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ABCgirlz's Recent CancerCompass Activity

  • ABCgirlz has replied to a post on the message board

    Strictly speaking cachexia is excessive unintentional weight loss.  Any significant illness can cause that, not just cancer although we associate it more with cancer.  It is often that the illness causes the person to have a decreased appetite, but their intent is not to lose weight.  It can also be that the body is using those calories consumed and more to fight the disease process causing weight loss...

    November 15 at 4:08 PM view post
    • ABCgirlz has replied to a post on the message board

      I do not know a lot about alternative medicine, but I saw that no one else replied.  My daughter's gastroenterologist was from India and recommended tumeric tea in addition to traditional therapy to help with symptoms.  Depending on your mother's other health issues, traditional therapy may not be an option.  It might be worth a consult to ask about immunotherapy as well.  This type of cancer is v...

      November 01 at 2:54 PM view post
      • ABCgirlz has replied to a post on the message board

        If you have not consulted his doctor yet, you should do that right away.  I would be concerned about infection.  Even a realatively minor one could cause him a lot of problems.  There are in the US over the counter meds that can help with thinning mucus that have guaifenesin in them.  There is also a website called "No stomach for cancer" that has information and message boards about gastric surge...

        November 01 at 2:46 PM view post
        • ABCgirlz has replied to a post on the message board

          My daughter was given immunotherapy on a humanitarian basis (free) because chemo had stopped working and she did not qualify for the study.  She was HER2 and PD-L 1 negative.  We were told the chances of it working were less, but it could still work and were unsure why, and they were trying to figure out why.  We were also told the effects may not last as long since she was PD-L1 negative.  She wa...

          October 03 at 12:15 PM view post
          • ABCgirlz has replied to a post on the message board

            No, I sorry, I don't.  Does he have an obstruction that is also keeping it from draining?  Corner a doctor and ask what are going to do about this.  

            October 03 at 12:06 PM view post
            • ABCgirlz has replied to a post on the message board

              Now that he is at another facility maybe they can offer more options.  Things i would ask about would be Vitamin C infusions, steroids to boost him up, and immunotherapy instead of or with chemo.  

              October 02 at 3:31 PM view post
              • ABCgirlz has replied to a post on the message board

                I am so sorry you and your family have to go through this.  Chemo can cause white blood cells that fight infections to crash.  Were they checking his cbc before doing chemo?  Neulasta is a medication that causes the white blood cells to go back up.  With my daughter, they would check her blood count before doing chemo and if they were even borderline, they would give her Neulasta to bump it back u...

                October 02 at 12:03 PM view post
                • ABCgirlz has replied to a post on the message board

                  I have seen a lot of conflicting information about where to get it.  I have also seen conflicting information on whether THC or CBD oil is best.  My only real advise it to be careful of the source.  You may want to try asking on the alternative treatment message board.  It has been shown to help with symptoms from cancer and/or chemo.  Also be aware of what the law in your area says about it....

                  September 29 at 4:20 PM view post
                  • ABCgirlz has replied to a post on the message board

                    I'm sorry, I tried to respond to your post before, but it must not have gone through.  Some ask if the doctor's are not doing enough because a patient is older.  It is simply a bad thing to have to go through either way.  Did they do a PET scan prior to surgery to see the extent of his cancer burden?  My daughter was 32 when she was diagnosed with stage 4 signet ring stomach cancer, and they would...

                    September 29 at 4:13 PM view post
                    • ABCgirlz has replied to a post on the message board

                      I know how terriblly hard this is.  What type of stomach cancer does she have?  Is it signet ring?  The first rule for doctors is first do no harm so they can be less agressive with patients that significant premorbid conditions like heart disease.  My best advise would be to check with her cardiologist and see if they think she could handle it.  The cardiologist may even want to run tests to...

                      September 18 at 4:56 PM view post
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                      About ABCgirlz

                      Caregiver
                      Stomach Cancer

                      Stomach cancer runs in my family, but we do not have the CDH1 gene. My dad had stomach cancer about 10 years ago in his 60s. His brother had stomach cancer 15 years ago in his 60s. My 32-year-old daughter has stage 4 stomach cancer currently and is undergoing chemotherapy. (There is possible younger age stomach cancer history in her father's family as well.)

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