How are you coping with caregiving? Open ongoing thoughts.

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RE: How are you coping with caregiving? Open ongoing thoughts.

by Ray725 on Thu Mar 01, 2018 11:15 AM

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Patty I also forgot to say it was really lovely to see you.

Pete hope things are OK for the present, I assume that the "no tears left today" means things ahve been pretty stressful.

Marge wish it was New South Wales, but no its old South Wales in the UK and our "Beast from the East" has just been upgraded to a red weather warning for our area with a possibility of up to 20 inches of snow. Have to hunker down for a while. But guess what, one of my fillings fell out yesterday and it feels like a have a cavern in my mouth. Fortunately no pain as yet, hope I can get it treated before any pain develops. By the way I am the grandad on the right. Ray

RE: How are you coping with caregiving? Open ongoing thoughts.

by Ahole on Thu Mar 01, 2018 02:30 PM

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Bless your heart, Pete, and I hope heaven rains down on you with comfort and peace and soothes your aching being. I think of you every day and send good thoughts your way.

Glad you like the pic. I thought it was time I came out of hiding. ;)  Love you, Peppermint

RE: How are you coping with caregiving? Open ongoing thoughts.

by Ahole on Thu Mar 01, 2018 02:38 PM

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How lovely that you noticed me Ray. I want you to recognize me when I come bursting through the door of your pub!  LOL  It could happen! A friend and I have been thinking of coming out your way when she retires as we both have family history in your neck of the woods.

I can relate to your dental woes. I just went day before yesterday for a new crown and all is good. Best of luck for your repair, and may I say you look quite dapper in your photo! - Patty

RE: How are you coping with caregiving? Open ongoing thoughts.

by Mamaof4 on Thu Mar 01, 2018 06:10 PM

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On Feb 21, 2017 10:34 AM CaregiverPete wrote:

I'm Pete. 
Caregiver to my wife. 
This topic I started is all about caregivers. These are posts about our daily dose of encouraging hope and the unpromising challenges we go through to care for family members and friends. 

Caregivers need support during all stages of cancer. Support for caregivers is sometimes needed to continue even after cancer is gone in one form or another. Let's support each other during these times that change our minds and our lives forever.

Together lets try to heal that small part of us that won't return. We just need to find that person inside us that we're comfortable with, that comes close to who we once were before our lives were turned upside down. 
Caregivers please say or shout what you need to here. This is your place. Tell a pleasant uplifting story or vent your painful frustrations or sorrows.
Be well for today.
Peace to all of you for tomorrow.
 

My mom was diagnosed with Stage 1 pancreatic cancer last May.  She received a stent in her bile duct, but 22 days after placement, she developed sepsis and almost died.  Found out that she had abnormal anatomy and has a second bile duct!  Who would have thought?!  After SEVERAL stent procedures, she began chemo/radiation last July.  In August, that was complete and she underwent a Whipple Procedure on October 5th.  Since then, it has been a roller coaster!  She developed pneumonia in Decmember and now is suffering from SEVERE malnutrition.  She is on TPN, but wont eat or drink and her lower extremities are full of fluid due to her protein and potassium levels being so low.  I am caring for her 24/7 as well has working 50+ hours a week and taking care of my 4 kids (2 are 3 year old twins) and I am EXHAUSTED!!  They are now discussing putting her in the hospital to help with her fluid in her body and then a rehab facility.  I feel so many emotions all the time and my question is, how do you cope?  

RE: How are you coping with caregiving? Open ongoing thoughts.

by tippymicky504 on Thu Mar 01, 2018 09:23 PM

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Patty, Love your picture. Remember when I thought your previous picture was really you? Good to see your face. Hugs, Marge

RE: How are you coping with caregiving? Open ongoing thoughts.

by tippymicky504 on Thu Mar 01, 2018 09:25 PM

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Ray, Glad you pointed yourself out. I like the picture even more now. Hugs, Marge

RE: How are you coping with caregiving? Open ongoing thoughts.

by tippymicky504 on Thu Mar 01, 2018 09:29 PM

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Pete, Wish I could say something meaningful. I can only say my prayers continue for your wife and you. Hugs, Marge

RE: How are you coping with caregiving? Open ongoing thoughts.

by Ahole on Tue Mar 13, 2018 05:20 PM

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Sweet Pete, your silence is speaking volumes to me today. I can feel your struggle over the miles and sending you all the strength and good juju I can muster. I know how your heart hurts, and my heart reaches out to yours in an effort to soothe your pain.  Much caregiver love coming your way.  - Peppermint

RE: How are you coping with caregiving? Open ongoing thoughts.

by Ahole on Tue Mar 13, 2018 05:28 PM

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Marge, I'm thinking of you today as I am changing out my furniture like you did. I am mourning the loss of a special reclining loveseat that The Duke and I bought a few years ago, and enjoyed many an evening sitting together on. I gifted it to a young couple just starting out, and part of me is glad it gone but the new one is a constant reminder that life is so very, very different now.  :(

Glad you like my pic. That was funny when you thought the one of Maureen O'Hara was really me. I do have a flaming red head deep inside and she may just come out one of these days!  Hope you are doing well, My Warrior Sister. - Patty

RE: How are you coping with caregiving? Open ongoing thoughts.

by BlindGuide on Tue Mar 13, 2018 09:14 PM

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OMGosh, missy, you have got WAY too much going on!

Wrong as it seems, it would be a BLESSING for your Mom to be in the hospital/rehab...you could MAYBE catch your breath...while she's there, figure out SOME WAY to reduce your stress load over the long term!

Hang in there...

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