Plus, there's no evidence of safety concerns linked to long-term use of the drug, researchers say
by dee2016 on Sun Feb 26, 2017 07:27 PM
Hi everyone my husband has just been diagnosed with stage IV glioblastoma and we are coming to terms with this...he will be due to start chemo and radiotherapy in a couple of weeks, both treatment everyday for six weeks and then a break of four weeks with chemo after....my husband doesnt want to know how long he has and I have been reading articles etc that it is anything from a year to two but it has been comforting to read that some people have survived beyond this...it gives me hope...thanks for taking the time to read
Hugs to everyone
by JeffA81 on Mon Feb 27, 2017 04:44 AM
There's always hope. I had a stage IV GBM removed in 1986, then had radiation. They didn't have any drugs that were useful on brain tumors back then. My Dr. told my parents that I probably had about 6 months to live. But he forgot to tell me, and I was an invinceble 23 year-old and just wondering when I was going to get back to my life. I had a lot of dizziness and migrains after the surgery and in 94 they had to put a shunt in my brain to relieve fluid. In the mean time I had finished my Engineering degree and was working full time. In 2010, the shunt malfunctioned and was draining all the fluid out of my brain and spine. I was feeling really stupid. Dr told me he didn't know how I was alive or at least not in a coma. He inserted basically a pressure guage in the shunt and I feel the best now since 1986. I play golf, bowl, workout regularly, and eat a good not great diet but especially a lot of good fats. Sometimes it feels like your climbing the tallest mountain in the world, but you just have to keep going. Statistics are statistics, nothing more. Everyone is different. A positive additude, a loving family and friends, and a will to live, go a long way.
by Dodgerblue on Mon Feb 27, 2017 02:19 PM
I would suggest looking to see if there is a brain tumor support group in your area. They aren't for everyone, but I think it's a great way to meet others who have been exactly where you and your husband are right now. They are usually for suvivor's and caregivers. There is a 10 year GBM survivor in my group. Best of luck,
by dee2016 on Mon Feb 27, 2017 09:05 PM
wow Jeff you certainly have had mountains to climb...thank you so much for sharing this with me, it gives me great hope reading this...You have done remarkably well considering what they say about these type of brain tumours....i have to admit my husband is very positive which i hope continues...we have great support too from family and friends which means a lot to us....that he has a will to live...hugs to you
by dee2016 on Mon Feb 27, 2017 09:19 PM
thank you Dodger have had a quick look but nothing as of yet.
by Dodgerblue on Tue Feb 28, 2017 02:02 PM
Where do you live?
by dee2016 on Wed Mar 01, 2017 08:46 PM
ireland...i see support groups on the mainland but there doesnt seem to be any here that i can see
by falconet on Wed Mar 01, 2017 09:00 PM
read this and also educate yourself on the metabolic idea of cancer. http://www.telegraph.co.uk/lifestyle/wellbeing/healthadvice/ hope it helps.
by dee2016 on Wed Mar 01, 2017 09:29 PM
thank you so much Falconet...makes very interesting reading...
by mariab964 on Thu Mar 02, 2017 03:31 AM
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