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ABCgirlz's Message Board Messages

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RE: Stomach Cancer

by ABCgirlz - January 30, 2019

My daughter received all of those treatments as well.  She started the immunotherapy with Keytruda but was unable to get more than one treatment as she devedoped pneumonia before it could take affect.  So I do not experience to share on its success .  This was several years ago.  I know they have done more research on it and some are even doing immunotherapy and chemotherapy at the same time in the hope that the chemotherapy can hold the tumor burden steady while immunotherapy begins to work.  I know this can be a hard road to walk.  

RE: Gastrectomy and bile reflux

by ABCgirlz - November 24, 2018

I am glad they found the problem and were able to give you some relief.  Sucralfate is a prescription drug that also helps to coat the stomach.  You can ask if that would be beneficial to you.  You may find the no stomach for cancer site helpful for suggestions and support in dealing with issues after gastrectomy.  

For some reason stomach cancer rates are higher in Japan.  The doctor's there are very knowledgeable about how to do deal with it.  There are different types of stomach cancer with signet ring being the worst.  Cancer that has moved out of the abdominal area into the pelvic region is considered stage 4.  Typical regimen is for chemotherapy for 6 months and then look at more options such as surgery, HIPEC procedure, immunotherapy or clinical trials.  

RE: Gastrectomy and bile reflux

by ABCgirlz - November 24, 2018

I would wonder if the reflux might be part of anxiety since going off the antidepressants.  So that might be something to check on as well.  Ask the doctor about melatonin a natural sleep aid.  She can also try a wedge pillow to sleep with her head higher to reduce the reflux.  I am also going to suggest another message board site called "no stomach for cancer" that has a lot of advise specifically for those that have had gastrectomy.  I hope that helps a little, and she gets much better.  

RE: Cachexia?

by ABCgirlz - November 15, 2018

Strictly speaking cachexia is excessive unintentional weight loss.  Any significant illness can cause that, not just cancer although we associate it more with cancer.  It is often that the illness causes the person to have a decreased appetite, but their intent is not to lose weight.  It can also be that the body is using those calories consumed and more to fight the disease process causing weight loss even though they are eating enough.   There is a diagnosis that often goes along with it called failure to thrive, which means the person or the body and often both is not flourishing.  I hope that explains things a little better.  

RE: Limits plastica

by ABCgirlz - November 01, 2018

I do not know a lot about alternative medicine, but I saw that no one else replied.  My daughter's gastroenterologist was from India and recommended tumeric tea in addition to traditional therapy to help with symptoms.  Depending on your mother's other health issues, traditional therapy may not be an option.  It might be worth a consult to ask about immunotherapy as well.  This type of cancer is very agressive.  I am so sorry your family has to deal with this.  

If you have not consulted his doctor yet, you should do that right away.  I would be concerned about infection.  Even a realatively minor one could cause him a lot of problems.  There are in the US over the counter meds that can help with thinning mucus that have guaifenesin in them.  There is also a website called "No stomach for cancer" that has information and message boards about gastric surgery and recovery.  

My daughter was given immunotherapy on a humanitarian basis (free) because chemo had stopped working and she did not qualify for the study.  She was HER2 and PD-L 1 negative.  We were told the chances of it working were less, but it could still work and were unsure why, and they were trying to figure out why.  We were also told the effects may not last as long since she was PD-L1 negative.  She was not able to be on it for very long because of other issues.  Sometimes now they use more than 1 immunotherapy drug to start off with. 

No, I sorry, I don't.  Does he have an obstruction that is also keeping it from draining?  Corner a doctor and ask what are going to do about this.  

Now that he is at another facility maybe they can offer more options.  Things i would ask about would be Vitamin C infusions, steroids to boost him up, and immunotherapy instead of or with chemo.  

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About ABCgirlz

Caregiver
Stomach Cancer

Stomach cancer runs in my family, but we do not have the CDH1 gene. My dad had stomach cancer about 10 years ago in his 60s. His brother had stomach cancer 15 years ago in his 60s. My 32-year-old daughter has stage 4 stomach cancer currently and is undergoing chemotherapy. (There is possible younger age stomach cancer history in her father's family as well.)

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