you make for him?

My niece has just been diagnosed with Stage 4 Inoperable Brain Cancer Glioblastoma.

Thank you

RE: Looking for Glioblastoma Multiforme IV survivors (brain cancer) Looking for Glioblastoma Multiforme IV survivors (brain cancer)

by flyntrade on Wed Mar 22, 2017 04:07 PM

Quote | Reply

All of my supplements are ordered Amazon.  The brand on the Turmeric Curcumin with BioPerine is Divine Bounty.  My wife says it is important to have the BioPerine.  She has done the research on supplements and recommends these two books.

 "Anticancer: A New Way of Life" and

"Surviving "Terminal" Cancer: Clinical Trials, Drug Cocktails, and Other Treatments."

Hope this helps you.

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