Stage IV Lung Cancer Fatigue

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Stage IV Lung Cancer Fatigue

by dshook on Sat Feb 18, 2017 04:56 AM

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My mom was diagnosed about 6 weeks ago with stage IV lung cancer, it is in the lymph nodes and possible spots in her brain. She is doing the Zometa treatments and started taking the Tarveva 2 weeks ago. My mom is the type of person that never sat still, she is 68 and was loving life. Since the cancer diagnosis she has moved in with me so I could help with anything she needs. What I am finding is she doesn't seem to have any energy, I talk about doing fun things once she gets used to her medication, she puts it off and says maybe she will be able to. Do I push her to be more active or do I allow her to continue the way it is going? I don't want to seem like I am not taking her feelings into account but I also don't want her to wallow in the cancer. Any advice would be appreciated. My mom is my best friend I will do anything to help her have a quality of life.

RE: Stage IV Lung Cancer Fatigue

by jskoziol4 on Sat Feb 18, 2017 07:16 AM

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Don't push her.  I have Stage 4 as well and feel tired and winded over the smallest excertions.  Find fun things to do that don't require her to expend energy.

RE: Stage IV Lung Cancer Fatigue

by dshook on Sat Feb 18, 2017 07:20 AM

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Ok. I appreciate your response.  I read on the Internet and it talks about exercise and how it helps; my concern is that is will weaken her immune system if I push or she will not improve with out exercise.  I think I need to take a step back and let her take the lead. 

RE: Stage IV Lung Cancer Fatigue

by jskoziol4 on Sat Feb 18, 2017 08:01 AM

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Yeah, that makes sense. Help her exercise to the extent she feels she can. In mid-2014 I was at death's door and wanted NOTHING to do with exercise but I recovered andn walked around.

RE: Stage IV Lung Cancer Fatigue

by dshook on Sat Feb 18, 2017 05:02 PM

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If you don't mind me asking, but what treatment are you using? I am my moms caretaker and my siblings come and visit and offer advise but it is all left upon me. I just want to make sure I give her the best quality of life that is possible. I want to push her to want to live many more years. Her thing is always "Well if I am here". I want her to want to live. I understand her cancer is not cureable but it is treatable. 

RE: Stage IV Lung Cancer Fatigue

by SHELONDRIA on Tue Mar 21, 2017 01:07 AM

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On Feb 18, 2017 4:56 AM dshook wrote:

My mom was diagnosed about 6 weeks ago with stage IV lung cancer, it is in the lymph nodes and possible spots in her brain. She is doing the Zometa treatments and started taking the Tarveva 2 weeks ago. My mom is the type of person that never sat still, she is 68 and was loving life. Since the cancer diagnosis she has moved in with me so I could help with anything she needs. What I am finding is she doesn't seem to have any energy, I talk about doing fun things once she gets used to her medication, she puts it off and says maybe she will be able to. Do I push her to be more active or do I allow her to continue the way it is going? I don't want to seem like I am not taking her feelings into account but I also don't want her to wallow in the cancer. Any advice would be appreciated. My mom is my best friend I will do anything to help her have a quality of life.

Whatever you do dont keep asking her.If she is usually upbeat and says she tired,take her word for it.Stage 4 is the last stage and all that meficine,lack of appetite,worry about having cancer is enough streds on your mother.The only thing you can do at this point is read the bible to her,pray to Jesus for her & your strength & healing.Ask for help in picking her up to put her in a wheelchair while she is still able to move and take her by the windows or outside to see the scenery.You may have good intent and fear her outcome,but it can be selfish to have high expectations when you really cant relate to how she actually feels.

RE: Stage IV Lung Cancer Fatigue

by dshook on Wed Mar 22, 2017 01:40 AM

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Her doctors feel that she should be doing more also. She has been on the Tarceva for over a month and all the blood work has come back really well. Her doctor even told her to go on vacation. I am worried that it is depression slowing her down more so than the cancer. She is going to start rehab and I am hoping that she gets some energy back from doing some type of exercise. Her doctors will not give a time line for her life. They feel she needs to consentrate on staying alive then counting down numbers. 

RE: Stage IV Lung Cancer Fatigue

by CaregiverPete on Thu Apr 06, 2017 01:31 PM

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Hi.

I'm Pete. I saw your post and I had to respond.

I'm my wife's caregiver. She's had lung cancer too, and also took Tarceva 150mg.

Very glad to hear that your moms blood work is doing well. I would agree with Dr about vacation. My wife and I took a 4 day vacation during her treatment and it was the best 4 days during that chemotherapy Rollercoaster ride. She needed it bad. It gave her much needed new strength and determination.

I agree, make the best of each day other than counting them down. 

New treatments are always on the horizon. I just met a gentleman that had stage lV liver cancer at support group that I go to. He was at deaths door with last rights given to him. They gave him a new chemotherapy and it cured him 10 years ago. It can happen just like that.  
Stay positive and be the best caregiver you can be to your mom.  I wish you both well. I'm glad I read your post.
Pete..

RE: Stage IV Lung Cancer Fatigue

by arkansasgirl on Fri Apr 07, 2017 08:01 PM

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My husband is Stage 4 advanced Lung Cancer, started Christmas 2015. All treatments medically are exhausted, he sleeps all the time, and I do feel like I am watching him die.  He rarely talks about the elephant in the room, but the doctors have told me privately less than 6 months, that was in February this year, but he doesnt know, and hasn't wanted to know since the beginning.  I guess now my biggest concern is when to tell him.  I have read alot, but would really like some first hand answers as to what symptoms I should watch for other than fatique. I don't want to wait till he slips into a coma, . I have never kept anything like this from him before, but each day never seems like the right time. 

RE: Stage IV Lung Cancer Fatigue

by jskoziol4 on Mon Apr 10, 2017 06:08 AM

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On Feb 18, 2017 5:02 PM dshook wrote:

If you don't mind me asking, but what treatment are you using? I am my moms caretaker and my siblings come and visit and offer advise but it is all left upon me. I just want to make sure I give her the best quality of life that is possible. I want to push her to want to live many more years. Her thing is always "Well if I am here". I want her to want to live. I understand her cancer is not cureable but it is treatable. 

Sorry for the delay in responding...

I've been on a number of treatments since diagnosis in early 2014. I was on Opdivo for a while and I felt great then!  But I'm back on platinum-based therapy now and not feeling so good. 

Quality of life is hard to define. I'm happy with my life and in my head treat all of this laconically whether I'm able to do the things I used to do physically or not. Don't push her. Her attitude is more important than anything you can do.  If she wants to walk, she walks.  If she wants to vegetate in front of the TV, so what?  Be her companion and help her do what SHE wants to do.

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