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ABCgirlz's Recent CancerCompass Activity

  • ABCgirlz has replied to a post on the message board

    You can go to the site https://clinicaltrials.gov.  You can put in gastric cancer and the countries you want to search in.  The only option I know of at this time is immunotherapy.  It is reported to work best if their is an expression of PDL-1 by the cancer, but still has seen some success even without that.  I hope this is helpful for you.  

    November 16 at 2:25 PM view post
    • ABCgirlz has replied to a post on the message board

      There is a rule about selling things, mostly meant for those that bombard every board with the same message selling whatever.  There is a "contact us" link at the bottom right of most pages to ask about it.  I had a gofundme page for my daughter.  I found the best response was to post regular updates on facebook about how she was doing and treatments, and get friends and family to share it.  It wa...

      October 12 at 3:37 PM view post
      • ABCgirlz has replied to a post on the message board

        My daughter had stomach cancer with ascites and mets to the bone.  She was having some nausea and vomiting before starting chemotherapy, but not much before that.  She was on this same regime of chemotherapy and even had extra 5-FU for 48 hours in a bring home pouch.  She was given a poorer prognosis primarily because of the metastatic ascites.  The first 2 chemo session were pretty rough, but aft...

        October 12 at 2:49 PM view post
        • ABCgirlz has replied to a post on the message board

          A few more thoughts for you.  I think they biopsied the adrenal glad to look at whether it is stage 2 or 3.  Although it is true adrenal gland tumors usually are not cancerous, there can be mets to that area, which would have made it stage 3 or even 4.  As for blood tests, gastric cancer does not always show up on them until later stages.  If it does, then they can be used to follow if treatment i...

          October 06 at 1:09 PM view post
          • ABCgirlz has replied to a post on the message board

            Reading between the lines a little, the diagnosis was made with the endoscopy and biopsies were taken.  If that is the case I would say it is unlikely to be a mistake in diagnosis.  However, if there were no biopsies of the lungs, then the assumption that those were mets may have been incorrect and so was stage 1 not 2.  Some types of gastric cancer grows and spreads much faster than others.  Did ...

            October 05 at 3:18 PM view post
            • ABCgirlz has replied to a post on the message board

              So glad she has not had side-effects.  My daughter's first 2 chemotherapy sessions on 5FU combination was horrible.  After that not many side-effects on that regimen.  She was on an antacid prescription to help with any GI symptoms.  Good whole food diet helps a lot.  One side-effect that can come up later dulls the taste buds.  Ash said adding a little extra herbs and spices to food hel...

              October 05 at 3:03 PM view post
              • ABCgirlz has replied to a post on the message board

                I am so sorry for your loss.  There is a condition, (I cannot find the name for right now) that happens to people that are very very sick for a while especially those with cancer that causes blood to leak from the veins and arteries and escape the nose, mouth, ears etc.  It is part of the body shutting down even though we do everything we can to keep them going.  Another possiblity is that it is what h...

                August 30 at 6:12 PM view post
                • ABCgirlz has replied to a post on the message board

                  What is the new medicine?  Maybe I or others can help you understand it.  If you click the notify me box below where you type the reply, it when send you an email when you get a response. 

                  August 23 at 12:12 PM view post
                  • ABCgirlz has replied to a post on the message board

                    I am so sorry you and your family have to go this and make these decisions.  You should discuss your concerns with your hospice nurse and/or doctor.  If you choice is to stay home regardless, you should be able to do that.  A pain pump can be placed in most instances to control pain.  All comfort measures should be on the table whether you are home or inpatient.  If you do not get satisfactor...

                    August 17 at 2:54 PM view post
                    • ABCgirlz has replied to a post on the message board

                      It sounds like you are doing things you need to help take care of yourself except for one.  Give yourself a break.  This was not your fault.  There was nothing more you could do.  You have nothing to atone for.  That is a hard one move away from.  It may come a little at a time.  It is okay to give yourself time.  

                      August 10 at 1:41 PM view post
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                      About ABCgirlz

                      Caregiver
                      Stomach Cancer

                      Stomach cancer runs in my family, but we do not have the CDH1 gene. My dad had stomach cancer about 10 years ago in his 60s. His brother had stomach cancer 15 years ago in his 60s. My 32-year-old daughter has stage 4 stomach cancer currently and is undergoing chemotherapy. (There is possible younger age stomach cancer history in her father's family as well.)

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