Plus, there's no evidence of safety concerns linked to long-term use of the drug, researchers say
by Maria2007 on Fri Mar 10, 2017 09:47 AM
Last week our daughter Maria had a new MRI, and the result was very bad. The oncologist gives her only a few weeks to live, and there will be no treatment anymore.
4 years ago we adopted her from Bulgaria when she was 5 years old, and it was love at first sight. She is such a sweet and beautiful girl, and now we are loosing her,we can't cope with that. The new tumor ( probably GBM) is making her sometimes get aggressively towards us. When we touch her, she is saying " I hate you " and she reapids that very often. It's so very hard to hear that, because you know it's not our daughter saying that, but the pressure of the new tumor.
In June 2016 she got the diagnosis AA3, and 95% was removed. She had 1DH1, and everything was going good.
She is now sleeping on a special bed in the living room, and we sleeps there also. Sometimes my wife and I can't take it anymore, but we have to be there for her.
by Dodgerblue on Fri Mar 10, 2017 05:17 PM
I'm terribly sorry to hear your story! This is a very unpredictable disease. A AA3 dx with IDH1 and resection, indicates a better prognosis, but clearly every case is very different. I'm so sorry. Stay strong for each other and her.
by Mayra66 on Fri Mar 17, 2017 12:24 AM
No words to comfort your pain..im so sorry.
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
We care about your feedback. Let us know how we can improve your CancerCompass experience.