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ABCgirlz's Recent CancerCompass Activity

  • ABCgirlz has replied to a post on the message board

    My daughter received all of those treatments as well.  She started the immunotherapy with Keytruda but was unable to get more than one treatment as she devedoped pneumonia before it could take affect.  So I do not experience to share on its success .  This was several years ago.  I know they have done more research on it and some are even doing immunotherapy and chemotherapy at the same time in th...

    January 30 at 4:26 PM view post
    • ABCgirlz has replied to a post on the message board

      I am glad they found the problem and were able to give you some relief.  Sucralfate is a prescription drug that also helps to coat the stomach.  You can ask if that would be beneficial to you.  You may find the no stomach for cancer site helpful for suggestions and support in dealing with issues after gastrectomy.  

      November 24 at 4:20 PM view post
      • ABCgirlz has replied to a post on the message board

        For some reason stomach cancer rates are higher in Japan.  The doctor's there are very knowledgeable about how to do deal with it.  There are different types of stomach cancer with signet ring being the worst.  Cancer that has moved out of the abdominal area into the pelvic region is considered stage 4.  Typical regimen is for chemotherapy for 6 months and then look at more options such as surgery...

        November 24 at 1:36 PM view post
        • ABCgirlz has replied to a post on the message board

          I would wonder if the reflux might be part of anxiety since going off the antidepressants.  So that might be something to check on as well.  Ask the doctor about melatonin a natural sleep aid.  She can also try a wedge pillow to sleep with her head higher to reduce the reflux.  I am also going to suggest another message board site called "no stomach for cancer" that has a lot of advise specificall...

          November 24 at 1:27 PM view post
          • ABCgirlz has replied to a post on the message board

            Strictly speaking cachexia is excessive unintentional weight loss.  Any significant illness can cause that, not just cancer although we associate it more with cancer.  It is often that the illness causes the person to have a decreased appetite, but their intent is not to lose weight.  It can also be that the body is using those calories consumed and more to fight the disease process causing weight loss...

            November 15 at 4:08 PM view post
            • ABCgirlz has replied to a post on the message board

              I do not know a lot about alternative medicine, but I saw that no one else replied.  My daughter's gastroenterologist was from India and recommended tumeric tea in addition to traditional therapy to help with symptoms.  Depending on your mother's other health issues, traditional therapy may not be an option.  It might be worth a consult to ask about immunotherapy as well.  This type of cancer is v...

              November 01 at 2:54 PM view post
              • ABCgirlz has replied to a post on the message board

                If you have not consulted his doctor yet, you should do that right away.  I would be concerned about infection.  Even a realatively minor one could cause him a lot of problems.  There are in the US over the counter meds that can help with thinning mucus that have guaifenesin in them.  There is also a website called "No stomach for cancer" that has information and message boards about gastric surge...

                November 01 at 2:46 PM view post
                • ABCgirlz has replied to a post on the message board

                  My daughter was given immunotherapy on a humanitarian basis (free) because chemo had stopped working and she did not qualify for the study.  She was HER2 and PD-L 1 negative.  We were told the chances of it working were less, but it could still work and were unsure why, and they were trying to figure out why.  We were also told the effects may not last as long since she was PD-L1 negative.  She wa...

                  October 03 at 12:15 PM view post
                  • ABCgirlz has replied to a post on the message board

                    No, I sorry, I don't.  Does he have an obstruction that is also keeping it from draining?  Corner a doctor and ask what are going to do about this.  

                    October 03 at 12:06 PM view post
                    • ABCgirlz has replied to a post on the message board

                      Now that he is at another facility maybe they can offer more options.  Things i would ask about would be Vitamin C infusions, steroids to boost him up, and immunotherapy instead of or with chemo.  

                      October 02 at 3:31 PM view post
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                      About ABCgirlz

                      Caregiver
                      Stomach Cancer

                      Stomach cancer runs in my family, but we do not have the CDH1 gene. My dad had stomach cancer about 10 years ago in his 60s. His brother had stomach cancer 15 years ago in his 60s. My 32-year-old daughter has stage 4 stomach cancer currently and is undergoing chemotherapy. (There is possible younger age stomach cancer history in her father's family as well.)

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