How are you coping with caregiving? Open ongoing thoughts.

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RE: How are you coping with caregiving? Open ongoing thoughts.

by CaregiverPete on Wed Jul 11, 2018 09:04 AM

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Hi everyone.

Miss you all. 

Hi Lena 

I'd love another dog or a little kitten. I have 4 golden retriever girls and Misty's racing pigeon "little Pete" 

I will think hard about adopting a kitten. 

I'm in a good place. A really good place. I'm being flooded with support. I'm so busy getting help with working on the house. Mom , both dad's, friends.... it's like weeks on end construction crews at my house. Everyone helping me. Then at night friends and family take me out 4 nights a week to eat and or drink, see a movie, grocery shopping,  shopping for bedding , window treatments,  flooring, bathroom tile..... it's crazy. Fixing the leak in the roof....

It's crazy. I'm not alone very often. I haven't cried in a week. 

I have a new Zen. 

I haven't watched tv in over 3 weeks. Nothing. Nada....  I'm listening to Misty's music, reading her cooking recipes. Listening to spa music. Playing with my girls. Holding and talking to little Pete. Cleaning. Helping other caregivers in my monthly group. 

I realize I'm jumping all over in every which way but loose.... but I'm getting better,  I'm feeling better. I'm missing misty, but shes right next to me. She's telling me to write this stuff to let everyone know I'm doing better n better. I'm going to have some crashes.... but Misty's going to grab my arm and help me up. Brush off my butt, and get the girls out for some running around....

My work outs are going well 5 days a week for an hour+ a day. People still make me meals, but i get to make a few of my own too. My buddy comes over once a week to cut my grass. Doesn't seem like any thing is stopping this train as of now.... 

That talk misty and I had before she passed has saved my life. 

Miss everyone..

Hope everyone is coping..... 

I have more to say.... I'm out of breath.... 

RE: How are you coping with caregiving? Open ongoing thoughts.

by Ahole on Wed Jul 11, 2018 01:07 PM

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Oh, Pete, you just made my day! I've been thinking about you and sending you good juju, even though I knew you were going to be okay. I'm so happy that you have people around you. That seems to be the key to keeping your head above water. Like you, I took on a bunch of house projects and I haven't stopped yet! 

How blessed you are to have your conversation with Misty that saved your life. You deserve it, My Friend. All good things, Peppermint

P.S. Marge, please peek your head up and let us know you're all right!

RE: How are you coping with caregiving? Open ongoing thoughts.

by tippymicky504 on Wed Jul 11, 2018 01:42 PM

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Pete, Sooooo glad to hear from you, and to hear you've kept yourself busy doing diverse things to keep you going. Seems like you have an amazing safety net. How wonderful to have so any people pulling for you and caring so much to help you in so any ways. God bless them. We are all still pulling for you and here if you need us, Hugs, Marge

RE: How are you coping with caregiving? Open ongoing thoughts.

by tippymicky504 on Wed Jul 11, 2018 01:52 PM

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Pete, You got a great gift from your Misty. Her permission to start a new life. She was a very wise woman. She's watching you Pete. Be sure to keep yourself going. I wish Don gas talked to me at the end. I remember Duke asking PP if she was ok. Misty wasn't taking any chances to make sure you would be...giving you all those things to keep you busy. Keep moving forward through this new phase of your life. It's what Misty wants. Hugs, Marge

RE: How are you coping with caregiving? Open ongoing thoughts.

by tippymicky504 on Wed Jul 11, 2018 02:02 PM

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PP Thanks for remembering. The doctor couldn't get the probe in...scar tissue from the fusion I had years ago. So, now I have to go into the hospital next Wednesday, an incision will be made and the probe layed into place. Then in 6 day I'll go back to the hospital and either have the thing pulled out if it didn't work, or the leads and control disc implanted if it worked. My wonderful sister in law...God bless her, is coming down for the week to take care of me the first time and my son is coming for the second. I'm so grateful. I'll post results. Hugs, Marge

RE: How are you coping with caregiving? Open ongoing thoughts.

by Ahole on Wed Jul 11, 2018 02:51 PM

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Marge, oh my gosh, I am so sorry you're having to go through all that. I'm so glad you have your sis-in-law and your son to help out. What would we ever do without our peeps? 

I'm touched that you remembered the Dukes last words to me. It seems like so long ago.....yet just yesterday in some ways. Big love to you, Marge, and good juju for the best outcome! - Patty

RE: How are you coping with caregiving? Open ongoing thoughts.

by tippymicky504 on Wed Jul 11, 2018 07:48 PM

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Thanks Patty. It helps to know I have people pulling for me. Hugs, Marge

RE: How are you coping with caregiving? Open ongoing thoughts.

by PunkyD on Thu Jul 12, 2018 06:34 AM

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Dear Pete,

How wonderful to hear from you. It sounds like you have amazing support from your family and community, and that you are keeping busy. That is definitely a good strategy in coping and grieving. It is ok to grieve and ok to feel happy or "ok". Keep it up, step by step, one day at a time. Misty is by your side every step of the way...

It is good to hear updates from everyone here, PP, Marge (good luck on your procedure next week-will be thinking of you), Lena, Ray. 

I am enjoying the summer season....enjoying seeing my kids on vacation, having fun, relaxing. Hopefully I will take vacation from work the beginning of August to be with them. Just grateful for everything I have, trying to live each day to the fullest. 

Hope you all are trying to do the same. 

Punky

RE: How are you coping with caregiving? Open ongoing thoughts.

by tippymicky504 on Thu Jul 12, 2018 01:40 PM

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Thanks, Punky. Enjoy your vacation. Hugs, Marge

RE: How are you coping with caregiving? Open ongoing thoughts.

by JamesM on Sat Jul 14, 2018 09:31 PM

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Hi I am new to this site and just signed up today. My oldest brother called me last Tuesday all upset and said his daughter my 19 yr old niece had a large mass on her throat and was getting a biopsy done Wednesday to see if it was thyroid cancer. The doctor Tuesday told him that he was 100% positive it was cancer even before the biopsy was done. They got the results back yesterday and it came back that it is thyroid cancer and he said while they did the biopsy they found another large mass on her left lymph node and both were cancer. He said it’s a very aggressive cancer but he didn’t know the stage or type of cancer because the needle they used for the biopsy they couldn’t stick in that far to determine the stage or type. They just told my niece last night the results. Our mother lives 12 hours away she is 77 yrs old and lives alone. She is already having a very hard time with news she got 2 weeks ago about one of my cousins that has leukemia having a large mass on one of her heart valves and needing open heart surgery next week. How do we tell her now that one of her granddaughters has thyroid cancer without causing her to have a heart attack or a nervous break down? This has been a really long and hard week for everybody in my family that knows. Any advice on how to get through this and any ideas how to break the news to our mother would be very appreciated. They want to do surgery this week ASAP to remove my nieces thyroid and both lymph nodes because it’s so aggressive of a cancer.
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